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PANCREATIC CANCER ACTION NETWORK INC Organization Name provided in the GuideStar Exchange* as of 05/04/2012: PANCREATIC CANCER ACTION NETWORK INC

Organization Name as listed in the IRS Business Master File as of 12/08/2014: PANCREATIC CANCER ACTION NETWORK INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  Pancreatic Cancer Action Network
Manhattan Beach, CA

GuideStar Summary

&1002; GuideStar Exchange Organization has not participated in the
GuideStar Exchange ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Evidence of Impact Expert Assessment and Reviews available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2013, 2012, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is not available
  4 stars Average rating from 5 Personal Reviews | Write a Review

Basic Organization Information

PANCREATIC CANCER ACTION NETWORK INC Organization Name provided in the GuideStar Exchange* as of 05/04/2012: PANCREATIC CANCER ACTION NETWORK INC

Organization Name as listed in the IRS Business Master File as of 12/08/2014: PANCREATIC CANCER ACTION NETWORK INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: Pancreatic Cancer Action Network
Physical Address: Manhattan Beach, CA 90266 
EIN: 33-0841281
Web URL: www.pancan.org 
NTEE Category: E Health—General & Rehabilitative
E01 (Alliance/Advocacy Organizations)
Ruling Year: 1999 


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Mission Statement

The Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

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Annual Revenue & Expenses (IRS Form 990, July 2012)

Fiscal Year Starting: July 01, 2012
Fiscal Year Ending: June 30, 2013

Total Revenue $20,049,500
Total Expenses $19,038,020

Revenue & Expenses

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Balance Sheet (IRS Form 990)

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Leadership

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Board Chair

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Board Co-Chair

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Board of Directors

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Board Leadership Practices (GuideStar Exchange,
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May 2012)
?

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Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in May 2012

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Programs

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Impact Summary from the Nonprofit

This organization has not provided an impact summary.

Expert Assessment

The Pancreatic Cancer Action Network has been very effective in raising awareness about pancreatic cancer and has had a strong history of good research funding, advocacy, and education. Read More »

Expert Reviews and Comments

2011 Philanthropedia Top Nonprofit

This organization is a 2011 Philanthropedia top nonprofit, recommended by experts as having high impact.

These expert reviews were generated through Philanthropedia's research methodology to identify high-impact nonprofits. Learn more

Evidence of Impact

The Pancreatic Cancer Action Network has been very effective in raising awareness about pancreatic cancer and has had a strong history of good research funding, advocacy, and education.

Great Fundraising for Research
In the 12 years that the Pancreatic Cancer Action Network hired its first staff person, they have: 1. Directly funded millions of dollars of research which has been highly impactful (for example, their funding helped develop the first mouse model of pancreatic cancer); / 2. Dramatically increased the awareness of pancreatic cancer in the general public; / 3. Increased the public funding for pancreatic cancer research; 4. Developed a large and passionate group of grassroots advocates who are highly effective at spreading their message; 5. Provided excellent patient services through their call-line, clinical trial matching and patient information (print/website). Other
Good Research Funding, Education, and Advocacy
Pancreatic cancer causes nearly as many deaths per year as colon cancer, yet has only a fraction of the attention and research dollars devoted to it. PanCAN seeks to correct this through advocacy, education, and research funding. Researcher and Faculty
Patient Empowerment
Pancreatic cancer is the most deadly cancer - very few people survive at all. Yet PanCan has promoted a vision of hope, progress, and patient empowerment. Nonprofit Senior Staff
Raising Awareness
They have increased funding and awareness around Pancreatic cancer through celebrity tie-ins and a well-known name. They have great patient support and education. Other
They have made great strides in raising awareness of pancreatic cancer in a very short time. Nonprofit Senior Staff
PanCAN's messaging is clear, concise, and bold. They have effectively remained at the top of the ladder for service to pancreatic cancer patients & families, and for research funding. Nonprofit Senior Staff
Strong Influence on Congress
This group has succeeded in getting Congress and the cancer community to increase attention to the deadliest cancers, including pancreatic cancer. Nonprofit Senior Staff
Leader in Cancer Advocacy
Very solid pioneer in the area of advocacy for pancreatic patients. As far as I know, they have a good reputation for efficiency and quality service, and they take reasoned and useful positions on policy matters. Other
Model for Other Advocacy Groups
PanCAN is a model for other advocacy groups looking to make a real impact in the fight against disease. They directly fund research at levels that are astonishing. They ARE the driving force behind pancreatic cancer research in this country. They do their best to provide support and answers for patients and families for a disease that does not have many good answers. Their leadership from the top down is phenomenal. Their PALS line was a model for my organization's own helpline. Furthermore, they are incredibly supportive of other advocacy groups (they "play well in the sandbox"). Nonprofit Senior Staff

Organizational Strengths

Experts have stated that this organization has been effective because of its strong leadership and its effective marketing and advocacy campaigns.

Great Leadership and Staff
The leadership provided by Julie Fleshman has been stellar. As its first hire, she has grown the organization through its start-up phase to a mid-sized non-profit with an annual budget of > $10M. Their research agenda drives all of their policy issues, which is a smart way to focus. Other
They have a strong long term leadership and staff that are passionate about the cause. They have grown tremendously in a very short time. Nonprofit Senior Staff
This group has strong leadership. It also has an impressive advocacy staff. Nonprofit Senior Staff
For a niche organization they have very forward thinking leadership and vitality. Researcher and Faculty
Strong Advocate
Recent rapid increases in activities show that the organization is capable of achieving its stated goals. PanCAN serves as the main public spokesman for victims of this highly fatal disease, that otherwise would lack advocates. Researcher and Faculty
They have consistent leadership and are well known among advocates. The organization works well with others. Other
Great Marketing
Their marketing is admirable - clear, easy to read, easy to understand resources are provided to patients and loved ones. Nonprofit Senior Staff

Areas for Improvement

According to experts, this organization could improve by altering its focus, working on a stronger national image, and diverting more time to fundraising.

More Fundraising
It needs more financial support for research and public outreach. The high mortality rate of pancreatic cancer has meant a paucity of survivors that can be spokespeople for the cause of curing pancreatic cancer and improving treatment and outcome. Pan CAN must speak for those who cannot speak for themselves. Researcher and Faculty
They should raise more money and fund more research. Nonprofit Senior Staff
They need to be better at raising funds to support a research initiative. Researcher and Faculty
Possibly Overstretched
They do a lot as a single organization. They might wish to consider peeling off a 501c4 for their lobbying activities so the 501c3 can be concentrated on the patient education/outreach and research funding. Nonprofit Senior Staff
Stronger National Presence
They are perceived as a West Coast group while actually being a national group. Other
Broader Focus
The group could broaden its focus. Nonprofit Senior Staff

Third Party Ratings, Accreditations and Awards

Reviews

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