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Cystic Fibrosis Research, Inc.

AKA  CFRI
Mountain View
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GuideStar Summary

&1002;                GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

Cystic Fibrosis Research, Inc.
Also Known As: CFRI
Physical Address: Mountain View 94043 1012
EIN: 51-0169988
Web URL: www.cfri.org 
NTEE Category: G Disease, Disorders, Medical Disciplines
G20 Birth Defects
Ruling Year: 1975 


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Mission Statement

Cystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (GuideStar Exchange,
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May 2013)

Fiscal Year Starting: January 1, 2012
Fiscal Year Ending: December 31, 2012

Total Revenue $1,057,685
Total Expenses $931,367

Revenue & Expenses (GuideStar Exchange,
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May 2013)

Fiscal Year Starting: January 1, 2012
Fiscal Year Ending: December 31, 2012

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar Exchange,
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May 2013)

Mrs. Carroll P. Jenkins

Term:

Since Nov 2002

Board Chair (GuideStar Exchange,
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May 2013)

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Board of Directors (GuideStar Exchange,
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May 2013)

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Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

People information was last updated by the nonprofit in May 2013

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Programs

Program: Cystic Fibrosis Educational Programs (GuideStar Exchange,
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May 2013)

Budget:
$552,945
Category:
Animal Control
Population Served:
Disabled, General or Disability Unspecified
None
None

Program Description:

We host a national cystic fibrosis family educational conference, attracting international speakers and participants from across the country. We issue three newsletters per year, free of charge to over 14,500 constituents. We also hold an annual day retreat for the CF community. We provide on-going support groups for teens and adults with CF and for parents and caregivers of children with CF. We oversee and provide an information based website which is accessed by over 8,000 people each month. We provide direct information and referral to all in our community.

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Program: New Horizons Research (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
May 2013)

Budget:
$150,000
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Disabled, General or Disability Unspecified

Program Description:

Funding cystic fibrosis research in academic institutions throughout the county,

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Program: Elizabeth Nash Memorial Fellowship (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
May 2013)

Budget:
$160,000
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Disabled, General or Disability Unspecified

Program Description:

We fund CF research in the San Francisco Bay region and San Diego currently supporting 4 post-doctoral fellows and projects in well known academic institutions.

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Program: CF Discovery Series (GuideStar Exchange,
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May 2013)

Budget:
--
Category:
Animal Control
Population Served:
None
None
None

Program Description:

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Program: CFRI National CF Family Education Conference (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
May 2013)

Budget:
--
Category:
Animal Control
Population Served:
None
None
None

Program Description:

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Program: CFRI Teen & Adult Retreat (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
May 2013)

Budget:
--
Category:
Animal Control
Population Served:
None
None
None

Program Description:

Program Long-Term Success:

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Impact Summary from the Nonprofit

What sets CFRI apart from other CF organizations is our commitment to provide relevant educational, advocacy and personal support to those living with cystic fibrosis and their families. It has been shown that informed and knowledgeable patients maintain healthier lives. We believe that the information and assistance that CFRI offers can help reduce much of the emotional and physical distress associated with this prevalent, life threatening genetic disease.
GuideStar Exchange - Silver Participant What is this?
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

Reviews

Organization Data Available

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  • Letter of Determination
  • Form 1023 / 1024
  • Board Members
  • Officer, Director and/or Highest Paid Employee data for


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