Cystic Fibrosis Research, Inc.

AKA CFRI

Mountain View

GuideStar Quick View Everything you need to know...

Also Known As:: CFRI
Physical Address:: Mountain View 94043 1012
EIN:: 51-0169988
Web URL:: www.cfri.org
Leadership:: Mrs. Carroll P. Jenkins

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GuideStar Seal	Committed to transparency
Registered with IRS	Legitimacy information is available
Financial Data	Annual Revenue and Expense data reported
Forms 990	2011, 2010, and 2009 Forms 990 filed with the IRS
Mission Objectives	Mission Statement is available
Impact Summary	Impact Summary from the nonprofit is available

Legitimacy Information

This organization is registered with the IRS.
This organization is required to file an IRS Form 990 or 990-EZ.

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Forms 990 from IRS IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

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Fiscal Year Starting: Jan 1, 2012
Fiscal Year Ending: Dec 31, 2012

Revenue
Total Revenue	$1,057,685

Expenses
Total Expenses	$931,367

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Financial data from Forms 990 for Year 2011, 2010, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Key Financial SCAN Features

Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.

View Sample Report

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Summary
Financials
Forms 990 & Docs
People
Programs & Help

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Basic Organization Information

Cystic Fibrosis Research, Inc.

Also Known As:: CFRI
Physical Address:: Mountain View 94043 1012
EIN:: 51-0169988
Web URL:: www.cfri.org
NTEE Category:: G Disease, Disorders, Medical Disciplines; G20 Birth Defects
Year Founded:: 1975
Ruling Year:: 1975

Mission Statement

Cystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

Expert Assessment

There are no Expert Reviews for this organization. Learn more about TakeAction@GuideStar.

Impact Summary from the Nonprofit

What sets CFRI apart from other CF organizations is our commitment to provide relevant educational, advocacy and personal support to those living with cystic fibrosis and their families. It has been shown that informed and knowledgeable patients maintain healthier lives. We believe that the information and assistance that CFRI offers can help reduce much of the emotional and physical distress associated with this prevalent, life threatening genetic disease.

Personal Reviews

Key Financial SCAN Features

Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.

View Sample Report

More Information

FAQs on Financial Data | Digitizing IRS Form 990 Data

Financial Data

Revenue and Expenses

Revenue and Expense data from Forms 990 for 2011, 2010, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Balance Sheet

Balance Sheet data from Forms 990 for Year 2011, 2010, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Key Financial SCAN Features

Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.

View Sample Report

More Information

Forms 990 Received from the IRS IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

Forms 990 for 2011, 2010, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Forms 990 Provided by the Nonprofit

Forms 990 Provided by the Nonprofit for 2012, 2011, 2010, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Financial Statements

Financial Statements for 2012, 2011, 2010, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Annual Reports

Formation Documents A Letter of Determination is a letter from the IRS to a nonprofit organization stating that the organization has successfully applied for tax-exempt status. In this document the IRS indicates under which section of the Internal Revenue Code an organization is qualified.

Letter of Determination is included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Leadership

Mrs. Carroll P. Jenkins

Term:

Since Nov 2002

Board Chair

Board of Directors

Officers for Fiscal Year

Report Added To Cart Officers for 2011, 2010, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now

Highest Paid Employees & Their Compensation

Highest Paid Employee Data for 2011, 2010, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Program: Cystic Fibrosis Educational Programs

Budget:: $552,945
Category:: Animal Control
Population Served:: Disabled, General or Disability Unspecified; None; None

Program Description:

We host a national cystic fibrosis family educational conference, attracting international speakers and participants from across the country. We issue three newsletters per year, free of charge to over 14,500 constituents. We also hold an annual day retreat for the CF community. We provide on-going support groups for teens and adults with CF and for parents and caregivers of children with CF. We oversee and provide an information based website which is accessed by over 8,000 people each month. We provide direct information and referral to all in our community.

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Program: New Horizons Research

Budget:: $150,000
Category:: Diseases, Disorders & Medical Disciplines
Population Served:: Disabled, General or Disability Unspecified

Program Description:

Funding cystic fibrosis research in academic institutions throughout the county,

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Program: Elizabeth Nash Memorial Fellowship

Budget:: $160,000
Category:: Diseases, Disorders & Medical Disciplines
Population Served:: Disabled, General or Disability Unspecified

Program Description:

We fund CF research in the San Francisco Bay region and San Diego currently supporting 4 post-doctoral fellows and projects in well known academic institutions.

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Program: CF Discovery Series

Budget:: --
Category:: Animal Control
Population Served:: None; None; None

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Program: CFRI National CF Family Education Conference

Budget:: --
Category:: Animal Control
Population Served:: None; None; None

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Program: CFRI Teen & Adult Retreat

Budget:: --
Category:: Animal Control
Population Served:: None; None; None

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Evidence of Impact

Expert Comments

There are no comments available for this organization.

Organizational Strengths

Expert Comments

There are no comments available for this organization.

Areas for Improvement

Expert Comments

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From the Nonprofit

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