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NEUROFIBROMATOSIS INC Organization Name provided in the GuideStar Exchange* as of 07/05/2012: NEUROFIBROMATOSIS INC

Organization Name as listed in the IRS Business Master File as of 08/11/2014: NEUROFIBROMATOSIS INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  NF Network
Wheaton, IL
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GuideStar Summary

&1002;                GuideStar Exchange Committed to transparency ?
This organization is a Bronze-level GuideStar Exchange participant, demonstrating its commitment to transparency.

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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is not available
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Basic Organization Information

NEUROFIBROMATOSIS INC Organization Name provided in the GuideStar Exchange* as of 07/05/2012: NEUROFIBROMATOSIS INC

Organization Name as listed in the IRS Business Master File as of 08/11/2014: NEUROFIBROMATOSIS INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: NF Network
Physical Address: Wheaton, IL 60187 
EIN: 04-3030760
Web URL: www.nfnetwork.org 
NTEE Category: G Disease, Disorders, Medical Disciplines
G99 Diseases, Disorders, Medical Disciplines N.E.C.
H Medical Research
H99 Other Medical Research N.E.C.
G Disease, Disorders, Medical Disciplines
Ruling Year: 1990 


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Mission Statement

The mission of the NF Network is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

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Annual Revenue & Expenses (IRS Form 990, October 2011)

Fiscal Year Starting: October 01, 2011
Fiscal Year Ending: September 30, 2012

Total Revenue $212,084
Total Expenses $216,669

Revenue & Expenses

Revenue and expense information has not been provided by the nonprofit. Click here if you are associated with this organization and want to provide this information.

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

Audited Financial Statement is not available for this organization.

Annual Reports

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Leadership (GuideStar Exchange,
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July 2012)

Mr. Rosemary Anderson

Board Chair (GuideStar Exchange,
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July 2012)

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Board of Directors (GuideStar Exchange,
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July 2012)

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Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

People information was last updated by the nonprofit in July 2012

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Programs

Program: (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
July 2012)

Budget:
--
Category:
Population Served:

Program Description:

Creating a community of support for those affected by NF by developing local NF support groups. Providing educational meetings for individual families affected by NF. Providing educational opportunities for health care professionals. Provide physician referrals. Advocate for public and government awareness of NF. Support research to develop treatment and cure for NF.

Program Long-Term Success:

Carried out a national summer camp for NF affected children

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Advocacy for NF Research (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
July 2012)

Budget:
--
Category:
Population Served:
Adults

Program Description:

NF, Inc. has a grassroots advocacy program to obtain federal dollars for Neurofibromatosis research.

Program Long-Term Success:

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Program Success Monitored by:

Program Success Examples:

Program: Educational Meetings (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
July 2012)

Budget:
--
Category:
Population Served:
Adults

Program Description:

NF, Inc. provides opportunities to learn about Neurofibromatosis management and care through medical professionals with an interest in Neurofibromatosis.

Program Long-Term Success:

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Program Success Monitored by:

Program Success Examples:

Program: Referrals (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
July 2012)

Budget:
--
Category:
Population Served:
Adults

Program Description:

NF, Inc provides referrals to medical professionals with an interest in Neurofibromatosis.

Program Long-Term Success:

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Program Success Monitored by:

Program Success Examples:

Program: Educational materials (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
July 2012)

Budget:
--
Category:
Population Served:
Adults

Program Description:

NF, Inc. provides educational materials to individuals diagnosed with Neurofibromatosis and health care professionals.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

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Impact Summary from the Nonprofit

This organization has not provided an impact summary.
GuideStar Exchange - Bronze Participant What is this?
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Reviews

Organization Data Available

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  • Form 1023 / 1024
  • Board Members
  • Officer, Director and/or Highest Paid Employee data for


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