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National Brain Tumor Society, Inc. Organization Name provided in the GuideStar Exchange* as of 07/05/2013: National Brain Tumor Society, Inc.

Organization Name as listed in the IRS Business Master File as of 09/08/2014: NATIONAL BRAIN TUMOR SOCIETY INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  NBTS
Newton, MA
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GuideStar Summary

&1002; GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

National Brain Tumor Society, Inc. Organization Name provided in the GuideStar Exchange* as of 07/05/2013: National Brain Tumor Society, Inc.

Organization Name as listed in the IRS Business Master File as of 09/08/2014: NATIONAL BRAIN TUMOR SOCIETY INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: NBTS
Physical Address: Newton, MA 02458 1070
EIN: 04-3068130
Web URL: www.braintumor.org 
NTEE Category: G Disease, Disorders, Medical Disciplines
G48 Brain Disorders
G Disease, Disorders, Medical Disciplines
G30 Cancer
H Medical Research
H30 Cancer Research
Ruling Year: 1994 


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Mission Statement

National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels. We have a rigorous and thoughtful agenda, integrating research and public policy to bridge critical gaps. Starting with discovery science, to clinical trial design and the development of new therapies, there are many opportunities to make improvements and speed the momentum of new findings. It’s time to build on progress and transform tomorrow, today.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

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Annual Revenue & Expenses (IRS Form 990, January 2012)

Fiscal Year Starting: January 01, 2012
Fiscal Year Ending: December 31, 2012

Total Revenue $7,999,641
Total Expenses $8,387,605

Revenue & Expenses

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership

(GuideStar Exchange,
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July 2013)

Mr. N. Paul TonThat

Board Chair (GuideStar Exchange,
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July 2013)

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Board Co-Chair

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Board of Directors

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Board Leadership Practices (GuideStar Exchange,
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July 2013)
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Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in July 2013

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Programs

Program: Public Policy and Advocacy (GuideStar Exchange,
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July 2013)

Budget:
--
Category:
None
Population Served:
General Public/Unspecified
None
None

Program Description:

National Brain Tumor Society works with volunteer advocates in the brain tumor community to fight for resources and policies that will result in better treatments and better quality of life for those affected by brain tumors. Through public policy, we are fighting to: Strengthen research Advance therapies Improve health care

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Research (GuideStar Exchange,
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July 2013)

Budget:
--
Category:
None
Population Served:
None
None
None

Program Description:

National Brain Tumor Society (NBTS) drives research along the entire continuum of the drug discovery and development pipeline, with a singular focus – to find a cure for brain tumors. To support this commitment: We fund only the most imminently promising projects for brain tumors. We seek researchers dedicated to the areas of greatest need. We demand research approaches, which will deliver compelling results. With these guiding principles, our funded programs achieve thoughtful and strategic investments across the entire research spectrum, from basic science to clinical trials. By collaborating with the world's most prestigious institutions and researchers, we drive research to therapy seeking those projects with the scientific potential to reach clinical trial, as well as advance research progress for all brain tumors. With targeted programs in systems biology, pediatric brain tumors, and other emerging research areas, we are leading a community devoted to providing access to better care and new treatments, as well as expediting the discovery of a cure. Since our inception, we have awarded more than $26 million in research grants. Today, our grant structure represents a comprehensive and distinct model, which is effective for both academic and industry researchers.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

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Impact Summary from the Nonprofit

National Brain Tumor Society (NBTS) is a leader in the brain tumor community, bringing together the best of research and patient services to be a comprehensive resource for patients, families, caregivers, researchers, and medical professionals. We have a national presence, with offices on both coasts and activities and influence around the United States. We invest wisely and strategically across the research spectrum, seeking new therapeutic targets and improving existing treatments, which will ultimately lead to a cure. Our staff and advisory team encourage research that connects directly to patient care and enhances quality of life for all brain tumor patients. National Brain Tumor Society offers top-notch resources and caring support for everyone affected by brain tumors. We provide education and information to help patients, families, and caregivers make informed decisions and develop strong support systems during every stage of the journey—from diagnosis through treatment to end of care and survivorship.
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Reviews

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