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Adult Congenital Heart Association Inc

AKA ACHA

Philadelphia, PA

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Adult Congenital Heart Association Inc

Also Known As:
ACHA
Physical Address:
Philadelphia, PA 19119 3508
EIN:
04-3447959
Web URL:
www.achaheart.org
Blog URL:
www.achaheart.org/ho...
Leadership:
Amy Verstappen
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Legitimacy Information

  • This organization is registered with the IRS.
  • This organization is required to file an IRS Form 990 or 990-EZ.

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Forms 990 from IRS Additional Information IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

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A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

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Annual Revenue & Expenses Additional Information Financial information on GuideStar is either digitized from Form 990 images we receive from the IRS or submitted by the nonprofits themselves through the GuideStar Exchange (990 filers cannot override Form 990 financial data). If your organization does not file a Form 990, 990-EZ, or 990-PF and you would like to have your financial data displayed in this section, join the GuideStar Exchange today!

Fiscal Year Starting: Jan 1, 2011
Fiscal Year Ending: Dec 31, 2011
Revenue
Total Revenue $1,346,342
Expenses
Total Expenses $1,093,127

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Financial data from Forms 990 for Year 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.



GuideStar Exchange Member

This organization is a Silver-level GuideStar Exchange participant, demonstrating its commitment to transparency.

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Basic Organization Information

Adult Congenital Heart Association Inc

Also Known As:
ACHA
Physical Address:
Philadelphia, PA 19119 3508
EIN:
04-3447959
Web URL:
www.achaheart.org 
Blog URL:
www.achaheart.org/ho... 
NTEE Category:
G Disease, Disorders, Medical Disciplines 
G43 Heart and Circulatory System 
G Disease, Disorders, Medical Disciplines 
G20 Birth Defects 
E Health—General & Rehabilitative 
E01 Alliance/Advocacy Organizations 
Ruling Year:
1999 

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Mission Statement

The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families, and the medical community.

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.

Financial Data

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Revenue and Expenses

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Revenue and Expense data from Forms 990 for 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart


Balance Sheet

Balance Sheet data from Forms 990 for Year 2012, 2011, 2010, 2009, 2008 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.


Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar ExchangeThe GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more. October, 2012)

Amy Verstappen

Term:

Since Jan 2006

Profile:

President/CEO, joined the ACHA board in 2000, and was ACHA's first Fundraising Chair. She became ACHA Board President in 2002, and stepped off the ACHA Board to become ACHA's first paid President and Executive Director in January 2006. Before her personal experiences as a complex congenital heart survivor led her to patient advocacy, Ms. Verstappen worked as an educator with children and adults in a variety of settings. Ms. Verstappen received a Bachelor of Science in Sociology-Anthropology from Swarthmore College in 1983 and a Masters in Education from Lesley College in 1989. She has co-authored a number of publications on adults with congenital heart disease and has served as an ACHD consultant in venues such as the American College of Cardiology (ACC), the National Heart, Lung, and Blood Institute (NHLBI), and the International Society of Adult Congenital Cardiac Disease (ISACCD).



Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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Program: Education and Outreach

Budget:
$613,368
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Adults

Program Description:

Through the Heart to Heart Program, ACHA offers a variety of educational resources to ensure that the adult living with Congenital Heart Disease has the tools they need to protect and improve their lifelong health and well-being

Program Long-Term Success:

ACHA’s Heart to Heart Program includes the ACHA Personal Health Passport, the ACHA Travel Directory; monthly Webinars; on-line and printed articles and brochures; the ACHA Update, a monthly e-newsletter; a moderated Discussion Forum; National Conferences, and a peer support program, the Heart to Heart Ambassador program.

Program Short-Term Success:

ACHA has hosted monthly webinars on a variety of topics pertinent to  ACHD patient and/or family members since 2009.  Printed materials are developed in conjunction with webinar topics. All new members have been receiving a packet of educational materials via postal mail since 2011.

Program Success Monitored by:

Chief Executive Officer, Chief Operating Officer, Program Director, ACHA Patient and Family Program Committee

Program Success Examples:

The Heart to Heart Ambassador program developed in 2010 continues to serve both patient and family members. ACHA patient and family membership continues to grow at a rate of more than 70 new members a month. A Parent Outreach Program was recently developed.

Program: Advocacy

Budget:
$51,292
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Adults

Program Description:

The Adult Congenital Heart Association advocates for improved data collection, research, secondary prevention and treatment options to improve and prolong the lives of those living with congenital heart disease.

Program Long-Term Success:

Since 2006, ACHA has developed report language and policy that passed into law.

Program Short-Term Success:

The CDC is developing a surveillance system to address the adult population of those living with congenital heart disease.

Program Success Monitored by:

Chief Executive Officer, Chief Operating Officer

Program Success Examples:

The Congenital Heart Futures Act, the first disease specific congenital heart disease legislation was passed into law in 2010, and funded as an individual line item in 2011. The Congressional Congenital Heart Caucus was formed in 2012.

Program: Research

Budget:
$175,123
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Adults

Program Description:

ACHA’s Research Program aims to build partnerships with national CHD researchers to further expand our understanding of ACHD issues, conduct and promote research that engages patients and other stakeholders and develop strategies that unite patients with medical professionals to promote patient empowerment and lifelong cardiac health surveillance.

Program Long-Term Success:

ACHA partnered with nationally renowned researchers to execute two large scale, multicenter research projects and will build upon these successes to request more federal funding.

Program Short-Term Success:

The Research Empowerment for Adult Congenital Hearts (REACH) project generated not only one of the largest congenital heart-specific data sources in the United States, but also the only known congenital heart disease data set compiled via health information exchange rather than double-entry of data.

Program Success Monitored by:

Chief Executive Officer, Chief Operating Officer, ACHA Research Committee

Program Success Examples:

An interactive tool that offers comparative information on more than 90self-identified ACHD clinics in the US and Canada (the project started with 50 clinics). As far as we know, it is the only resource of this type in the US. In fact, U.S. News & World Report’s “Best Children's Hospitals”utilizes ACHA’s program directory when awarding hospitals points toward their rankings. The survey and program responses are updated annually.

Impact Summary from the Nonprofit

Since 1998, the Adult Congenital Heart Association has been dedicated to improving the quality of life and extending the lives of adults living with congenital heart disease and is currently the leading organization dedicated solely to congenital heart disease. For the first time, thanks to medical advances and interventions, more than half of all individuals living with congenital heart disease are believed to be adults.

Organization Data Available

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  • Form 1023 / 1024
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  • Officer, Director and/or Highest Paid Employee data for


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