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Amyotrophic Lateral Sclerosis Association

AKA  The ALS Association
Washington, DC
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GuideStar Summary

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&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit and Charting Impact Report are available
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Basic Organization Information

Amyotrophic Lateral Sclerosis Association
Also Known As: The ALS Association
Physical Address: Washington, DC 20005 
EIN: 13-3271855
Web URL: www.alsa.org 
NTEE Category: H Medical Research
H80 Specifically Named Diseases Research
G Disease, Disorders, Medical Disciplines
G80 Specifically Named Diseases
G Disease, Disorders, Medical Disciplines
G96 Neurology, Neuroscience
Year Founded: 1985 
Ruling Year: 1990 
How This Organization Is Funded: Gen'l Contributions(Major Gifts/Corp/Found/Direct Mail/Gen'l Gifts - $9,946,908
Chapter Support - $7,161,431
Bequests - $2,600,000


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Mission Statement

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

Legitimacy Information

This organization is registered with the IRS.

This organization is not required to file an annual return with the IRS.

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Annual Revenue & Expenses (GuideStar Exchange,
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May 2014)

Fiscal Year Starting: February 1, 2011
Fiscal Year Ending: January 31, 2012

Total Revenue $19,042,577
Total Expenses $15,435,227

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May 2014)

Fiscal Year Starting: February 1, 2011
Fiscal Year Ending: January 31, 2012

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar Exchange,
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May 2014)

Ms. Jane H. Gilbert

Profile:

Jane H. Gilbert is president and chief executive officer of The ALS Association, the only non-profit organization in the United States fighting the progressive, neurodegenerative disease ALS on every front. A widely respected leader who is accomplished in fundraising, operations and strategic planning, Gilbert oversees The Association's activities in research, advocacy, finance, development, community services, patient services, communications and operations. Gilbert also is responsible for the strategic direction of the organization, which directs the largest privately-funded research program into ALS. In addition, she oversees The Association's national network of chapters that deliver an array of services to people living with ALS. Prior to joining The ALS Association in 2009, Gilbert held several professional positions at the American Red Cross over nearly a decade. She was senior vice president for chapter operations for the Red Cross in Washington, D.C., from 2005 to 2008. In this role, Gilbert held responsibility for the nationwide management of 760 chapters in eight service areas and led a professional team of more than 350 full-time employees. She also served as service area executive for the Mid-Atlantic Region; chief executive officer of the Hartford, CT Chapter and deputy director of the Omaha, Neb. Chapter. Before the American Red Cross, she was the director of development for the Boys and Girls Clubs of Omaha. Gilbert holds a master's degree in business from the University of Nebraska and a bachelor's degree in communications and speech from Southern Methodist University in Texas.

Leadership Statement:

Everyone touched by amyotrophic lateral sclerosis (ALS) shares a common dream: to once and for all put an end to this cruel disease known as Lou Gehrig's Disease. For many decades, progress seemed non-existent, until 1985 when the newly-formed ALS Association joined the fight against this devastating disease. The ALS Association directs and funds the most comprehensive, global research program in the world. Working with and energizing the foremost experts in the field of ALS research, The Association partners with academia, industry, government and other ALS organizations in the spirit of collaboration. Each year, The Association sponsors and participates in national and international workshops and symposia to provide a platform for the active exchange of ideas among top scientific minds to accelerate the development of effective treatments for people fighting this disease. With a nationwide network of chapters, The Association provides vital care services and loaned equipment to people with ALS and their families and caregivers. We partner and certify more than 70 ALS treatment centers and clinics, which deliver state-of-the-art multidisciplinary care and services in a supporting atmosphere. The ALS Association also provides a strong voice to help steer government funding toward ALS research, to influence Congress to support measures to benefit the ALS community, and to encourage agencies such as the Department of Defense to provide benefits to veterans and their families, since for unknown reasons people who served in the military are twice as likely to die from ALS than the general public. The ALS Association is dedicated to achieving our vision to create a world without ALS.

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May 2014)

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May 2014)

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Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in May 2014

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Programs

Program: Research (GuideStar Exchange,
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May 2014)

Budget:
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Category:
Diseases, Disorders & Medical Disciplines
Population Served:
General Public/Unspecified
Military/Veterans

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Impact Summary from the Nonprofit Additional Information
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The ALS Association manages and funds a comprehensive global research program that engages recognized experts in the filed to focus on ALS and collaborate with other researchers to study the most important aspects of the disease with the goal of better understanding the mechanisms involved that will lead to identification of the cause, effective treatments and ultimately a cure. To care for people with ALS and support their families and caregivers, The Association has a nationwide network of chapters providing services and loaned equipment, certified care centers and clinics using a multidisciplinary approach to deliver the most effective care currently available. To provide a united voice for people and encourage programs to benefit the ALS community, The Association actively engages with Congress and governmental agencies to encourage programs to benefit the ALS community. Through our literature, website, scientific and clinical webinars, public policy conference and collaborative symposia and workshops, public service announcements and marketing campaign, The Association is the most comprehensive source for public information about ALS and the initiatives to treat people with the disease and discover solutions to bring an end to this devasting disease.
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