Title here

Text here
 

Crohn's & Colitis Foundation of America, Inc. Organization Name provided in the GuideStar Exchange* as of 03/01/2013: Crohn's & Colitis Foundation of America, Inc.

Organization Name as listed in the IRS Business Master File as of 09/08/2014: CROHNS & COLITIS FOUNDATION OF AMERICA

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  CCFA
New York, NY
GuideStar Exchange - Silver Participant What is this?
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

GuideStar Summary

&1002;                GuideStar Exchange Committed to transparency ?
This organization is a Silver-level GuideStar Exchange participant, demonstrating its commitment to transparency.

Is this your nonprofit? Update your information today!
&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
  4 stars Average rating from 19 Personal Reviews | Write a Review

Basic Organization Information

Crohn's & Colitis Foundation of America, Inc. Organization Name provided in the GuideStar Exchange* as of 03/01/2013: Crohn's & Colitis Foundation of America, Inc.

Organization Name as listed in the IRS Business Master File as of 09/08/2014: CROHNS & COLITIS FOUNDATION OF AMERICA

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: CCFA
Physical Address: New York, NY 10016 
EIN: 13-6193105
Web URL: www.ccfa.org 
NTEE Category: G Disease, Disorders, Medical Disciplines
G80 Specifically Named Diseases
G Disease, Disorders, Medical Disciplines
G70 Digestive Diseases, Disorders
H Medical Research
H99 Other Medical Research N.E.C.
Ruling Year: 1966 
How This Organization Is Funded: Hicks Co. of Queen Creek, AZ - $500
D Sterling Schaifla - $50


Sign in or create an account to see this organization's full address, contact information, and more!

Mission Statement

Crohn's disease and ulcerative colitis are collectively known as inflammatory bowel disease (IBD) because they cause severe inflammation of the intestinal tract, and have common symptoms. The cause remains unknown, and there is no medical cure. The Crohn's & Colitis Foundation of America was founded in 1967. Its mission is to find a cure for Crohn's diseasse and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

Learn more about GuideStar Charity Check, the only pre-grant due diligence tool that is 100% compliant with IRS Rev. Proc 2011-33.

GuideStar Exchange - Silver Participant What is this?
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

Annual Revenue & Expenses (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
March 2013)

Fiscal Year Starting: January 1, 2010
Fiscal Year Ending: December 31, 2010

Total Revenue --
Total Expenses --

Revenue & Expenses

Revenue and expense information has not been provided by the nonprofit. Click here if you are associated with this organization and want to provide this information.

Chart Illustration Revenue and Expense data from Forms 990 for 2012, 2011, 2010, 2009, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Back to Top »

Balance Sheet (IRS Form 990)

Chart Illustration Balance Sheet data from Forms 990 for Year 2012, 2011, 2010, 2009, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Back to Top »
GuideStar Exchange - Silver Participant What is this?
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

Sign in or create an account to view Form(s) 990 for 2012, 2011, 2010.

Chart Illustration Forms 990 for 2012, 2011, 2010, 2009, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Forms 990 Provided by the Nonprofit

Sign in or create an account to view Form(s) 990 for 2008.

Financial Statements

Chart Illustration Financial Statements for 2009, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Annual Reports

Sign in or create an account to view this information.

GuideStar Exchange - Silver Participant What is this?
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

Leadership (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
March 2013)

Mr. Richard J. Geswell

Term:

Since May 2006

Profile:

Richard "Rick" Geswell has had a distinguished career in nonprofit health agency management. Over the past 30 years, Rick has worked in all areas of resource development and field operations. Rick's experience incorporates leadership positions in the American Heart Association, March of Dimes Birth Defects Foundation and The Leukemia & Lymphoma Society. Rick's background covers all aspects of development: major gifts, special events, direct response, planned giving, e-giving and corporate development. In addition to his impressive fund raising track record, he has served as a chapter director, regional director, Regional VP and National VP for Field Operations. Most recently Rick has served for seven years as the Executive VP, Revenue and Marketing for The Leukemia & Lymphoma Society where he more than doubled revenue during his tenure from $109 million to $225 million. Rick is dedicated to the principle of strategic planning and has both participated and lead the strategic planning and business planning process. In his words "Planning is key to an organizations readiness to move into the future. It's critical that the organization wide enterprise have a focused discipline driven by a vision that establishes priorities and brings the organization into alignment." Mission driven, Rick has integrated mission into all aspects of his work. The success in major gifts at The Leukemia & Lymphoma Society is directly attributable to the cooperative model of research, patient services and fund raising developed under Rick's leadership.

Board Chair (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
March 2013)

Sign in or create an account to view this information from the GuideStar Exchange

Board Co-Chair

This information has not been provided by the nonprofit. Click here if you are associated with this organization and want to provide this information.

Board of Directors (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
March 2013)

Sign in or create an account to view this information from the GuideStar Exchange

Board Leadership Practices (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
March 2013)
?

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

Chart Illustration Officers for 2012, 2011, 2010, 2009, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

Highest Paid Employees & Their Compensation (IRS Form 990)

Chart Illustration Highest Paid Employee Data for 2012, 2011, 2010, 2009, 2009 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

People information was last updated by the nonprofit in March 2013

Click here if you are associated with this organization and want to provide updated information.

GuideStar Exchange - Silver Participant What is this?
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

Programs

Program: Research, Education, and Support Services (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
March 2013)

Budget:
$34,910,592
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
General Public/Unspecified

Program Description:

The Foundation focuses on three mission-critical programs: research, education and support services. Our research program has provided more than $125 million for IDB research, with over $10 million in 2006. We receive more than 220 IBD research grant applications a year, and fund more than 160 projects. Educational workshops and symposia within CCFA?s patient and professional services?together with our scientific journal, Inflammatory Bowel Diseases, enables medical professionals to keep pace with the rapidly growing field of IBD research. Our recently established Information Resource Center provides information, guidance and support by Masters-level health professionals five days a week. Additionally, we offers more than 300 support groups across the United States, advocate to increase federal research funding and promote postive quality of life legislation for IBD patients, and run Camp Oasis, a multi-day summer camp program for young people with Crohn?s disease and ulcerative colitis.

Program Long-Term Success:

Awarded $16 million in research grants in the field of IBD. Additionally, the Foundation initiated three new cutting-edge research projects: the CCFA Gut Microbiome Initiative, the Pediatric Network and the Clinical Alliance.

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

GuideStar Exchange - Silver Participant What is this?
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

Impact Summary from the Nonprofit

There are over 1.4 million Americans who suffer from Crohn's disease or ulcerative colitis, including 150,000 children under the age of 18.  This number is growing everyday.
GuideStar Exchange - Silver Participant What is this?
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

Reviews

GuideStar Exchange - Silver Participant What is this?
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

Contractor data is available for this organization!

Independent Contractor information for 2012, 2011, 2010, 2009 is available for this organization with a subscription to GuideStar Premium Pro.

GuideStar Premium Pro also includes:

  • Comprehensive financial data, including functional expense detail, for every digitized fiscal year in GuideStar's database
  • Ability to download up to 55 fields of data for up to 1,000 organizations at a time and up to five years’ worth of Income Statement and Balance Sheet data for individual organizations
  • Comprehensive advanced search capabilities, including criteria for functional expenses, investible assets, investment income and audit & 990T filing requirements
  • Ability to save organizations and searches for quick reference
  • People search with salary range data
  • Access to all available Forms 990

More information

Upgrade Now!

Organization Data Available

Adobe PDF Format A GuideStar Premium Report in PDF format is available for this organization

Price for this Report: $125.00

This Premium Report includes:

  • Financial Data for
  • Financial Charts for
  • Forms 990 for
  • Forms 990T for
  • Audited Financial Statement for
  • Annual Reports for
  • Letter of Determination
  • Form 1023 / 1024
  • Board Members
  • Officer, Director and/or Highest Paid Employee data for


Learn more about GuideStar Premium