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Category: Diseases and Disease Research

CARING FOR CARCINOID FOUNDATION INC

AKA CFCF

Boston, MA

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CARING FOR CARCINOID FOUNDATION INC

Also Known As:
CFCF
Physical Address:
Boston, MA 02116 
EIN:
20-1945347
Web URL:
www.caringforcarcino...
Blog URL:
www.caringforcarcino...
Leadership:
Lauren Erb, Chief Executive

Legitimacy Information

  • This organization is registered with the IRS.
  • This organization is required to file an IRS Form 990 or 990-EZ.

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Basic Organization Information

CARING FOR CARCINOID FOUNDATION INC

Also Known As:
CFCF
Physical Address:
Boston, MA 02116 
EIN:
20-1945347
Web URL:
www.caringforcarcino... 
Blog URL:
www.caringforcarcino... 
NTEE Category:
H Medical Research 
H30 Cancer Research 
G Disease, Disorders, Medical Disciplines 
G30 Cancer 
Year Founded:
2004 
Ruling Year:
2005 

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Mission Statement

The mission of the Caring for Carcinoid Foundation (CFCF) is to discover a cure for carcinoid cancer and related neuroendocrine tumors.  CFCF also works to eliminate the suffering of patients, families, and caregivers affected by neuroendocrine tumors.

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Impact Statement

To achieve rapid discovery of a cure, CFCF directs 100% of all individual donations to fund breakthrough scientific research of carcinoid and related neuroendocrine tumors.  This is made possible by the generous support of its Board of Directors and corporate sponsors.

Since its inception, CFCF has awarded over six million dollars in research grants to leading scientists at renowned research institutions. Along with its focus on research, CFCF is committed to supporting patients, families, friends and caregivers by providing them with complete and up-to-date information.


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Revenue and Expenses

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Balance Sheet

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Organizational Statistics

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Chief Executive

Lauren Erb

Term:

Since Jan 2008

Chief Executive Profile:

Lauren is the Executive Director of the Caring for Carcinoid Foundation. She joined CFCF as Vice President of Operations in 2007 with a rich and varied set of experience in investment banking, trading, and consulting. At CFCF, she has responsibilities within all facets of the organization, including development, patient support, grant management, and operations.

Board Chair

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Board of Directors

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Officers for Fiscal Year

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Highest Paid Employees & Their Compensation

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Program: Patient Education Series

Budget:
--
Category:
Education
Population Served:
Adults

Program Description:

The Caring for Carcinoid Foundation (CFCF) brings together our extensive community of patients, loved ones, medical professionals, and supporters for a weekend of education, celebration, and fellowship in the semi-annual CFCF Awareness Weekend. The weekend is focused around the Patient Education Seminar which provides an open forum for patients, caregivers, leading researchers, and clinicians in the NET community to discuss how current treatment options and combinations of them can help to maximize each patient’s quality of life.

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Program: Brochure Program

Budget:
--
Category:
Education
Population Served:
Adults

Program Description:

The Caring for Carcinoid Foundation understands the importance of increasing awareness of carcinoid and related neuroendocrine tumors (NETs) and providing support to the members of this community. In order to do this, we have created educational brochures on carcinoid, NETs, and pheochromocytoma for distribution in physicians' offices to patients, family members and friends. The CFCF Educational Brochure Program has been expanding since its inception.

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Program: Research Grant Program

Budget:
--
Category:
Medical Research
Population Served:
Adults

Program Description:

To achieve rapid discovery of a cure, the Caring for Carcinoid Foundation (CFCF) directs 100% of all individual donations to fund breakthrough scientific research of carcinoid and related NETs, with the goal of curing these diseases. This is made possible by the generous support of its Board of Directors and corporate sponsors. Not a single individual donor dollar is used to support any of CFCF’s overhead, operations or fundraising costs. Since its inception, CFCF has awarded over 4.5 million dollars in large-scale, multi-year research grants to leading scientists at renowned research institutions including Dana-Farber Cancer Institute, MD Anderson Cancer Center, Massachusetts General Hospital, Memorial Sloan-Kettering Cancer Center, Stanford University Cancer Center, and the University of Massachusetts Medical School. CFCF has established itself as the leading and most efficient not-for-profit funder of carcinoid and related NET research. CFCF has achieved this status with guidance from its Board of Directors, whose support allows CFCF to operate efficiently, and its Board of Scientific Advisors who provide a clear Research Road Map and Research Action Plan. CFCF also organizes an annual state-of-the-science symposium dedicated to carcinoid and related NET research.

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