Category: Medical Disciplines and Specialty Research

Mdds Balance Disorder Foundation, Inc.

AKA MdDS Foundation

Audubon, PA

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Also Known As:: MdDS Foundation
Physical Address:: Audubon, PA 19403
EIN:: 20-5953110
Web URL:: www.mddsfoundation.org
Leadership:: Mrs. Marilyn Josselyn, Chief Executive

GuideStar Seal	Organization does not have a GuideStar Exchange Seal
Registered with IRS	Legitimacy information is available
Financial Data	Organization has not reported Revenue & Expense data to GuideStar
Forms 990	2010, 2009, and 2008 Forms 990 filed with the IRS
Mission Objectives	Mission Statement is available
Impact Statement	Impact Statement is available

Legitimacy Information

This organization is registered with the IRS.
This organization is required to file an IRS Form 990 or 990-EZ.

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Forms 990 from IRS IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

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Basic Organization Information

Mdds Balance Disorder Foundation, Inc.

Also Known As:: MdDS Foundation
Physical Address:: Audubon, PA 19403
EIN:: 20-5953110
Web URL:: www.mddsfoundation.org
NTEE Category:: G Disease, Disorders, Medical Disciplines; G48 Brain Disorders; E Health—General & Rehabilitative; E12 Fund Raising and/or Fund Distribution; H Medical Research; H12 Fund Raising and/or Fund Distribution
Year Founded:: 2007
Ruling Year:: 2007
How This Organization Is Funded:: Anonymous Donation - Restricted for Research at UCLA - $50,000; Member Fundraisers

Mission Statement

The mission statement of the MdDS Balance Disorder Foundation is as follows:

Mission Statement: The mission of the MdDS Balance Disorder Foundation is to promote education and research on Mal de Debarquement Syndrome (MdDS), a rare and poorly understood disorder of perceived motion. We are dedicated to finding a cause and a cure for Mal de Debarquement Syndrome.

Goals:

To provide support and education for patients and families of those with this rare balance disorder
To facilitate clinical studies designed to improve the diagnosis and treatment of MdDS
To promote basic and clinical research to better understand the cause(s) of this unique syndrome
To collect, collate, and distribute demographic and other information from those with MdDS via online surveys (at present, our findings represent the world's largest available database of results about this patient population)
To update professionals who provide medical care and treatment of MdDS patients

The Board of Directors

MdDS Balance Disorder Foundation

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Impact Statement

The MdDS Balance Disorder Foundation seeks to educate professionals and the public about Mal de Debarquement Syndrome in order to impact research projects, treatment, and awareness of this rare syndrome.

Personal Reviews

FAQs on Financial Data | Digitizing IRS Form 990 Data

Financial Data

Revenue and Expenses

Balance Sheet

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Forms 990 Received from the IRS IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

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Financial Statements

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Annual Reports

Formation Documents A Letter of Determination is a letter from the IRS to a nonprofit organization stating that the organization has successfully applied for tax-exempt status. In this document the IRS indicates under which section of the Internal Revenue Code an organization is qualified.

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Organizational Statistics

Chief Executive

Mrs. Marilyn Josselyn

Term:

Since Jan 2009

Board Chair

Board of Directors

Officers for Fiscal Year

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Highest Paid Employees & Their Compensation

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Funding Needs

The MdDS Balance Disorder Foundation is seeking funds to continue and expand research. Foundation sponsored research is being carried out at UCLA and at Ohio University. Money is also needed to expand the educational efforts about Mal de Debarquement syndrome as more cases are identified world-wide.

Volunteer Needs

The MdDS Balance Disorder Foundation needs volunteers to achieve Foundation goals in support of research and to complete the mission of educating the public and medical professionals.

Request for In-Kind Contributions

News

New MdDS Research Study to be Conducted at UCLA

January 01, 2010

Yoon-Hee Cha, MD, has been awarded a three year grant by the National Institutes of Health (NIH) to conduct clinical studies on Mal de Debarquement Syndrome (MdDS). Beginning January 2010, Dr. Cha will receive funding from the National Institute on Deafness and Other Communication Disorders (NIDCD), a NIH institute that supports research on disorders of balance. The award to Dr. Cha (Functional Neuroimaging and Transcranial Magnetic Stimulation in Mal de Debarquement) represents the inaugural use of US federal research dollars to investigate the cause and potential treatment of MdDS.