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Christopher Reeve Foundation A New Jersey Nonprofit Corporation dba Christopher and Dana Foundation Organization Name provided in the GuideStar Exchange* as of 08/26/2013: Christopher Reeve Foundation A New Jersey Nonprofit Corporation dba Christopher and Dana Foundation

Organization Name as listed in the IRS Business Master File as of 06/09/2014: CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION

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AKA  Reeve Foundation
Short Hills, NJ
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GuideStar Summary

&1002;                GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Evidence of Impact Expert Reviews available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

Christopher Reeve Foundation A New Jersey Nonprofit Corporation dba Christopher and Dana Foundation Organization Name provided in the GuideStar Exchange* as of 08/26/2013: Christopher Reeve Foundation A New Jersey Nonprofit Corporation dba Christopher and Dana Foundation

Organization Name as listed in the IRS Business Master File as of 06/09/2014: CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: Reeve Foundation
Physical Address: Short Hills, NJ 07078 
EIN: 22-2939536
Web URL: www.ChristopherReeve.org 
Blog URL: www.ChristopherReeve.org/dailydose 
NTEE Category: H Medical Research
H50 Nerve, Muscle, Bone Research
H Medical Research
H12 Fund Raising and/or Fund Distribution
E Health—General & Rehabilitative
E01 Alliance/Advocacy Organizations
Ruling Year: 1989 


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Mission Statement

The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research(http://www.christopherreeve.org.org/research) , and improving the quality of life(http://www.christopherreeve.org.org/qol) for individuals living with paralysis through grants, information and advocacy.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (IRS Form 990, January 2012)

Fiscal Year Starting: January 01, 2012
Fiscal Year Ending: December 31, 2012

Total Revenue $14,102,727
Total Expenses $14,930,863

Revenue & Expenses

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar Exchange,
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August 2013)

Mr. Peter T Wilderotter

Leadership Statement:

What inspires our board and staff is following through on and achieving in our lifetimes what they so generously and courageously started. This is a civil rights movement and although the baton was passed to us in the most unfair and sad way, we will hold it brightly and with our founders' optimism until we reach the finish line.

Board Chair (GuideStar Exchange,
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August 2013)

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Board Co-Chair

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Board of Directors (GuideStar Exchange,
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August 2013)

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Board Leadership Practices (GuideStar Exchange,
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August 2013)
?

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Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in August 2013

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Programs

Program: (GuideStar Exchange,
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August 2013)

Budget:
--
Category:
Population Served:

Program Description:

Reeve Foundation Programs/Services: Research Programs The Christopher and Dana Reeve Foundation is recognized as the premier spinal cord injury research organization throughout the world. Our research strategies cover an entire spectrum beginning with recruiting new investigators to the field of SCI research, providing seed money to basic researchers that eventually develop breakthroughs supported by the National Institutes of Health and other funding sources, to efforts in taking bench research into the clinic for application to patients around the globe. Our Individual Research Grants Program, our largest, most comprehensive research initiative, focuses on the underlying biological mechanisms of spinal cord injury and repair. This program allows investigators to take smart risks with bold ideas, and turn them into catalytic breakthroughs. The mission of the Foundation's International Research Consortium on Spinal Cord Injury is to promote repair and functional recovery in the chronically injured spinal cord through collaborative research focused on optimizing the intrinsic capacity of the adult nervous system to repair and remodel itself, and elicit robust regeneration after injury. The goal of the Reeve Foundation's North American Clinical Trials Network (NACTN) is to bring promising and evidence-based therapies for SCI from the laboratory to the patient population in a way that will provide effectiveness while ensuring safety to patients undergoing treatment. The Reeve Foundation has brought together eight leading clinical research centers and a bio-statistical center to create the Clinical Trials Network. Together with a similar European clinical network, NACTN is building the foundation for a global cross-collaboration that will help speed therapeutic development and deliver useful therapies to people who need them. The Foundation's NeuroRecovery Network (NRN) was launched to provide support for the development of specialized centers that provide standardized care based on current scientific and clinical evidence for people with spinal cord injury and other selected neurological disorders. Initially, the NRN will focus on Body Weight Support Treadmill Therapy. Quality of Life Programs The Foundation funds a variety of national, regional and local initiatives that benefit both children and adults living with paralysis, especially those with spinal cord injuries. These grants are designed to substantially improve opportunities, access and day-to-day quality of life for individuals living with disabilities, primarily paralysis, and their families. Christopher & Dana Reeve Paralysis Resource Center (PRC) In May 2002, the PRC opened its doors to promote the health and well being of people living with paralysis and their families by providing comprehensive information resources and referral services. The PRC houses a national clearinghouse library of paralysis-related publications, maintains a constantly evolving self-help Web site, and publishes an extensive print manual, The Paralysis Resource Guide. Advocacy The Christopher and Dana Reeve Foundation also works vigorously work to increase federal dollars towards paralysis research. The Action Network is the Foundation's online advocacy forum that encourages individuals and supporters to become informed activists. Through the efforts of the Reeve Foundation coupled with the growing membership of the Action Network, our voices will continue to be heard to promote increased federal dollars for research and increasing the rights of people living with disabilities.

Program Long-Term Success:

In 2008, the Reeve Foundation awarded nearly $8 million worldwide to spinal cord injury research projects focused on the key areas of spinal cord injury repair, including neuroprotection, secondary damage, nerve cell regeneration and rehabilitation. The total funding includes awards made through the Individual Grants Program and International Research Consortium on Spinal Cord Injury.

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Christopher & Dana Reeve Paralysis Resource Center (PRC) (GuideStar Exchange,
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August 2013)

Budget:
--
Category:
People/Families with of People with Disabilities
Population Served:
Physically Disabled nec
Disabled, General or Disability Unspecified
Military/Veterans

Program Description:

The Paralysis Resource Center (PRC) offer resources on spinal cord injury, paralysis and mobility related disabilities. The PRC is a program of the Christopher & Dana Reeve Foundation formed through a cooperative agreement with the Centers for Disease Control and Prevention (grant/cooperative agreement number 1U59DD000338) and assisted by a 40 member Paralysis Task Force whose mission is to provide a comprehensive, national source of information for people living with paralysis and their caregivers to promote health, foster involvement in the community and improve quality of life.

Program Long-Term Success:

In order to gain a broader overall understanding of paralysis with the goal of better meeting the needs of paralyzed individuals, a Paralysis Task Force has been established, whose members include the Christopher & Dana Reeve Foundation and other related organizations.

Program Short-Term Success:

Finding quality information is a frustration faced not only by newly-paralyzed individuals and their families but also by persons who have lived with disabilities for some time. The PRC is here to provide you with helpful information and resources related to paralysis. We offer a variety of media tools and services.

Program Success Monitored by:

Program Success Examples:

Program: The Reeve Foundation Neurorecovery Network (GuideStar Exchange,
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August 2013)

Budget:
--
Category:
People/Families with of People with Disabilities
Population Served:
Physically Disabled nec
Disabled, General or Disability Unspecified
None

Program Description:

The Reeve Foundation NRN is a perfect example of basic science being translated to the clinic and changing lives. Funded by the Foundation through a cooperative agreement with the Centers for Disease Control and Prevention, it is a network of cutting-edge rehabilitation centers whose staffs have been trained in intensive activity-based treatments. In additional to financial support, the Foundation provides administrative and managerial support to the NRN.

Program Long-Term Success:

Participants in the NRN program become part of a network-wide database that is collecting comprehensive medical information about the progress of each patient. By collecting and analyzing this information, the NRN will be able to accurately measure program outcomes. Additionally, the NRN publishes data from its studies in peer-reviewed scientific journals.

Program Short-Term Success:

The Locomotor Training (LT) that NRN centers are now deploying is the result of research that the Reeve Foundation began supporting decades ago. This program, currently working with individuals who have incomplete cervical and thoracic injuries, involves suspending patients in harnesses over treadmills while therapists move their legs to simulate walking.

Program Success Monitored by:

Program Success Examples:

Program: Reeve Foundation's North American Clinical Trials Network (NACTN) (GuideStar Exchange,
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August 2013)

Budget:
--
Category:
People/Families with of People with Disabilities
Population Served:
Physically Disabled nec
Disabled, General or Disability Unspecified
None

Program Description:

The mission of the North American Clinical Trials Network for the Treatment of Spinal Cord Injury is to bring promising therapies out of the laboratory and into clinical trials, in a manner that provides incontrovertible evidence of effectiveness and safety. The North American group is collaborating with a similar network in Europe, and one just now forming in Canada, to define the natural history of spinal cord injury and develop measures for assessing treatment success. It is hoped that these collaborations will provide the foundation for a global network that will speed therapeutic development and ensure that powerful new therapies will be made available to those in need.

Program Long-Term Success:

NACTN will also work closely with the Reeve Foundation Individual Research Consortium on Spinal Cord Injury to ensure an ongoing dialogue between laboratory researchers and clinicians. Through workshops and other educational programs, Consortium scientists will have the opportunity to network with clinical specialists from across North America and Europe, facilitating educational exchanges and iterative discussions about the development of effective treatments for spinal cord injury.

Program Short-Term Success:

NACTN is a consortium of university hospital neurosurgical and neurorehabilitation teams. Said NACTN's lead investigator, neurosurgeon Robert G. Grossman, (Methodist Hospital, Houston), "There can be no progress without partnerships, without collaborations, without alliance-building. Spinal cord injury is too difficult and too expensive to go-it-alone." There are many challenges -- organizational, regulatory, and financial -- that can slow the process of conducting clinical trials. "The multicenter NACTN approach," said Grossman, "will minimize delay."

Program Success Monitored by:

Program Success Examples:

Program: International Research Consortium on Spinal Cord Injury (GuideStar Exchange,
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August 2013)

Budget:
--
Category:
People/Families with of People with Disabilities
Population Served:
Physically Disabled nec
Disabled, General or Disability Unspecified
None

Program Description:

Over the years, Consortium members have made some of the key discoveries that have led directly to potential spinal repair treatments. Four such interventions for recovery of function after spinal cord injury are currently in trials or near to trials. Discoveries by Consortium laboratories have been the foundation of each of these advances.

Program Long-Term Success:

Recovery from spinal injury requires reconstruction of spinal cord circuits. Within the cord there are specialized circuits responsible for different types of movement, for sensation and for autonomic control.

Program Short-Term Success:

The Edgerton laboratory has worked for many years on methods to promote stepping after spinal cord injury, demonstrating that the combination of drugs affecting synaptic transmission and Locomotor Training could enable stepping, even after complete transection.

Program Success Monitored by:

Program Success Examples:

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Impact Summary from the Nonprofit

The Christopher & Dana Reeve Foundation Paralysis Resource Center(http://www.paralysis.org) promotes the health and well-being of individuals living with a spinal cord injury, mobility impairment, and paralysis by providing comprehensive information, resources and referral services.

Expert Reviews and Comments

2013 Philanthropedia Top Nonprofit

This organization is a 2013 Philanthropedia top nonprofit, recommended by experts as having high impact.

These expert reviews were generated through Philanthropedia's research methodology to identify high-impact nonprofits. Learn more

Evidence of Impact

Christopher and Dana Foundation funds cutting edge research on spinal cord injury.

Funds Cutting Edge Research
They have funding programs that take research into healthcare practice. Foundation Professional

Organizational Strengths

Experts identified marketing, strong leadership, research on spinal cord injuries and collaboration as main strengths of Christopher and Dana Foundation.

Strong Research on Spinal Cord Injuries
They do good research and are focused on spinal cord injury. Its strengths are leadership and strong connections. Researcher and Faculty
The organization focuses on research and quality of life issues. The organization's reputation among disability activists and disability-led organizations has improved since they have started funding disability organizations that are not medical-model based that that support disabled people who will never be cured. This is a very important shift in attitude toward the organization. Many in the disability rights community were upset that early on, the organization seemed to be siphoning off funding dollars toward cure rather than civil rights or quality of life. I feel this organization has evolved in terms of listening to the disability community rather than preventing disability or sending the message that disabled people should only value cure. Researcher and Faculty
Excellent Leadership
The organization excels in great marketing and wide recognition. They have committed and focused leadership. Foundation Professional

Areas for Improvement

Areas of weakness were identified in building new partnerships. Experts recommend to expand Christopher and Dana Foundation’s focus also on other disabilities to unite dispersed voices in a greater action.

Expand Partnerships to Include Other Disabilities
The organization can work more closely with other nonprofits. Researcher and Faculty
They could partner more effectively with other disability-focused organizations toward larger purposes (e.g. wheelchair accessibility). Foundation Professional
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