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MANASOTA BUDS INC Organization Name provided in the GuideStar Exchange* as of 10/30/2014: MANASOTA BUDS INC

Organization Name as listed in the IRS Business Master File as of 10/17/2014: MANASOTA BUDS INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  Manasota BUDS
Lakewood Ranch, FL
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GuideStar Summary

&1002; GuideStar Exchange Committed to transparency ?
This organization is a Silver-level GuideStar Exchange participant, demonstrating its commitment to transparency.

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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2013, 2012, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

MANASOTA BUDS INC Organization Name provided in the GuideStar Exchange* as of 10/30/2014: MANASOTA BUDS INC

Organization Name as listed in the IRS Business Master File as of 10/17/2014: MANASOTA BUDS INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: Manasota BUDS
Physical Address: Lakewood Ranch, FL 34202 
EIN: 22-3871903
Web URL: www.manasotabuds.org 
NTEE Category: P Human Services
P82 Developmentally Disabled Services/Centers
G Disease, Disorders, Medical Disciplines
G25 Down's Syndrome
R Civil Rights, Social Action, Advocacy
R23 Disabled Persons' Rights
Ruling Year: 2003 


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Mission Statement

To provide families with a neutral and supportive forum for sharing and networking, and to promote understanding and acceptance of Down syndrome.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

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Annual Revenue & Expenses

(GuideStar Exchange,
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October 2014)

Fiscal Year Starting: October 01, 2013
Fiscal Year Ending: September 30, 2014

Total Revenue --
Total Expenses --

Revenue & Expenses

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership

(GuideStar Exchange,
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October 2014)

None None

Leadership Statement:

Manasota BUDS is committed to serving people with Down syndrome and their families in our community. As an all volunteer organization with minimal overhead, our funds go directly to help children and adults with Down syndrome and their families.

Board Chair (GuideStar Exchange,
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October 2014)

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Board Co-Chair

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Board of Directors (GuideStar Exchange,
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October 2014)

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Board Leadership Practices (GuideStar Exchange,
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October 2014)
?

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

People information was last updated by the nonprofit in October 2014

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Programs

Program: New Parent Kits (GuideStar Exchange,
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October 2014)

Budget:
$1,500
Category:
Education, General/Other
Population Served:
Other Named Groups
Other Named Groups
Children and Youth (0 - 19 years)

Program Description:

New and expectant parent kits are available upon request. Kits include books and inspirational essays, local contact names and phone numbers, and information about Manasota BUDS, NDSS (National Down Syndrome Society), and NDSC (National Down Syndrome Congress). All materials are compiled and approved by Manasota BUDS parents, with families in mind.New Parent Kits are generally available at the following locations:Sarasota MemorialManatee MemorialLakewood Ranch Hospital Early StepsHealthy Start, SarasotaHealthy Start, ManateeUSF Dept. of Genetics

Program Long-Term Success:

Well-informed, confident parents of children with Down syndrome.

Program Short-Term Success:

Less stress and fear of the unknown for parents of children with Down syndrome.

Program Success Monitored by:

Number of families who reach out to Manasota BUDS after receiving a kit; and feedback from families and other agencies who distribute the new parent kits.

Program Success Examples:

A letter to the editor, SRQ Magazine, September 2011:When Mason's diagnosis of Down syndrome was confirmed, Katie (Katie Powers, Manatee Memorial, NICU) delivered a gift to us in the NICU that had a big impact on our lives. It was a New Parent Kit from Manasota BUDS that was filled with many excellent resources. It contained books and DVDs for us as parents and a contact person who I reached out to immediately." Laura Kramer, Parent

Program: Small group activities (GuideStar Exchange,
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October 2014)

Budget:
$6,000
Category:
Human Services, General/Other
Population Served:
Other Named Groups
Children and Youth (0 - 19 years)
Other Named Groups

Program Description:

Small group activitiesLittle Buddies - age birth to fiveBUDS Kids - age 6 to 10Teen BUDS - age 11 to 18YADS - Young adults with Down syndrome, age 18+DADS Manasota- Affiliates of DADS National Dads Appreciating Down Syndrome Mothers support group and eventsBUDS Book Club

Program Long-Term Success:

Small group activities provide an opportunity for networking with other individuals with Down syndrome in the same age range.

Program Short-Term Success:

Individuals with Down syndrome build friendships with other individuals with Down syndrome while also providing an opportunity for their parents/caregivers to network and build friendships. Most small group activities also have a therapeutic goal. Ex. Sensory integration, social skill building, community awareness.

Program Success Monitored by:

Attendance at events. Recognized by Manatee and Sarasota School Boards as a resource for parents. Partner with several other local nonprofit organizations.

Program Success Examples:

Parents of YADS (young adults with Down syndrome) report appreciation of opportunities for social interaction. Parents of Little Buddies (age birth to five) report appreciation of friendships and networking that takes place during events.

Program: Scholarships (GuideStar Exchange,
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October 2014)

Budget:
$15,000
Category:
Diseases, Disorders & Medical Disciplines, General/Other
Population Served:
Other Named Groups
Other Named Groups
Other Named Groups

Program Description:

Scholarships to Hope Haven Down Syndrome Clinic in Jacksonville, FL; summer camp and enrichment programs; state and national conferences. Hippotherapy scholarship programs at any approved therapeutic riding program.

Program Long-Term Success:

Our long term goals for the various scholarship programs:Therapeutic horseback riding -- an important and proven method to improve physical strength for individuals with Down syndrome, most of whom experience a moderate level of low muscle tone. Therapeutic riding is also an effective social skills therapy. Long term success results in a stronger individual with Down syndrome.Education conferences at the local, state and national level -- informed parents/families feel empowered and encouraged in making decisions for their loved ones with Down syndrome to help them reach their full potential. Long term success results in confident and well-informed parents supporting one another in the community.Summer camp and enrichment programs -- our goal is to encourage individuals with Down syndrome to be active members of our community and to pursue their individual talents. Long term success results in increased inclusion for individuals with Down syndrome and higher self-esteem.

Program Short-Term Success:

Our short term goals for the various scholarship programs: Therapeutic horseback riding -- an important and proven method to improve physical strength for individuals with Down syndrome, most of whom experience a moderate level of low muscle tone. Therapeutic riding is also an effective social skills therapy. Short term success results in a stronger individual with Down syndrome. Education conferences at the local, state and national level -- informed parents/families feel empowered and encouraged in making decisions for their loved ones with Down syndrome to help them reach their full potential. Short term success results in confident and well-informed parents supporting their loved one with Down syndrome. Summer camp and enrichment programs -- our goal is to encourage individuals with Down syndrome to be active members of our community and to pursue their individual talents. Short term success results in happiness for an individual with Down syndrome, along with increased community inclusion for individuals with Down syndrome and higher self-esteem.

Program Success Monitored by:

We monitor our programs closely for attendance and frequently ask for feedback from families about what is working, and what could be improved upon.

Program Success Examples:

An example of our scholarship program success is when families return from a national conference eager to share what they learned with other families in the group at a monthly meeting, via social media, or at a BUDS social event.

Program: Yoga (GuideStar Exchange,
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October 2014)

Budget:
$1,500
Category:
Human Services, General/Other
Population Served:
Other Named Groups
Children and Youth (0 - 19 years)
Other Named Groups

Program Description:

Children with Down syndrome and their siblings join a yoga class designed for specifically for children and led by a certified instructor.

Program Long-Term Success:

The long term success of this program is that the children with Down syndrome will have a positive body awareness and an opportunity to take part in a yoga class designed especially for them.

Program Short-Term Success:

Short term success is positive experience at the class.

Program Success Monitored by:

Feedback from children, siblings and/or reports by parents.

Program Success Examples:

Improved body awareness, confidence, balance, strength and concentration.

Program: Family Activities (GuideStar Exchange,
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October 2014)

Budget:
$10,000
Category:
Diseases, Disorders & Medical Disciplines, General/Other
Population Served:
Other Named Groups
Disabled, General or Disability Unspecified

Program Description:

Group activities for families including Pathfinder Adventure Day, Year In Review Dinner Dance, 3-21 World Down Syndrome Awareness Day picnic, Big Cat Habitat, baseball games, and more!

Program Long-Term Success:

Families will feel connected to other families of individuals with Down syndrome.

Program Short-Term Success:

Families will report a positive experience in survey of event.

Program Success Monitored by:

Family survey.

Program Success Examples:

A family new to the area attended an event and was informed of services available for their child with Down syndrome in our community as a result.
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Impact Summary from the Nonprofit

Manasota BUDS provides programs and services for individuals with Down syndrome and their families from birth through the adult years. Our core programs and services include new parent kits, monthly meetings, and an annual awareness event, the Buddy Walk.
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