Feedback Link

Close 

Title here

Text here
 
 
Search GuideStar
Advanced Search
Refine Your Search
 
 
Category: Diseases and Disease Research

Epilepsy Association of Central Florida, Inc.

 

Orlando, FL

GuideStar Quick View Everything you need to know...

Epilepsy Association of Central Florida, Inc.

Physical Address:
Orlando, FL 32811 
EIN:
23-7247844
Web URL:
www.epilepsy-cf.org
Leadership:
Mr. Charles "Chuck" Carmen, Chief Executive

Legitimacy Information

  • This organization is registered with the IRS.
  • This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

Learn more about GuideStar Charity Check, the only pre-grant due diligence tool that is 100% compliant with IRS Rev. Proc 2011-33.

Basic Organization Information

Epilepsy Association of Central Florida, Inc.

Physical Address:
Orlando, FL 32811 
EIN:
23-7247844
Web URL:
www.epilepsy-cf.org 
NTEE Category:
G Disease, Disorders, Medical Disciplines 
G54 Epilepsy 
Year Founded:
1966 
Ruling Year:
1973 

Login or register to see this organization's full address, contact information, and more!

Mission Statement

The Epilepsy Association of Central Florida, Inc. (EACF) is dedicated to improving the quality of life of persons affected by epilepsy/seizure disorders.  EACF identifies, defines, and advocates the needs of persons with epilepsy, as well as planning and implementing strategies to meet those needs.

Expert Reviews

There are no Expert Reviews for this organization. Learn more about TakeAction@GuideStar.

Impact Statement

 
  1. EACF assists on average 500 persons with epilepsy a month in securing diagnosis, medical treatment, and case management so they may take/maintain their place in society as productive citizens. 
  2. In addition, thousands more each month receive our message on epilepsy education/prevention and head injury (leading cause of epilepsy) protection to reduce acquired forms of it. 
  3. EACF’s case management and medical services alone save Central Florida area hospitals over $30,000,000 a year in needless emergency room visits by giving persons with epilepsy, that have no medical coverage, a place to turn.
  4. EACF has given away over 50,000 free bicycle helmets to needy children in our effort to prevent acquired forms of epilepsy through head trauma.
  5. EACF is also one of the nation’s leaders in the prevention and education of Shaken Baby Impact Syndrome (SBIS), another severe form of head injury. Our program has grown nationwide with over 25,000 of our teaching curriculum and SBIS videos in use including schools, childcare workers, the U.S. Navy, hospitals and much more.

EACF partners with; area physicians, laboratories, diagnostic centers, hospitals and more, either free or at deep discounts, in order for us to serve our clients with those services and more, for less than $700 per year per client.  According to Florida’s Agency for Health Care Administration (AHCA) one hospital admission can be over $27,000 with an average emergency room visit costing over $2,000.

EACF keeps or returns hundreds of individuals with epilepsy in school or the workforce by giving them somewhere to come for understanding, diagnosis, medical care, seizure control, case management, comprehensive epilepsy education, and much more.

These are just a few ways EACF impacts our community.
 
Some of our goals were realized already.  EACF was donated a building saving us over $3,500 a month that would have gone to rent that will now go toward direct services.  We have also been given our own EEG machine and two ambulatory EEG units in order to have our own EEG diagnostic laboratory saving us thousands of dollars a year and allowing us to serve more people with more tests.
 
Our continued goal for 2011 is to find innovative ways to provide high quality services at lower costs and meet the increasing demand from persons needing our services while reducing our waiting lists for those wanting to get into the program.

     

 

Personal Reviews

Close 

Write a Review

Back to Top >

Revenue and Expenses

Login or register to view this information.

Back to Top >

Balance Sheet

Subscribe to GuideStar Premium to view this information, if available.

Back to Top >

Forms 990 Received from the IRS Additional Information IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

Login or register to view this information.

Back to Top >

Forms 990 Provided by the Nonprofit

Login or register to view this information.

Back to Top >

Financial Statements

Subscribe to GuideStar Premium to view this information, if available.

Back to Top >

Annual Reports

Login or register to view this information.

Back to Top >

Formation Documents Additional Information A Letter of Determination is a letter from the IRS to a nonprofit organization stating that the organization has successfully applied for tax-exempt status. In this document the IRS indicates under which section of the Internal Revenue Code an organization is qualified.

Subscribe to GuideStar Premium to view this information, if available.

Back to Top >

Organizational Statistics

Login or register to view this information.

 
Back to Top >

Chief Executive

Mr. Charles "Chuck" Carmen

Term:

Since Mar 1994

Chief Executive Profile:

Prior to joining EACF Mr. Carmen was a Franchisee of Weight Wathchers International/H.J. Heinz, Inc. for Central Florida, Northern Alabama, and parts of the British West Indies with over 200 locations, over 500 employees and with annual revenues exceeding 19,000,000 dollars.  He is also a previous CEO of Easter Seals, and Executive with IBM, owns his own consulting and speakers business, and, has served on numerous corporate and not-for-profit Board of Directors throughout Florida.  Mr. Carmen is a 30 plus year resident of Central Florida and a graduate of the University of Florida.  He has been selected by Southeast Association magazine as one of the Southeast's Most Influential Association Executives and currently serves on the Board of Directors for the Florida Society of Association Executives.

CEO/Executive Director Statement:

Our future at EACF is very bright and we remain Central Florida's only 501 (c) (3) agency in epilepsy services. In 2010 we were donated a building for our headquarters and the Orlando clinic. This donation alone will save us tens of thousand's of dollars a year in rent that we can now use for patient care and other services.

EACF has collaborated to streamline administrative functions and be more cost effective/efficient in order to serve more clients. A multi-lingual central intake center, standardized services, was implemented to serve more Floridians with epilepsy, we can reach thousands more with our new online Epilepsy U (you) featuring webcasts, education for consumers and professionals, educational games for kids and teens, with a contained social networking platform for persons affected by epilepsy and who have similar needs.

EACF has been working with the University of Central Florida Medical School Department of Neurology developing a working relationship for both clinical and educational components.  We also implemented 
consultation services and diagnostics with Orlando Health and their epileptologist.

In addition, our volunteers, community support, and diversity continue to grow.  We are proud of our past, present, and look forward to an exciting future.

 

Back to Top >

Board Chair

Login or register to view this information.

Back to Top >

Board of Directors

Login or register to view this information.

Back to Top >

Officers for Fiscal Year

Subscribe to GuideStar Premium to view this information, if available.

Back to Top >

Highest Paid Employees & Their Compensation

Subscribe to GuideStar Premium to view this information, if available.

Back to Top >

Program: Prevention and Education

Budget:
$240,000
Category:
Diseases, Disorders & Medical Disciplines, General/Other
Population Served:
General Public/Unspecified

Program Description:

Our Epilepsy Education and Prevention program conducts 100's of community presentations and offers materials for the general public, schools, medical community, children's groups, employers, high risk populations and many more. This award winning and CDC recognized program provides presentations and training about epilepsy, and shaken baby impact syndrome, to police, social service professionals, nurses, physicians, school teachers/students, etc..
 
In 2011 this program expanded to include "EpilepsyU(you)" an online social network platform for persons of all ages with epilepsy and a learning university to reach thousands more.  It will also utilize webcasting, online courses, videos, seminars, etc.
 
The annual expenditure for this progam in 2010 was 235,767 dollars.  In 2011 we expect it to exceed 240,000 dollars.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

The Epilepsy Foundation of Florida (lead agency) and the Florida Department of Health

Program Success Examples:

Program: Case Management and Medical Services

Budget:
$365,000
Category:
Diseases, Disorders & Medical Disciplines, General/Other
Population Served:
Disabled, General or Disability Unspecified

Program Description:

Individual Case Managers are assigned to our clients and family to assist them in many ways, including: Emergency services for food, housing, etc.; family support; medical and diagnostic services and more (diagnostic testing, laboratory testing, medication assistance, neurology care, epilepsy clinics, etc.)
 
In 2010 our expenses for this program were 359,898 dollars and we anticipate 2011 to exceed 365,000 dollars.  Much more of the need is met through in-kind services from our community partners within the medical community.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

The Epilepsy Foundation of Florida (lead agency) and the Florida Department of Health

Program Success Examples:

Program: EpilepsyU

Budget:
$106,000
Category:
Diseases, Disorders & Medical Disciplines, General/Other
Population Served:
General Public/Unspecified

Program Description:

Over 350,000 Floridians live with epilepsy and hundreds of thousands more are touched by it every day searching for answers to their questions, seeking information and education on our nation’s number one neurologic disorder, finding support, and looking for others just got easier. 

Developed in 2011 and maintained by the Epilepsy Association of Central Florida, www.EpilepsyU.com is a new online resource that not only offers information and epilepsy education, but is a “Community” for contacts, socialization, support, webinars, online presentations, schedule of events, and much more for families and persons affected by epilepsy. EpilepsyU was uniquely designed and can be customized to meet personal needs.   Membership in the “U” not only has Members from around Florida but from many other states and internationally including the U.K and New Zealand.

2010-2011’s development budget was $86,000. In 2011-2012 we have budgeted $106,000 to expand this one-of-a-kind, unique program and expand our reach far beyond our current education and support services. EACF is seeking sponsors, grantors, and advertisers to help support this activity.

 

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Head Injury Prevention Bicycle Helmets

Budget:
$25,000
Category:
Diseases, Disorders & Medical Disciplines, General/Other
Population Served:
Children and Youth (0 - 19 years)

Program Description:

For the past five year's EACF has provided to the community over 50,000 free bicycle helmets to economically disadvantaged children in our effort to prevent head injury and acquired forms of epilepsy.  We continue with this program at an annual budget of 25,000 dollars.  The demand far exceeds the requests of us from our community partners such as; schools, community centers, law enforcement, safety programs, childrens programs, other not-for-profit community organizations, and more.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Back to Top >

Funding Needs

Epilepsy is the nation’s number one neurological disorder affecting nearly 1 out of every 26 Americans, with over 50,000 persons with epilepsy living in the tri-county area.  According to the National Institute of Neurological Disorders and Stroke more people have epilepsy than multiple sclerosis, muscular dystropy, cerebral palsy, alzheimer's and active cancer COMBINED.  Children and the elderly make up the largest number of new diagnosis with a higher incidence among African Americans and Hispanics.  In addition there is a higher incidence of school dropout, teenage suicide and unemployment among those with epilepsy. 
Therefore the economic burden on the community of someone with epilepsy going untreated/uncontrolled is huge.

In response, EACF works hard to take a holistic approach to serving our clients needs; not only medical and support, but assisting them with finding food, housing, employment, psychological support and more. 
EACF continually seeks additional partners to help in this mission.  Physicians, diagnostic services, EEG technicians, inexpensive medication access, providers of psychological services, and laboratory services are always needed to meet the growing requests for services. Donations of time, talent, and money are always in demand.
 
We continually have a waiting list to get into our program.  There is a tremendous need to open a pediatric epilepsy clinic.  Even children with Medicaid have nowhere to go for specialized epilepsy care.  EACF would need an additional $100,000 a year to support it.  Individual donations and grants can provide:
  • $5 can provide a Shaken Baby Video
  • $7 for a bicycle helmet to a needy child to prevent head trauma,
  • $20 for a laboratory test,
  • $75 for a EEG,
  • $45 for a visit with a neurologist,
  • $300 for a MRI,
  • $500 can send a child to epilepsy camp.

 

Back to Top >

Volunteer Needs

Back to Top >

Request for In-Kind Contributions

Back to Top >

News

 
 

GuideStar is a 501(c)(3) nonprofit organization. Copyright © 2012, GuideStar USA, Inc. All rights reserved.