Basic Organization Information
LGS Foundation
- Also Known As:
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Lennox-Gastaut Syndrome Foundation
- Physical Address:
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New York, NY
10150
- EIN:
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26-2051377
- Web URL:
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www.lgsfoundation.org
- NTEE Category:
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G Disease, Disorders, Medical Disciplines
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G96 Neurology, Neuroscience
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G Disease, Disorders, Medical Disciplines
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G99 Diseases, Disorders, Medical Disciplines N.E.C.
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G Disease, Disorders, Medical Disciplines
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G54 Epilepsy
- Year Founded:
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2008
- Ruling Year:
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2008
- How This Organization Is Funded:
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Pharmaceutical - $60,000
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Corporate Donors - $30,000
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Private Donations - $25,000
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Mission Statement
The LGS Foundation is a nonprofit organization dedicated to providing information about Lennox-Gastaut syndrome, a rare and debilitating form of epilepsy, while raising funds to pursue additional research, programs, and services for LGS families.
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Impact Statement
Since our inception in 2008, thousands of individuals and their families have received support, information and other unique services from the LGS Foundation. Over a dozen new programs have been implemented which help improve quality of life, raise awareness, and fund research.
Revenue and Expenses
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Chief Executive
Ms. Christina SanInocencio
CEO/Executive Director Statement:
It is my personal hope that one day Lennox-Gastaut syndrome will become a disorder of the past. But until then, the LGS Foundation will continue to help the hundreds of thousands of individuals across the world who suffer from this terrible disorder.
Officers for Fiscal Year
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Highest Paid Employees & Their Compensation
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Program:
LGS Support Groups
- Budget:
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$25,000
- Category:
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Human Services
- Population Served:
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Disabled, General or Disability Unspecified
Program Description:
The LGS Foundation organizes numerous support groups across the United States in an effort to bring caregivers together and offer information.
Program Long-Term Success:
Support Groups across the United States are formed to provide support and information on LGS. Hundreds of LGS families have benefited from these groups by learning about new information related to LGS and meeting others affected. The growth of these groups has been four-fold over the last two years.
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Program:
LGS Mentor Program
- Budget:
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$15,000
- Category:
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Human Services
- Population Served:
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General Public/Unspecified
Program Description:
The LGS Mentor program aims to train caregivers interested in educating the public about Lennox-Gastaut syndrome to help raise awareness, eliminate stigma, and provide information.
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Program:
Art Therapy Program
- Budget:
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$15,000
- Category:
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Human Services
- Population Served:
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Disabled, General or Disability Unspecified
Program Description:
Art therapy is a mental health profession that uses the creative process of art making to improve and enhance the physical, mental and emotional well-being of individuals of all ages. It is believed to help the artist resolve problems, increase self awareness, express feelings and manage behavior. Art therapy is also believed to reduce stress, which can consequently lower seizure frequency in children and adults with epilepsy disorders.
Vincent van Gogh, Lewis Carroll, and Michelangelo were all profound artists who lived with a form of epilepsy. It is believed that their disabilities may have played a role in their creative process.
The LGS Foundation has developed an art therapy program for LGS patients by linking individuals with art therapists and/or providing art supplies and custom art therapy workbooks.
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Program:
LGS brochures and materials
- Budget:
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$10,000
- Category:
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Human Services
- Population Served:
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General Public/Unspecified
Program Description:
The LGS Foundation maintains accurate and up-to-date information on Lennox-Gastaut syndrome through brochures and other informational materials. These materials are distributed to the LGS Foundation's membership, at conferences and events, and to the general public.
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Program:
LGS National Conference
- Budget:
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$50,000
- Category:
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Diseases, Disorders & Medical Disciplines
- Population Served:
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Disabled, General or Disability Unspecified
Program Description:
The LGS Foundation will organize its first national conference on LGS in November 2011
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Funding Needs
General operating support, funding for various programs (in addition to those listed).
Request for In-Kind Contributions