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LGS Foundation

AKA Lennox-Gastaut Syndrome Foundation

New York, NY

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LGS Foundation

Also Known As:
Lennox-Gastaut Syndrome Foundation
Physical Address:
New York, NY 10150 
EIN:
26-2051377
Web URL:
www.lgsfoundation.org
Leadership:
Ms. Christina SanInocencio
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Legitimacy Information

  • This organization is registered with the IRS.
  • This organization is required to file an IRS Form 990 or 990-EZ.

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Basic Organization Information

LGS Foundation

Also Known As:
Lennox-Gastaut Syndrome Foundation
Physical Address:
New York, NY 10150 
EIN:
26-2051377
Web URL:
www.lgsfoundation.org 
NTEE Category:
G Disease, Disorders, Medical Disciplines 
G96 Neurology, Neuroscience 
G Disease, Disorders, Medical Disciplines 
G99 Diseases, Disorders, Medical Disciplines N.E.C. 
G Disease, Disorders, Medical Disciplines 
G54 Epilepsy 
Ruling Year:
2008 
How This Organization Is Funded:
Pharmaceutical - $60,000
Corporate Donors - $30,000
Private Donations - $25,000

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Mission Statement

The LGS Foundation is a nonprofit organization dedicated to providing information about Lennox-Gastaut syndrome, a rare and debilitating form of epilepsy, while raising funds for research, programs, and services for individuals living with LGS and their families.


Financial Data

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Revenue and Expenses

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Balance Sheet


Leadership (GuideStar ExchangeThe GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more. December, 2013)

Ms. Christina SanInocencio

Leadership Statement:

It is my personal hope that one day Lennox-Gastaut syndrome will become a disorder of the past. But until then, the LGS Foundation will continue to help the hundreds of thousands of individuals across the world who suffer from this terrible disorder.



Officers for Fiscal Year (IRS Form 990)

Officers information is not available for this organization.


Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.


Program: LGS Support Groups

Budget:
$25,000
Category:
Epilepsy
Population Served:
Disabled, General or Disability Unspecified
None
None

Program Description:

The LGS Foundation organizes numerous support groups across the United States each year

Program Long-Term Success:

Support Groups across the United States are formed to provide support and information on LGS. Hundreds of LGS families have benefited from these groups by learning about new information related to LGS and meeting others affected. The growth of these groups has been four-fold over the last two years.

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Program: LGS Mentor Program

Budget:
$15,000
Category:
Human Services
Population Served:
General Public/Unspecified

Program Description:

The LGS Mentor program aims to train caregivers interested in educating the public about Lennox-Gastaut syndrome to help raise awareness, eliminate stigma, and provide information.

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Program: Art Therapy Program

Budget:
$15,000
Category:
Human Services
Population Served:
Disabled, General or Disability Unspecified

Program Description:

Art therapy is a mental health profession that uses the creative process of art making to improve and enhance the physical, mental and emotional well-being of individuals of all ages. It is believed to help the artist resolve problems, increase self awareness, express feelings and manage behavior. Art therapy is also believed to reduce stress, which can consequently lower seizure frequency in children and adults with epilepsy disorders.Vincent van Gogh, Lewis Carroll, and Michelangelo were all profound artists who lived with a form of epilepsy. It is believed that their disabilities may have played a role in their creative process.The LGS Foundation has developed an art therapy program for LGS patients by linking individuals with art therapists and/or providing art supplies and custom art therapy workbooks.

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Program: LGS brochures and materials

Budget:
$10,000
Category:
Human Services
Population Served:
General Public/Unspecified

Program Description:

The LGS Foundation maintains accurate and up-to-date information on Lennox-Gastaut syndrome through brochures and other informational materials. These materials are distributed to the LGS Foundation's membership, at conferences and events, and to the general public.

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Program: LGS National Conference

Budget:
$75,000
Category:
Epilepsy
Population Served:
Disabled, General or Disability Unspecified
None
None

Program Description:

The LGS Foundation holds an international conference every 18 months in the United States, bringing together hundreds of LGS families and epilepsy professionals to better understand the cause, treatments, and future directions of Lennox Gastaut Syndrome.

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Program: Research Program

Budget:
$50,000
Category:
Epilepsy
Population Served:
None
None
None

Program Description:

The LGS Foundation awards seed grants, targeted grants and travel grants to young investigators who are interested in studying Lennox Gastaut Syndrome.

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Impact Summary from the Nonprofit

Since our inception in 2008, thousands of individuals and their families have received support, information and other unique services from the LGS Foundation. Over a dozen new programs have been implemented which help improve quality of life, raise awareness, and fund research.

Organization Data Available

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