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Category: General Human Services

Diabetes Hands Foundation

AKA DHF

Berkeley, CA

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Diabetes Hands Foundation

Also Known As:
DHF
Physical Address:
Berkeley, CA 94709 
EIN:
26-2274537
Web URL:
diabeteshandsfoundat...
Blog URL:
www.diabeteshandsfou...
Leadership:
Manny Hernandez, Chief Executive

Legitimacy Information

  • This organization is registered with the IRS.
  • This organization is required to file an IRS Form 990 or 990-EZ.

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Fiscal Year Starting: May 1, 2010
Fiscal Year Ending: Apr 30, 2011
Revenue
Total Revenue $576,363
Expenses
Total Expenses $452,353

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  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
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Basic Organization Information

Diabetes Hands Foundation

Also Known As:
DHF
Physical Address:
Berkeley, CA 94709 
EIN:
26-2274537
Web URL:
diabeteshandsfoundat... 
Blog URL:
www.diabeteshandsfou... 
NTEE Category:
E Health—General & Rehabilitative 
E01 Alliance/Advocacy Organizations 
W Public, Society Benefit 
W99 Public, Society Benefit - Multipurpose and Other N.E.C. 
None 
Year Founded:
2008 
Ruling Year:
2009 
How This Organization Is Funded:
Sponsorship income - $240,635
Donations and grants - $288,274
Earned Income (sales, advertising, dues, etc.) - $47,303

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Mission Statement

DHF connects people touched by diabetes and raises diabetes awareness.

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Impact Statement

Through its  online communities (TuDiabetes.org in English and EsTuDiabetes.orgin Spanish) and its other social media channels, DHF offers support and information to more than 200,000 people every month.

Since 2008, DHF has developed pioneering diabetes awareness programs such as Word In Your Hand™, Drawing Diabetes, Making Sense of Diabetes and The Big Blue Test.

In May 2010, with funding from the Centers for Disease Control and Prevention, Diabetes Hands Foundation partnered with Children's Hospital Boston to develop TuAnalyze, a diabetes data mapping tool. Members of TuDiabetes submit their Hemoglobin A1C data, which is then displayed in a community map on the TuDiabetes website. States and provinces light up on the map according to the aggregate A1C data once they reach a target number of participants. The project aims to build on information-sharing that already exists, using it to learn more about people's experiences and public health issues than traditional research might allow.

In June 2010, we launched HealthSeeker, a health Facebook game developed in collaboration with Joslin Diabetes Center.

In July 2010, we published No-Sugar Added Poetry, a book of diabetes poetry with a foreword by Dr. Bill Polonsky.

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Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.


Revenue and Expenses

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Balance Sheet

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Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.


Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Organizational Statistics

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Chief Executive

Manny Hernandez

Term:

Since Apr 2008

Chief Executive Profile:


Board Chair

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Board of Directors

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Officers for Fiscal Year

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Highest Paid Employees & Their Compensation

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Program: TuDiabetes and EsTuDiabetes

Budget:
--
Category:
Population Served:
General Public/Unspecified

Program Description:

TuDiabetes.org and its Spanish counterpart, EsTuDiabetes.org, are social networking sites for people touched by diabetes established in 2007. They provide general information about diabetes as well as forums and blogs for members to discuss diabetes-related topics.
 
In May 2010, with funding from the Centers for Disease Control and Prevention, Diabetes Hands Foundation partnered with Children's Hospital Boston to develop TuAnalyze, a diabetes data mapping tool. Members of TuDiabetes submit their Hemoglobin A1C data, which is then displayed in a community map on the TuDiabetes website. States and provinces light up on the map according to the aggregate A1C data once they reach a target number of participants. Data entered by participants is stored in the Indivo open-source Personally Controlled Health Record ("PCHR") system. The project aims to build on information-sharing that already exists, using it to learn more about people's experiences and public health issues than traditional research might allow. 

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Program Success Examples:

Program: HealthSeeker

Budget:
--
Category:
Population Served:
General Public/Unspecified

Program Description:

HealthSeeker is a Facebook game that aims to help people live healthy lifestyles. The game was developed by the Diabetes Hands Foundation in collaboration with the Joslin Diabetes Center. Players select missions such as stress-reducing or exercise-inducing activities to complete within a given period of time to help create a healthier lifestyle.

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Program: Word in Your Hand

Budget:
--
Category:
Population Served:
General Public/Unspecified

Program Description:

The Word in Your Hand™ project invites TuDiabetes members to share photos showing a word in their hands describing how they feel about diabetes. The project aims to empower people touched by diabetes to express themselves and let the world know what it is like to have diabetes. DHF licensed the Word in Your Hand™ trademark to OneTouch for use as part of its Global Diabetes Handprint campaign.

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Program: Big Blue Test

Budget:
--
Category:
Population Served:
General Public/Unspecified

Program Description:

The Big Blue Test takes place on November 14, which is World Diabeties Day. At 14:00 hours (local time), people with diabetes test their blood sugar levels, exercise for 14 minutes, test again, and share their results on BigBlueTest.org or on Twitter. The event is called The Big Blue Test because blue is the color associated with World Diabetes Day. The event aims to both unite people with diabetes and raise awareness about diabetes.

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Program: No-Sugar Added Poetry

Budget:
--
Category:
Population Served:
General Public/Unspecified

Program Description:

No-Sugar Added Poetry is a collection of diabetes poems written by members of TuDiabetes.org with a foreword by William H. Polonsky, founder of the Behavioral Diabetes Institute and compiled by the Diabetes Hands Foundation.

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Funding Needs


Volunteer Needs


Request for In-Kind Contributions


News

TuDiabetes featured on the Indianapolis Star
June 18, 2009
Rick Phillips isn't on Facebook. He doesn't tweet either.

But nearly every night, the 51-year-old former school administrator logs on to a social networking site where he truly feels at home. It's a Web site for diabetics like himself.

"I really got hooked on it quickly," said Phillips, Noblesville, who joined TuDiabetes .com in September. "It's a good way to be able to share what I've learned over 34 years and to connect with people all over the country who share the same disease and have similar interests."

Phillips, who was diagnosed with type 1 diabetes 34 years ago, says he's also learning from other diabetics. "I'm operating my (insulin) pump better as a result. I'm more aware of new technology and of the ways people deal with their disease on a day-to-day basis, psychologically as well as physically."

The social-networking revolution is making it easier than ever for consumers to find timely, personalized health information online. Those living with cancer, wrestling with bipolar disorder medications, coping with chronic conditions like hepatitis C, or trying to lose weight can find "communities," or support groups, online. They get advice and information from medical experts and patients about nutrition, exercise, medications, treatments, clinical trials and the latest medical theories.

"We're only scratching the surface," said Manny Hernandez, president of the Diabetes Hands Foundation, in Berkeley, Calif., which developed www.TuDiabetes.com and its Spanish counterpart, www.EsTuDiabetes.com.
July 21, 2010
By Tracey Neithercott

Playing a game on Facebook used to mean raising sheep and hens or shooting down enough thugs to rule the mafia in New York City. Fun, but not quite useful. Now, thanks to a collaboration between the Diabetes Hands Foundation and Joslin Diabetes Clinic, there's a more constructive way to spend your time: HealthSeeker.

The game sends health-minded players on daily missions aimed at eating well, managing diabetes, losing or maintaining weight, and reducing the risk for heart disease. Completing the tasks earns players points and may catapult them to a higher, more challenging level.

Here's how it might work: You log on to Facebook, enter HealthSeeker, and click on a new mission—say, Snack Attack. You'll pick three actions—in this case, each revolves around keeping snacking in check. During the day, your goal will be to complete the missions by eating edamame (green soybeans) instead of chips or grabbing an apple between meals.

"We wanted people to play the game but not be stuck in front of the computer," says Manny Hernandez, president of the Diabetes Hands Foundation, a nonprofit organization that connects people with diabetes and raises awareness about the disease, and a developer HealthSeeker, which was financed by Boehringer Ingelheim Pharmaceuticals. "We wanted them to go out and do [the missions] and come back to the game."

When you log on to HealthSeeker again, you'll record all of the actions you've taken. Completing actions earns you points, and you can score even more by sharing your results with Facebook friends or tweeting them on Twitter. This sharing is a benefit of playing the game. A friend may even send you kudos—the game's version of a high five—for a job well done.

"If you have diabetes, you're charged with doing a lot. Having diabetes can be isolating," says Amy Campbell, MS, RD, CDE, manager of clinical education programs at Joslin Diabetes Center, who helped create content for the game. "[With the game,] you can get support 24-7. You get support from your friends. You can get recognition for doing a good job."

Kudos and badges (virtual medals for completing missions) are particularly motivating if you have a hard time with some aspect of diabetes management. "Those are ways for your friends to congratulate you," says Hernandez. "If you struggle with carb counting, if your friends see that you completed a mission on that, they can send a kudos."

According to Campbell, HealthSeeker provides necessary lifestyle coaching between doctor's visits. "It's this constant support, particularly from the Facebook community, in between when you see your provider," she says. "People need ongoing support with diabetes. Seeing a diabetes educator once or twice a year is nice, but it's not enough."

The support isn't just for people with diabetes. You can invite Facebook friends who don't have diabetes to play the game and cheer you on. "It becomes more fun if you have friends from your network playing it than if you're playing it on your own," says Hernandez.

The diabetes-specific challenges—monitoring blood glucose levels or connecting with other people who have diabetes—are optional, and the rest are applicable to anyone focused on living a healthier life.

"The lifestyle things you do aren't really diabetes-specific," says Richard Jackson, MD, a leading endocrinologist at Joslin who worked on creating the game. "If you're getting to the age where you're worrying about your health, this game fits for that, too."

Above all, the aim of HealthSeeker is to foster a healthy lifestyle for players through nutrition, exercise, stress reduction, diabetes management, and general wellness. "This game requires that you not just play the game in Facebook but that you live your life," says Campbell. "It's focused on making small changes."

To play the game, click here.

Children's project uses social network to map diabetes

May 19, 2010

Posted by Elizabeth Cooney   

A team from Children's Hospital Boston is partnering with a social network devoted to diabetes to explore how sharing personal data can help people manage their disease and give researchers a better sense of how it affects a population in a particular region.TuAnalyzeis the name of a feature rolling out today onTuDiabetes,a Facebook-like site where people talk about living with diabetes.

The "Tu" means "your" in Spanish and the English-language site has a companion site in Spanish called EsTuDiabetes. TuDiabetes is aimed at all people touched by the disease while recognizing that Hispanic Americans have a higher rate of diabetes than non-Hispanics, said Manny Hernandez, president of the Diabetes Hands Foundation, which launched the site.

Today marks the start of a "data donation drive." People who join the site are asked to post their hemoglobin A1C values, a measure of how well their blood glucose is controlled. In type 1 diabetes, people have lost the ability to make insulin, which regulates blood sugar. In type 2 their bodies no longer make use of insulin properly. HA1C levels are checked by doctors every three or four months, offering a way to track current health among members who choose to participate.


TuDiabetes has more than 14,000 registered members who can choose to post their number in three ways. They can enter their HA1C number and see it plotted on a graph that only they can see, they can contribute that data anonymously to the site, which will add it to maps of their state and region, or they can also post it publicly on their profile for other site members to see.

The project, funded by a grant from the US Centers for Disease Control and Prevention, hopes to build on information sharing that already exists and use it to learn more about people's experiences and population-level issues than traditional research might allow, Dr. Kenneth Mandl of Children's said in an interview.

"The project is about consumer engagement," he said. "It leverages these emerging technologies around online social networking and specifically looks at the communities that are arising organically."

The Children's researchers chose TuDiabetes for its privacy protection, the non-profit status of the foundation that runs it, and its lack of commercial involvement, Mandl said. Sharing data is similar to the mission of PatientsLikeMe, a site founded by MIT engineers who had personal experience with ALS (Lou Gehrig's disease) and wanted to spur research while sharing disease management strategies. The diseases on that site tend to be rarer than diabetes and the site has relationships with pharmaceutical companies, Hernandez said, both of which make it different from TuDiabetes.