American Dystonia Society, Inc.

Graduated Magna cum Laude, Princeton University, 1982 BSE Mechanical and Aerospace Engineering. Master of Science Engineering, Princeton University, 1986 Mechanical and Aerospace Engineering. Mechanical Systems Manager responsible for $500M Interplanetary Spacecraft and 5 Systems Engineers and 25 Design engineers. President and Owner of IT Consulting Company from 1996 to 2008 when dystonia forced cessation of work activities.

Our call for volunteers has had tremendous response. When we got into full swing in Spring 2010, we have become a major presence in the Dystonia research and advocacy world. We have started national teleconference based support groups that enable people with dystonia (most of whom are unable to travel alone) to get peer support that is relevant to life with Dystonia.  Our philosophy is both innovative and compassionate. We will vest our volunteers with the autonomy to work with minimal direction from the ADS as long as they follow our mission statement. Our intent is not to solicit donations from fellow Dystonians, although voluntary unsolicited donations will be accepted. Rather, we ask our fellow Dystonians to share their passion and compassion by volunteering their time and energy to help others. Furthermore, our pledge is 100 percent of every dollar collected from external public and private donations and grants will go toward research, awareness, and patient support.  We will not waver in that guarantee as we keep our overhead low and covered by our founder.