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CORNEA RESEARCH FOUNDATION OF AMERICA INC Organization Name provided in the GuideStar Exchange* as of 01/13/2015: CORNEA RESEARCH FOUNDATION OF AMERICA INC

Organization Name as listed in the IRS Business Master File as of 12/08/2014: CORNEA RESEARCH FOUNDATION OF AMERICA INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  Cornea Research Foundation of America
Indianapolis, IN
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GuideStar Summary

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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2013, 2012, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit and Charting Impact Report are available
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Basic Organization Information

CORNEA RESEARCH FOUNDATION OF AMERICA INC Organization Name provided in the GuideStar Exchange* as of 01/13/2015: CORNEA RESEARCH FOUNDATION OF AMERICA INC

Organization Name as listed in the IRS Business Master File as of 12/08/2014: CORNEA RESEARCH FOUNDATION OF AMERICA INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: Cornea Research Foundation of America
Physical Address: Indianapolis, IN 46260 
EIN: 31-1243592
Web URL: www.cornea.org 
Video URL(s): CRFA PSA
Fuchs' dystrophy patient story
Fuchs' dystrophy patient story - DMEK cornea transplant
NTEE Category: H Medical Research
H41 Eye
U Science and Technology Research Institutes
U05 Research Institutes and/or Public Policy Analysis
P Human Services
P05 Research Institutes and/or Public Policy Analysis
Year Founded: 1988 
Ruling Year: 1993 


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Mission Statement

We are a globally focused not for profit clinical research and educational organization located in Indianapolis, Indiana. Our mission is "to give each person the opportunity for the best possible vision by innovating solutions for vision impairment and sharing results through relevant educational channels to reach a global audience. We expand possibilities and enrich lives by optimizing sight."

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses

(GuideStar Exchange,
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January 2015)

Fiscal Year Starting: July 1, 2013
Fiscal Year Ending: June 30, 2014

Total Revenue $717,386
Total Expenses $638,584

Revenue & Expenses

(GuideStar Exchange,
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January 2015)

Fiscal Year Starting: July 1, 2013
Fiscal Year Ending: June 30, 2014

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

Financial Statements

Audited Financial Statement is not available for this organization.

Annual Reports

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Leadership

(GuideStar Exchange,
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January 2015)

Dr. Marianne Price, PhD

Profile:

Dr. Marianne Price joined the Cornea Research Foundation of America in 2002 as Executive Director. She directs the research and education programs of the Foundation, overseeing finances and supervising the daily activities of four professional staff members. Dr. Price and her spouse, Francis W. Price, Jr. M.D., jointly publish an average of seven articles annually in peer-reviewed clinical research journals and conduct a minimum of 12 research studies annually. A respected scientist, Dr. Price was previously employed as a project manager and senior project engineer for Union Carbide. She is a sought after speaker and published author, a member of the American Academy of Ophthalmology, the Association for Research in Vision and Ophthalmology, the American Society of Cataract & Refractive Surgery, and Ophthalmic Women Leaders. She also serves on the Board of Directors of Prevent Blindness Indiana and on the Research Committee of the Eye Bank Association of America. Marianne Price, Ph.D. holds a Bachelor’s degree in Engineering Science from Notre Dame, and both an MBA in Finance and a doctorate in Medical and Molecular Genetics from Indiana University.

Board Chair (GuideStar Exchange,
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January 2015)

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Board Co-Chair

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Board of Directors (GuideStar Exchange,
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January 2015)

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Board Leadership Practices (GuideStar Exchange,
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January 2015)
?

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Yes
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Yes
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Yes
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Yes
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Yes

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

People information was last updated by the nonprofit in January 2015

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Programs

Program: Cornea Transplant Database (GuideStar Exchange,
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January 2015)

Budget:
$30,000
Category:
Eye Diseases, Blindness & Vision Impairments Research
Population Served:
Aging/Elderly/Senior Citizens
Adults
General Public/Unspecified

Program Description:

Since 1988, we have been tracking long-term cornea transplant patient outcomes. We now have records on more than 8,000 patients in what is known as the Cornea Transplant Database, the largest such database in the Americas. Picture1.jpgThis database has assisted in making many discoveries by allowing us to see trends—what’s working well and what’s not working so well, so we can continually refine surgical techniques and patient care resulting in better outcomes. We use this database to assist us in identifying areas in which more research is needed. Here are just a few examples illustrating how this database has proven invaluable: Dr. Price was an early pioneer of small incision transplants (DSEK and DMEK). Our database helped prove that these newer methods are safer and provide much faster visual recovery than full thickness transplants, which had been the previous standard of care. We showed that cataract surgery can be combined safely with DSEK or DMEK thereby allowing patients to have cataract and corneal problems treated at the same time. A single surgery is safer, easier for people, and more cost effective than separate surgeries. Many of our patients have conditions that cause both corneas to go bad. We’ve demonstrated that we can safely treat the second eye with DMEK just one week after the first so that people can get back to work and resume daily activities sooner. Transplant rejection has long been a leading reason for transplant failure. Our data has proven that DMEK has a far lower risk of being rejected by the recipient than earlier transplant techniques. Taking advantage of the low risk of rejection with DMEK (<1% risk), we’ve shown that we can safely reduce the strength and dosing frequency of anti-rejection medication and reduce medication-associated side effects. Our proven results are instrumental in convincing transplant surgeons to adopt these newer techniques and improve outcomes for patients worldwide. - See more at: www.cornea.org

Program Long-Term Success:

We now have more than 8,000 records, the largest such database in the Western Hemisphere, if not the world.

Program Short-Term Success:

We analyze results of the data we collect to help identify new areas of improvement, such as reducing the length of time cornea transplant patients stay on the corticosteroid eye drops used to prevent a rejection.

Program Success Monitored by:

Our governing Board of Directors.

Program Success Examples:

We have used the data collected to identify a number of improvements for those needing cornea transplants. We continue to grow the database and collect long term data to evaluate on a longitudinal basis.
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Impact Summary from the Nonprofit Additional Information
A Charting Impact Report consists of an organization’s responses to the five questions. Helping validate this self-reported data are three reviews. Once an organization has used the online interface to complete its report, its responses will produce a document with a unique URL that will be shared on this website, on your GuideStar profile, on the reports of charities participating in BBB Wise Giving Alliance evaluations, and – in the future – with other websites and information sources about nonprofits. We encourage organizations to use this URL to share their report on their own website and through their own media channels. Participants will receive guidance about promoting their Charting Impact Report, along with other benefits, once they publish their report.

Here are just a few of the many ways in which CRFA has made an impact: Successfully helped to pioneer a new cornea transplant method called endothelial keratoplasty (EK, DSEK, and DMEK). These methods dramatically improve outcomes for patients in terms of surgical healing time, optimizing visual recovery and reducing transplant rejection rates from 20 percent to less than 1 percent. Provide education to eye care professionals through the training of more than 600 ophthalmic surgeons from over 30 countries on cutting-edge techniques to treat conditions such as Fuchs’ dystrophy, keratoconus, cataracts, and glaucoma. Provided thousands of hours of continuing education to optometrists throughout the Midwest on how to identify and treat conditions and when to refer patients to specialists. Published more than 150 peer-reviewed articles and book chapters sharing key study results with eye surgeons around the globe. Played a key role in a number of research studies that have resulted in the approval and usage of modern medications and devices for the treatment of cataracts, glaucoma, refractive errors (LASIK vision correction) and much more!
For more in-depth information about this organization's impact, view their Charting Impact Report.
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