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Us TOO International, Inc. Organization Name provided in the GuideStar Exchange* as of 04/23/2014: Us TOO International, Inc.

Organization Name as listed in the IRS Business Master File as of 09/08/2014: US TOO INTERNATIONAL INC

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AKA  Us TOO International Prostate Cancer Education & Support Network
Des Plaines, IL
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GuideStar Summary

&1002; GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is available
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Basic Organization Information

Us TOO International, Inc. Organization Name provided in the GuideStar Exchange* as of 04/23/2014: Us TOO International, Inc.

Organization Name as listed in the IRS Business Master File as of 09/08/2014: US TOO INTERNATIONAL INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: Us TOO International Prostate Cancer Education & Support Network
Physical Address: Des Plaines, IL 60018 4106
EIN: 36-3723349
Web URL: www.ustoo.org 
NTEE Category: G Disease, Disorders, Medical Disciplines
G30 Cancer
G Disease, Disorders, Medical Disciplines
G01 Alliance/Advocacy Organizations
G Disease, Disorders, Medical Disciplines
G19 Nonmonetary Support N.E.C.
Ruling Year: 1991 


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Mission Statement

The mission of Us TOO International is to be the leading prostate cancer organization helping men and their families make informed decisions about prostate cancer detection and treatment through support, education and advocacy.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (IRS Form 990, January 2012)

Fiscal Year Starting: January 01, 2012
Fiscal Year Ending: December 31, 2012

Total Revenue $955,389
Total Expenses $937,094

Revenue & Expenses

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership

(GuideStar Exchange,
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April 2014)

Mr Thomas Kirk

Term:

Since Nov 2004

Profile:

Thomas N. Kirk, President & CEO, brings over 30 years of experience as a family service leader to his new role and a personal interest in Us TOO because his father-in-law lost his battle with prostate cancer many years ago. He brings expertise in the care issues of an aging population and chronic diseases. Mr. Kirk worked for more than 13 years for the National Alzheimer's Association where he served as the Vice President of Patient, Family and Education Services, the Association?s first Director of Patient and Family Services and as a National Field Representative working in the six-state Midwestern Region. He played an active role in the growth and development of the Alzheimers Association chapter network, led efforts in national demonstration programs, developed national Care Guidelines and led the development of education and training materials for professional and family caregivers. He has also been an active advocate and spokesperson and served on a variety of grant review and advisory committees for State and Federal government agencies, professional membership organizations and nonprofit Boards throughout his career. Mr. Kirk holds a Master of Science degree from the School of Social Work at the University of Wisconsin-Madison where he focused on Planning and Administration. Tom and his wife Margaret, who serves as the CEO for Y-ME National Breast Cancer Organization, share a blended family with three grown children and four grandchildren.

Board Chair (GuideStar Exchange,
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April 2014)

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Board Co-Chair

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Board of Directors (GuideStar Exchange,
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April 2014)

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Board Leadership Practices (GuideStar Exchange,
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April 2014)
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Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

People information was last updated by the nonprofit in April 2014

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Programs

Program: Education, Awareness and Advocacy programs & services (GuideStar Exchange,
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April 2014)

Budget:
--
Category:
Health Care
Population Served:
Males, all ages or age unspecified
Ethnic/Racial Minorities -- General
Females, all ages or age unspecified

Program Description:

In addition to the 325 chapter support groups operating locally within the United States and in countries throughout the world, Us TOOs main prostate cancer patient programming and support services include: monthly newsletter, the HotSheet; monthly e-newsletter, Prostate Cancer NEWS You Can Use; bi-monthly newsletter, Chapter NEWS; toll free Patient HelpLine, 1-800-80-Us TOO (1-800-808-7866), Mon-Fri, 9am-5pm Central; 14 online topic-specific discussion communities; comprehensive, educational web site that receives more than 5 million hits a year (www.ustoo.org), is one of the most visited prostate cancer informational Web sites available; free Resource Kit for Making Prostate Cancer Decisions for newly diagnosed or recurrent disease patients; education and support program for companions and families of prostate cancer patients entitled Circles of Love, including a Care Kit and Facilitators Discussion Guide; Us TOO University, a regional patient education symposium and volunteer training workshop program; Minority and Underserved Populations Outreach Program that, in four years, has trained more than 577 community facilitators in 19 states and the District of Columbia, and reached more than 129,865 men or their family members with a message of awareness and encouragement to take personal responsibility for their prostate health; John Moenck Memorial Resource Center, which includes books, periodicals, audio/video tapes, and other educational materials available free to chapter leaders, patients and spouses alike; Sneakers@Work Day, a workplace awareness and giving program held in September during Prostate Cancer Awareness Month; Pints for Prostates awareness events – reaching men through the universal language of beer; and a variety of educational publications and materials including DVDs, tapes, CD-ROMs, resource kits, books, pamphlets and prostate cancer blue ribbon awareness items. Special Patient Education Resources include: Pathways for New Prostate Cancer Patients; What Now?: Hope and Options When Experiencing a Rising PSA or When Prostate Cancer Is Not Responding to Treatment; What You Need to Know for Better Bone Health; The Prostate Cancer Playbook: Strategies for Building Teams, Optimizing Treatment and Living Well; and Spanish language brochures and DVDs.

Program Long-Term Success:

Developed and distributed new educational materials for prostate cancer survivors, their families, and our network of local support group chapters throughout the U.S. and around the globe, including: (1). Pathways for New Prostate Cancer Patients, brochure listing options for the newly diagnosed (2). Resource Kit for Making Prostate Cancer Decisions, free kit of brochures & materials for the newly diagnosed (3). The Prostate Cancer Playbook: For Prostate Cancer Recurrence, Rising PSA, and Advanced Disease (4). Good News: Prostate Cancer Recommended Resources, 2-page flyer

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

“I was in a state of shock and disbelief when my PSA rose to 8.6 after I had my prostate removed. A meeting of Us TOO put me back on earth when I learned that it happens to many men and is expected. The group then offered a variety of options and I felt alive again.”Les “Us TOO saved my life. I was diagnosed with prostate cancer and became confused and depressed. After I learned that I was not alone, and that there were more than 175 other men who share my concern and about 40 that care for me and my feelings at the meeting, I am stronger and have hope. ”Marvin “I was fortunate enough to find out about Us TOO International a month before I had a radical prostatectomy.  Through the members and special speakers, I was able to further confirm my choice for treatment, and get the support that we needed to help us through this difficult time.  The group has been a source of camaraderie, comfort, education and resources for my wife and I over the past 2 years.  Through my participation in Us TOO, I have also become actively involved in community projects that focus on early detection, and quality of life issues for other prostate cancer survivors and their families, especially in the African American community.”Jerry “My father passed away on July 15th after 13 years of battling prostate cancer.  I thank you and your newsletter for bring me some valuable information that I am sure helped alleviate my father's condition.  My consolation is that I stood with him and even struggled with doctors to get a better treatment option until the end. Today, I know more about the prostate than I do about my own female body system and that is thanks in part for your newsletter and all the research I took upon myself to do.  Thank you and may God Bless you and Us TOO!”Belinda
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Impact Summary from the Nonprofit

Us TOO International Prostate Cancer Education & Support Network (www.ustoo.org(http://www.ustoo.org) ) is a source of peer-to-peer support and free materials for men and their families to make informed choices on prostate cancer detection, treatment options and coping with ongoing survivorshitoo,” the grassroots 501(c)(3) non-profit is headquartered in Illinois and works with volunteers in 325 affiliated support group chapters worldwide. A member patient advocacy organization of the National Health Council, Us TOO International has achieved compliance with the Council's Standards of Excellence, maintaining the highest standards of organizational effectiveness and public stewardshi000 men in the United States this year, it is not always recognized as a serious health issue.  According to estimates based on new National Cancer Institute data, the number of new prostate cancer cases diagnosed exceeds the number of new breast cancer cases predicted.  Just as pink is to breast cancer, blue is to prostate cancer.  Us TOO wants to increase prostate cancer awareness and for people to see more blue, or SEA Blue, with SEA standing for support, educate and advocate – the primary components of Us TOO’s mission.
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