Program:
Marrow for Kids Marrow Donor Recruitment Program
- Budget:
-
$300,000
- Category:
-
Human Services
- Population Served:
-
Children and Youth (infants - 19 years.)
-
Ethnic/Racial Minorities -- General
-
Poor/Economically Disadvantaged, Indigent, General
Program Description:
Kids Beating Cancer's Marrow for Kids Program and marrow donor recruitment efforts in the community focus on increasing the diversity of tissue types available so all patients in need can have equal access to a cure, while recruiting people onto the Be The Match Marrow Donor Registry, who are willing to help any patient in need. Kids Beating Cancer is the contracted Marrow Donor Recruitment Center for Florida, providing community outreach & education on marrow and blood stem cell donation and transplantation by facilitating marrow donor recruitment drives Statewide, and funding the DNA lab testing necessary to identify un-related donors, a cost never covered by Insurance.
Program Long-Term Success:
Program Short-Term Success:
Program Success Monitored by:
Program Success Examples:
Program:
Pediatric Marrow Transplant Program
- Budget:
-
$400,000
- Category:
-
Health Care
- Population Served:
-
Children and Youth (infants - 19 years.)
-
Ethnic/Racial Minorities -- General
-
Poor/Economically Disadvantaged, Indigent, General
Program Description:
The
Kids Beating Cancer Pediatric Marrow Transplant program guarantees and ensures
that no child will ever be denied treatment regardless of race, ethnicity, or
ability to pay, and all children will have access to transplantation by
eliminating the financial barriers to receiving this life-saving treatment when
they need it. The Pediatric Marrow Transplant Program’s goal is to help “Fund
the Match” – From diagnosis, to identifying a donor, to receiving a life-saving
transplant, Kids Beating Cancer is the first step toward a cure, providing the
financial assistance for the medical out-of-pocket expenses so families can
proceed with treatment, the best hope for a cure and saving the life of their
child, without delays because of coverage or ability to pay.
The treatment period for children and families diagnosed with cancer is
approximately 100
days to three or more years. This often requires one parent to give up their job,
reducing the family income. Financial distress is further compounded by the
out-of-pocket costs necessary to begin the donor matching process when
transplant is determined the only treatment for the child’s disease. These
costs are not covered by insurance. Kids Beating Cancer removes these barriers
to care by funding the lab testing cost to determine if a
family member is a potential match for a child in need of a life-saving
transplant at the Kids Beating Cancer Pediatric Transplant Center, a cost never
covered by Medicaid, funding the donor search cost for identifying unrelated or
umbilical cord blood donors when a family member is not a compatible match,
funding donor procurement costs, funding the patient pre-workup costs, all
costs not covered by Medicaid or insurance, so children get their transplant
when they need it.
Program Long-Term Success:
Kids Beating Cancer’s objective is to be the resource so
that no child diagnosed with cancer, leukemia or related life-threatening
diseases would ever be denied treatment regardless of race, ethnicity, or
ability to pay and would have access to transplantation by eliminating the
financial barriers so every child can receive this life-saving treatment when
they need it.
Program Short-Term Success:
Through 2012 year end financial barriers will be removed for 20 families allowing 20 children to receive a life saving transplant that otherwise would not be able to proceed with care as quickly or quite possibly at all.
Program Success Monitored by:
Florida Hospital for Children statistics and financial reporting
Program Success Examples:
In June 2011, seven-year-old Jasmin Baker
received Central Florida’s first bone marrow transplant to cure her sickle cell
disease at Kids Beating Cancer Pediatric Transplant Center at Florida Hospital for Children. Unlike most little girls, Jasmin was never able to play sports or play
outside in the Florida summer sun because of her sickle cell disease. Patients
with sickle cell disease must be careful in extreme temperatures and cannot
become overheated because the cells in their blood can become easily clotted,
causing a variety of severe medical issues, including death. Jasmin was also
prone to infections and spent most of her time in and out of the hospital. But
now her sickle cell disease is officially a thing of the past. Jasmin’s life is
forever changed because of her transplant. Now
she can be the little girl she was always meant to be.
Program:
Karing for Kids
- Budget:
-
$200,000
- Category:
-
Human Services
- Population Served:
-
Children and Youth (infants - 19 years.)
-
Ethnic/Racial Minorities -- General
-
Poor/Economically Disadvantaged, Indigent, General
Program Description:
KBC provides resources, advocacy, assistance, and individualized support to children with cancer, leukemia, and those in need of a marrow or blood stem cell transplant and their families. KBC provides; teddy bears to children “Bunky’s Pals” Nationwide, provides blankets and therapeutic toys during treatment and play activities for Central Florida children, and provides holiday parties, special celebrations, and outings for Central Florida children and their families.
Program Long-Term Success:
Program Short-Term Success:
Program Success Monitored by:
Program Success Examples: