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National Breast Cancer Foundation, Inc. Name provided directly to GuideStar from organization* as of: 03/06/2015: National Breast Cancer Foundation, Inc.

Organization Name as listed in the IRS Business Master File as of 02/09/2015: NATIONAL BREAST CANCER FOUNDATION INC

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Frisco, TX
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GuideStar Summary

&1002;      Updated Profile Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2014, 2013, and 2012 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit and Charting Impact Report are available
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Basic Organization Information

National Breast Cancer Foundation, Inc. Name provided directly to GuideStar from organization* as of: 03/06/2015: National Breast Cancer Foundation, Inc.

Organization Name as listed in the IRS Business Master File as of 02/09/2015: NATIONAL BREAST CANCER FOUNDATION INC

* GuideStar encourages organizations to regularly update information on their GuideStar Nonprofit Profiles. This provides richer and broader information about their programs, impact, finances, people and more.
Physical Address: Frisco, TX 75034 
EIN: 75-2391148
Web URL: www.nbcf.org 
Blog URL: blog.nationalbreastcancer.org/ 
Video URL(s): Don't Forget To Keep Her In The Picture
Our program, Beyond the Shock, is a great resource for women and families going through breast cancer.
Bernice Hamilton shares her story of how she is navigating breast cancer.
NTEE Category: E Health—General & Rehabilitative
E12 Fund Raising and/or Fund Distribution
G Disease, Disorders, Medical Disciplines
G30 Cancer
H Medical Research
H30 Cancer Research
Year Founded: 1991 
Ruling Year: 1991 
Top Funders: Federated Campaigns - $76,446
All other contributions, gifts, grants, investments, etc. - $11,094,174
Noncash Contributions - $1,813,269


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Mission Statement

The National Breast Cancer Foundation’s (NBCF) mission is to help women now by providing help and inspiring hope to those affected by breast cancer through early detection, education and support services.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses

(GuideStar Nonprofit Profile,
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March 2015)

Fiscal Year Starting: July 1, 2013
Fiscal Year Ending: June 30, 2014

Total Revenue $12,983,889
Total Expenses $11,593,722

Revenue & Expenses

(GuideStar Nonprofit Profile,
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March 2015)

Fiscal Year Starting: July 1, 2013
Fiscal Year Ending: June 30, 2014

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership

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March 2015)

Mrs. Janelle Hail

Profile:

Janelle Hail is a 35 year breast cancer survivor and the founder of NBCF, one of the highest-rated and most respected breast cancer charities in the world. She is an award-winning writer, professional speaker, and leader in breast cancer early detection. Janelle has been acclaimed as a Texas Living Legend for her philanthropic endeavors. Under her leadership, NBCF has created the National Mammography Program, Patient Navigation, Beyond the Shock®, Early Detection Plan, Breast Health Education, and breast cancer research programs. She has received national and international recognition and awards.

Leadership Statement:

I founded NBCF in 1991 after being diagnosed with breast cancer in 1980. Since early detection saved my life, I wanted NBCF to reach out with a helping hand to women who could not afford mammography services and to educate all women about the importance of early detection. I am proud that NBCF now covers every state in the United States with services and has an international educational outreach.

Board Chair (GuideStar Nonprofit Profile,
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March 2015)

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Board Co-Chair

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Board of Directors (GuideStar Nonprofit Profile,
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March 2015)

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Board Leadership Practices (GuideStar Nonprofit Profile,
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March 2015)

?

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Yes
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Yes
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Yes
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in March 2015

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Programs

Program: Patient Services (GuideStar Nonprofit Profile
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March 2015)

Budget:
$4,100,000
Category:
Health Diagnostic, Intervention & Treatment Services
Population Served:
Female Adults
None
None

Program Description:

Through the National Mammography Program (NMP), NBCF partners with medical facilities across the country to provide free mammograms and diagnostic breast care services to underserved women. NBCF supports 85 grants programs comprised of 60 Screening/Diagnostic programs and 25 Patient Navigation programs through 79 medical facilities in all 50 states. The NMP network has previously worked with over 120 medical facilities. Through patient navigation programs at medical facilities within their network, NBCF is able to promote early detection procedures to those that need it most. Patient navigation is a proactive approach to helping patients overcome the barriers of cost, fear, and misinformation surrounding a disease and its prevention.

Program Long-Term Success:

Since 2001, NBCF has provided 240,000 screening and diagnostic breast care services to underserved women. Since 2009, NBCF Patient Navigation programs have provided 409,555 services to women in need. With rising healthcare costs, many uninsured or underinsured women cannot afford the cost of diagnostic tests. By providing free mammograms and breast care services to underserved women, NBCF will increase the early detection of breast cancer which will lead to higher survival rates.

Program Short-Term Success:

In FY 2014, NBCF provided 15,152 free mammograms and breast diagnostic services and 158,079 patient navigation services to uninsured, underinsured, and underserved women.

Program Success Monitored by:

The program success is monitored by a formal results form created specifically for the National Mammography Program that facilities in their network submit to them every 6 months. The form monitors costs, services provided, and requests feedback about challenges and successes of the program. A database has been created that helps monitor changes and patterns in funding usage and services that are provided.

Program Success Examples:

NMP funding has helped to create new Navigator Programs in Kingman, AZ; Dallas, TX; Brattleboro, VT; Bridgeport, WV; Scarborough, ME. The success is measured through the great impact that navigators have in reaching out to underserved women in communities to give them access to lifesaving breast care services. Facilities within the NMP continue to report that because of grant funding from NBCF, they are able to help women in their areas that did not qualify for state or local funds to access mammography services. Any life that is saved is an example of the success of the program.

Program: Education and Awareness Programs (GuideStar Nonprofit Profile
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March 2015)

Budget:
$4,400,000
Category:
Patient & Family Support
Population Served:
Female Adults
Adults
General Public/Unspecified

Program Description:

NBCF's Early Detection Plan is an interactive tool both online and available as an iPhone App. The Early Detection Plan reminds women to schedule routine breast self-exams, clinical breast exams, and mammograms. MyNBCF (www.MyNBCF.org) is an online support community that has been described by its members as "an avenue to share, vent, cry and laugh." The community provides breast cancer patients, survivors, and their loved ones a safe place to discuss breast cancer. Beyond the Shock is a step-by-step guide to understanding the diagnosis of breast cancer presented in an interactive online website. It allows those affected by breast cancer to learn about breast cancer, ask and answer questions, and hear inspirational stories from breast cancer survivors. The Breast Health Education Program provides breast cancer education and early detection services to women at community outreaches across the country. NBCF educates women about the importance of early detection and informs them about resources that are available in their community. Women are given the opportunity to receive free clinical breast exams from nurse practitioners.

Program Long-Term Success:

Through education and awareness programs, NBCF educates women about their breast health and emphasizes the need to take care of themselves. These programs remind and encourage women to schedule their breast self-exams. Ultimately, long-term success for the program is measured by decreased mortality rates in women with breast cancer through early detection and treatment.

Program Short-Term Success:

Women served by the programs often express the benefits they have received. The success of the program is evident in women reporting that the programs reminded them to get their mammograms and help educate them when they or a loved one was diagnosed with breast cancer.

Program Success Monitored by:

Program success is monitored by the number of women that engage in NBCF's awareness and education programs, and through user feedback about the effectiveness of the programs provided.

Program Success Examples:

One woman stated, "The Early Detection Plan helped my cousin. She caught her cancer early and is currently undergoing treatment. [The] outlook is good." Another woman stated, "It [the Early Detection Plan] saved my best friend's life."

Program: Breast Cancer Research (GuideStar Nonprofit Profile
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March 2015)

Budget:
$900,000
Category:
Cancer Research
Population Served:
Female Adults
None
None

Program Description:

NBCF continues to help women now by funding targeted research through The University of Texas MD Anderson Cancer Center: Diseases like triple-negative breast cancer (TNBC) have been very difficult to treat and doctors need to know more about its cause. The five-year survival rate of metastatic TNBC patients is currently less than 30 percent. Improvements in treatment options are needed now. That’s why NBCF is focused on funding research projects that seek to improve the outcome of this disease and further advancements in personalized therapies. Triple-Negative Breast Cancer in Africa Led by Dr. Khandan Keyomarsi, this program focuses on African women with triple-negative breast cancer (TNBC) and the study of two potential biomarkers to determine if they can be used as prognostic indicators for this very difficult-to-treat disease. The program also includes an education component for graduate training in disparities research that will help address and eliminate breast cancer health disparities in women of African descent. Breast Cancer in Africa Led by Dr. Shubhra Ghosh, The University of Texas MD Anderson Cancer Center is working with a global coalition of cancer societies, research institutes and patient groups to educate health professionals across many disciplines. This effort will lead to the implementation of prevention, early detection, diagnosis, treatment and care of cancer patients in Africa. Moonshots Program Led by Dr. Mien-Chie Hung, MD Anderson is applying comprehensive team science to improve treatment and clinical outcomes for triple-negative breast cancer (TNBC) and high-grade serious ovarian cancer (HGSOC). This dual focus stems from recent studies that point to remarkable similarities in the underlying molecular events that cause these two rare, aggressive cancers.

Program Long-Term Success:

Empower the medical community to design strategies to resolve clinical problems and to diminish adverse effects. Continue to unravel cross-talk pathways in cancer cells to predict drug resistance, stratify patients and develop breast cancer-specific vectors. Research will help eliminate breast cancer health disparities and will lead to the implementation of prevention, early detection, diagnosis, treatment, and care of patients.

Program Short-Term Success:

The findings from these studies could be readily applied for marker-guided clinical trials and may identify effective marker-guided combinational therapy. Moreover, the findings could provide a rationale for a new personalized approach to TNBC therapy that will identify the most effective therapy while limiting the patient’s exposure to no-response therapy. Based on accumulated data and preliminary results, the medical community is applying for funding support to move into clinical trials.

Program Success Monitored by:

Research facilities collect data from studies and submit progress reports biannually to give feedback about the findings and developments of the research studies they are conducting.

Program Success Examples:

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Impact Summary from the Nonprofit Additional Information
A Charting Impact Report consists of an organization’s responses to the five questions. Helping validate this self-reported data are three reviews. Once an organization has used the online interface to complete its report, its responses will produce a document with a unique URL that will be shared on this website, on your GuideStar profile, on the reports of charities participating in BBB Wise Giving Alliance evaluations, and – in the future – with other websites and information sources about nonprofits. We encourage organizations to use this URL to share their report on their own website and through their own media channels. Participants will receive guidance about promoting their Charting Impact Report, along with other benefits, once they publish their report.

NBCF has had a major impact in the U.S. through its breast cancer early detection programs and services. By partnering with some of the largest companies and media outlets in the world, NBCF has been able to save countless lives and spread the message of early detection to every household in America. ~ Thousands of women across America signed up for the Early Detection Plan ~ Nearly three million plays of our educational videos about breast cancer have been viewed on Beyond the Shock ~ Increased number of patient services provided to uninsured and underserved women across the United States ~ Created breast cancer education tools in Spanish, French, Portuguese, and Chinese Mandarin ~ Distributed hundreds of thousands of brochures promoting the importance of early detection of breast cancer
For more in-depth information about this organization's impact, view their Charting Impact Report.
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