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MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC Organization Name provided in the GuideStar Exchange* as of 04/29/2013: MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC

Organization Name as listed in the IRS Business Master File as of 06/09/2014: MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.

AKA  Meso Foundation
Alexandria, VA
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GuideStar Summary

&1002;                GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is not available
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Basic Organization Information

MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC Organization Name provided in the GuideStar Exchange* as of 04/29/2013: MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC

Organization Name as listed in the IRS Business Master File as of 06/09/2014: MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Also Known As: Meso Foundation
Physical Address: Alexandria, VA 22314 
EIN: 75-2816066
Web URL: www.curemeso.org 
Blog URL: blog.curemeso.org 
NTEE Category: H Medical Research
H30 Cancer Research
H Medical Research
H12 Fund Raising and/or Fund Distribution
H Medical Research
H01 Alliance/Advocacy Organizations
Ruling Year: 2000 


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Mission Statement

The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease. Malignant mesothelioma is a rare cancer of the linings of the chest or abdomen. Asbestos exposure is the only known cause. The Meso Foundation solicits and rigorously reviews applications, and then awards significant grants, for research on the prevention, early detection, and treatment of mesothelioma. Through its web site and literature, its direct communications, and annual Symposium the Foundation provides patients, family members and physicians with hope, encouragement, and information. The Meso Foundation employs a full-time mesothelioma nurse practitioner to help patients navigate their treatments. In addition, the Foundation works to enhance awareness of this disease and to encourage federal funding for research.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses (IRS Form 990, January 2012)

Fiscal Year Starting: January 01, 2012
Fiscal Year Ending: December 31, 2012

Total Revenue $2,184,920
Total Expenses $1,897,617

Revenue & Expenses

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
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Financial Statements

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Annual Reports

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Leadership (GuideStar Exchange,
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April 2013)

Mary Hesdorffer

Profile:

Mary Hesdorffer received her undergraduate degree at the College of New Rochelle in NY and went on to receive her Masters of Science at the same institution. She is fully credentialed as a Nurse Practitioner and has spent 15 years actively treating patients with mesothelioma. Mary has an expertise in the development and implementation of clinical trials. She has published in peer reviewed journals and has lectured nationally on the topics pertaining to mesothelioma with particular emphasis on clinical trials as well as symptom and disease management. Mary has been a strong voice in urging increased transparency to the medical and legal issues surrounding mesothelioma with a strong emphasis on ethics. She is passionate in her commitment to the treatment and management of this disease and hopes to increase awareness of the need to advance the science that will lead to a cure. She is available via phone or email to assist patients and caregivers as they move from chaos to control of this new situation they find themselves thrust into.

Board Chair (GuideStar Exchange,
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April 2013)

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Board Co-Chair (GuideStar Exchange,
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Board of Directors (GuideStar Exchange,
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April 2013)

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Board Leadership Practices (GuideStar Exchange,
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April 2013)
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Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in April 2013

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Programs

Program: Research;Patient Education and Support;Advocacy Programs (GuideStar Exchange,
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April 2013)

Budget:
$1,233,232
Category:
Population Served:
Other Named Groups

Program Description:

The Meso Foundation's Board of Directors and Science Advisory Board include many of the nation's top mesothelioma physicians and researchers. With the assistance of these experts, the Foundation evaluates and provides funding for novel, promising mesothelioma research projects. The Meso Foundation has already awarded $5 million in mesothelioma research grants. We expect to continue to award ten $100,000 grants each year. As our financial support grows, the Foundation will make larger and more frequent grants to continue to stimulate research to develop effective mesothelioma treatments. The Foundation also educates front-line physicians and mesothelioma patients and family members on current mesothelioma treatment options, and works to create awareness of mesothelioma in Washington and the news media in order to stimulate more research funding at the federal level. The Foundation assisted with the first bill in U.S. history specifically calling for federal funding of mesothelioma research and treatment, introduced by Senator Patty Murray on June 18, 2002.

Program Long-Term Success:

The Meso Foundation awarded ten $100,000 mesothelioma research grants to researchers around the world.

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

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Impact Summary from the Nonprofit

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