Category: Diseases and Disease Research

DANIS FOUNDATION

Denver, CO

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DANIS FOUNDATION

Physical Address:: Denver, CO 80202
EIN:: 84-1537859
Web URL:: www.danisfoundation.org
Leadership:: Ms. Martha Simmons, Chief Executive

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Registered with IRS	Legitimacy information is available
Financial Data	Annual Revenue and Expense data reported
Forms 990	2010, 2009, and 2008 Forms 990 filed with the IRS
Mission Objectives	Mission Statement is available
Impact Statement	Impact Statement from nonprofit is available

Legitimacy Information

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This organization is required to file an IRS Form 990 or 990-EZ.

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Forms 990 from IRS IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

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Fiscal Year Starting: Jan 1, 2010
Fiscal Year Ending: Dec 31, 2010

Revenue
Total Revenue	$250,000

Expenses
Total Expenses	$175,881

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Key Financial SCAN Features

Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
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Basic Organization Information

DANIS FOUNDATION

Physical Address:: Denver, CO 80202
EIN:: 84-1537859
Web URL:: www.danisfoundation.org
NTEE Category:: G Disease, Disorders, Medical Disciplines; G30 Cancer; H Medical Research; H30 Cancer Research
Year Founded:: 1999
Ruling Year:: 2000
How This Organization Is Funded:: Radcliffe Foundation - $25,000; MiNE, LLC - $14,500; Greif, Doris - $10,000

Mission Statement

Dani’s Foundation is dedicated to advancing a global initiative that will be aimed at:

Funding research that will find the cause and the cure for sarcomas including Ewing’s Sarcoma (EWS), osteosarcoma and other forms of sarcomas that affect children and young adults;
Funding studies that will target improved treatment protocols for all sarcoma patients; Implementing community education programs that will inform the public-at-large on the varieties of sarcomas;
Providing valuable resource information for sarcoma patients and medical professionals.

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Impact Statement from Nonprofit

2008 - Hosted the first Ewing’s Sarcoma Medical Forum; hired a full-time Executive Director; launched a new interactive website and began the publication of a quarterly Newsletter. In addition, Dani’s Foundation awarded $10,000 to Dr. Jeffrey Toretsky at the Lombardi Cancer Center at Georgetown University for the continuation of his research on Ewing’s Sarcoma.

2009 - Increased Awareness on Ewing's Sarcoma and the Campaign to End Pediatric Sarcoma via Foundation website, printed and on-line newsletters and through participation in Foundation and other community events; established on-going fundraising opportunities with the goal of increasing awareness and funding for the Foundation and the campaign to End Pediatric Sarcoma, initiated a comprehensive community education program that will list the symptoms of pediatric sarcomas with the goal of seeking earlier detection and ultimate survival; development of the Ewing's Sarcoma Alliance, a specific non profit organization designed to organize all independent Ewing's groups and work together for the objectives of advocacy, education and research; development of greater funding for pediatric treatment protocols and scientific investigation.

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Key Financial SCAN Features

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Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.

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FAQs on Financial Data | Digitizing IRS Form 990 Data

Financial Data

Revenue and Expenses

Balance Sheet

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Key Financial SCAN Features

Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.

View Sample Report

More Information

Forms 990 Received from the IRS IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

Forms 990 Provided by the Nonprofit

Financial Statements

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Annual Reports

Formation Documents A Letter of Determination is a letter from the IRS to a nonprofit organization stating that the organization has successfully applied for tax-exempt status. In this document the IRS indicates under which section of the Internal Revenue Code an organization is qualified.

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Organizational Statistics

Chief Executive

Ms. Martha Simmons

Term:

Since Aug 2008

Chief Executive Profile:

Simmons has 30 years of non profit management exeperience.

Prior to coming to Dani's Foundation, she was the Executive Director of The Limb Preservation Foundation, a Colorado based non-profit whose mission was to provide services, education and research in the areas of tumor, trauma and infection.

Prior to Limb Preservation, Simmons served as the Executive Director of the Rocky Mountain Chapter of The ALS Association.

CEO/Executive Director Statement:

Dani’s Foundation relies on the generosity of donors and community support to continue its efforts to End Pediatric Sarcoma.

Did You Know?

In the United States, cancer is the number one kills of children by disease.
Each year, about 3,000 children die from cancer...more than from asthma, diabetes, cystic fibrosis, congenital anomalies and pediatric AIDS combined.
Currently, one in ever 330 Americans developes cancer during childhood or adolescence, before the age of 20.
On the average, 46 children and adolescents are diagnosed with cancer every day in the United States.
Pediatric cancer funding is nominal in comparison to other more publicized diseases.
The cases of pediatric cancer are increasing at a rate of 1% every year, while funding for research continues to be minimal.
Cancer in childhood occurs regularly, randomly and spares no ethnic group, socioeconomic class or geographic region.

Children are dying.....We need your help today to insure that a cure for Ewing's Sarcoma, Pediatric Sarcomas and other Pediatric Cancers will be found in the immediate future.

We need your active participation within Dani's Foundation with the goal of raising that one additional dollar that WILL find the cause and the cure for these horrific disease that are affecting and taking the lives of children and young adults.

Won't you help us in our mission to succeed?

Board Chair

Board of Directors

Officers for Fiscal Year

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Highest Paid Employees & Their Compensation

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Program: Patient Information and Resources

Budget:: $1,000
Category:: Diseases, Disorders & Medical Disciplines
Population Served:: Children and Youth (infants - 19 years.)

Program Description:

The Dani's Foundation website offers patients, family members, caregivers and medical professionals information and resources that will assist with their navigation through a pediatric sarcoma diagnosis.

Program Long-Term Success:

Working to keep the pediatric sarcoma population updated on pertanent information and resources.

Program Short-Term Success:

A call from a web viewer last month who told us that our website was "most helpful in their navigation through the disease and the resources available".

Program Success Monitored by:

Patients, family members, caregivers, healthcare professionals and Dani's Foundation Board of Directors and Staff.

Program Success Examples:

Notes of thanks for scope of website.

"Thank you for the information provided!"

"Very helpful and easy to navigate."

Program: Pediatric Sarcoma Community Education

Budget:: $31,000
Category:: Diseases, Disorders & Medical Disciplines
Population Served:: Children and Youth (infants - 19 years.)

Program Description:

Children and young adults are dying from pediatric sarcomas. Many pediatric sarcoma symptoms are ignored and/or misdiagnosed due to athletic participation, growth factors and/or normal childhood aches and pains. Daniele “Dani” Stell was misdiagnosed for a period of six months. Her Ewing’s Sarcoma cancer was growing and spreading to other areas of her body during that time of multiple doctor visits and misdiagnosis. Statistics show that the earlier a cancer is detected; medical treatment can eradicate the cancer with the goal of seeking higher survival rate.

Targeted Population: All children and young adults

Benefits: Awareness of pediatric (children and young adult) sarcoma symptoms and need for proper medical testing should symptoms persist; thus seeking earlier detection and ultimately survival.

Dani’s Foundation is working to develop and implement a community education program that will be distributed to frontline professionals with the goal of educating the community at large on the symptoms of pediatric sarcomas and encouraging the need for medical testing should classic symptoms prevail.

Dani’s Foundation will develop the following materials that will be distributed to school nurses, coaches, athletic directors and trainers, physical therapists, pediatricians and other medical professionals:

· Letter of Introduction and Campaign explanation

· Pediatric Sarcoma Informational Brochure

· Pediatric Sarcoma “baseball card” featuring Dani’s photo on the front side and sarcoma symptoms on the back side

· Pediatric Sarcoma Posters to be placed in all professional offices

Activities Planned

Printing and Production of community education materials

Mass Distribution of community education packet (letter of introduction, pediatric sarcoma brochures and baseball cards for distribution to targeted audience, posters for posting in professional offices).

Media Campaign (public service announcements, media releases, public affairs programming, etc.)

Media Kick Off (featuring Denver Bronco Trainer Steve Antonopulos as campaign spokesperson)

Program Long-Term Success:

Awareness, diagnosis and ultimate survival.

Program Short-Term Success:

Getting information into all CO schools, university and other team related agencies with the goal of seeking advanced medical care when needed!

Program Success Monitored by:

Dani's Foundation Board of Directors, Staff, school/university/team staff and medical community.

Program Success Examples:

Seeking earlier detection for one child with the goal of saving a life!

Program: Research

Budget:: $50,000
Category:: Diseases, Disorders & Medical Disciplines
Population Served:: Children and Youth (infants - 19 years.)

Program Description:

Working to continue the funding of annual research to scientific investigators who are looking to improve treatment protocols for pediatric cancer patients and find the cause and the cure for pediatric sarcomas.

Program Long-Term Success:

Working to provide a minimum of $50,000 annually in research funding to scientific investigators who are working on pediatric sarcomas/pediatric cancer.

Program Short-Term Success:

Obtaining the necessary funding to make annual research grant awards.

Program Success Monitored by:

Dani's Foundation Board of Directors and Staff; Medical Advisory Committee and Scientific Advisory Committee.

Program Success Examples:

Funding more research!

Funding Needs

General donations, operational underwriting, program grants and donations, research grants and donations.

Volunteer Needs

Administrative, program, medical professionals, past patients, family members, caregivers, special event assistance and overall support.

Request for In-Kind Contributions

Office supplies, computers, faxes, copiers, printing, art production, auction items, and event supplies.

News

Four New Board Members Join Dani’s Foundation Governing Body

July 21, 2009

Dani’s Foundation, the Colorado non profit organization whose mission is to find the cause and the cure for pediatric sarcomas - those rare forms of cancer that are affecting and taking the lives of children and young adults, is pleased to announce the addition of four new individuals to the Foundation’s Board of Directors. Those new Board members are:

Bailey is the CPO*, Owner and Founder of Creative Technology Prosthetics and Orthotics, LLC. Bailey has worked in the medical community for the past twenty years. Prior to opening Creative Technology, Christian served in the Navy as a Hospital Corpsman.

Bailey earned a degree in prosthetics and orthotics at the University of Washington School of Rehabilitative Medicine and he completed his residency at the University of Iowa Hospital. He ran a practice in Texas for five years before returning to Denver to start CTPO.

Bailey acts as a consultant for prosthetic manufacturers, participates in amputee support groups and volunteers with disabled sports programs. He is a guest instructor for prosthetics at Regis University.

Bailey will be assisting the Foundation with his knowledge of prosthetic and orthotic resources as these needs pertain to sarcoma patients and, thanks to his background in fine arts, Bailey will be assisting in developing new areas of development for the Foundation’s fundraising campaign to End Pediatric Sarcomas.

*CPO (Certified Prosthetist Orthotist). A CPO is a practitioner who has successfully completed a certification or degree program and residency in prosthetics and orthotics that allows him or her to practice in the field.

A member of the Los Angeles based Sue Procko Public Relations (SPPR), an award-winning, full-service public relations agency, Kimbirly Orr is Vice President of Business Development and specializes in the promotion of all facets of the entertainment industry. Orr, who is based in Denver, is responsible for new business opportunities for the company, including expansion of their events division and the creation of a unique online effort.

Orr is also a partner in Viral Media West. As the Chief Media Officer with responsibility for Social Media outreach and education she will assist in keeping Dani’s Foundation at the forefront of social media via aggregating the Foundation’s online presence.

Orr has worked in a sales and marketing role for the past 25 years. She recently served as Show Manager for New Hope Natural Media overseeing sales, marketing, promotions and operations. Prior to New Hope, Orr worked with Questex Media Group, formerly Advanstar Communications, managing all elements of the annual home entertainment industry show as well as multiple trade conferences. In her role at Questex, she worked closely with industry suppliers and the studios on a daily basis. She was also Director of Sales and Special Events for Brunico Marketing, introducing video and retail to the publication. She served for nearly a decade as a Board member of Entertainment AIDS Alliance, formerly VIAAC, and received the VIAAC Visionary Honor in 2003.

Orr is a graduate of the University of Colorado Leeds School of Business.

Patti Pansa is an experienced life coach and catalyst for positive change. As a coach, mentor and mediator, she works with individuals and groups to identify and change patterns that have restricted success. Pansa’s education includes a degree in Engineering (Michigan State University) and a Master’s degree in Business Administration (California State University). She is a member of the International Coaching Federation.
Pansa developed and expanded companies as well as started up multiple manufacturing plants from green fields to supply the electronics, consumer products, and home building industries. As President and General Manager of a manufacturing division, she led a team of 350 employees through major transitions. Patti worked for major corporations such as Pfizer, Johnson and Johnson, Baxter Healthcare, Hughes Aircraft, General Motors, and Ford, as well as medium and small entrepreneurial enterprises.

Pansa will be assisting Dani’s Foundation with its survivorship programs. As a two time cancer survivor, she brings valuable insight to the Foundation and the patients who are served.

Kate Ziminski has joined the Board of Directors of Dani’s Foundation with the goal of organizing a Friends of Dani auxiliary group for the Foundation. It has been ten years since Dani’s death from Ewing’s Sarcoma and most of her South High School friends have remained close; united in the campaign to End Pediatric Sarcoma. Ziminski will be working to organize this group of young professionals with the goal of keeping all informed on the activities of the Foundation and encouraging participation within its programs and special events.
Ziminski is employed as a cognitive specialist with the practice of Paul M. Richards, PhD in Northern Colorado.