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Lung Cancer Alliance Organization Name provided in the GuideStar Exchange* as of 09/30/2014: Lung Cancer Alliance

Organization Name as listed in the IRS Business Master File as of 09/08/2014: LUNG CANCER ALLIANCE

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Washington, DC
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GuideStar Summary

&1002; GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Evidence of Impact Expert Assessment and Reviews available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2012, 2011, and 2010 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit and Charting Impact Report are available
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Basic Organization Information

Lung Cancer Alliance Organization Name provided in the GuideStar Exchange* as of 09/30/2014: Lung Cancer Alliance

Organization Name as listed in the IRS Business Master File as of 09/08/2014: LUNG CANCER ALLIANCE

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Physical Address: Washington, DC 20006 
EIN: 91-1821040
Web URL: www.lungcanceralliance.org 
Blog URL: www.lungcanceralliance.org/blog/ 
Video URL(s): We are Lung CAncer Alliance
NTEE Category: G Disease, Disorders, Medical Disciplines
G45 Lung
R Civil Rights, Social Action, Advocacy
R01 Alliance/Advocacy Organizations
P Human Services
P50 Personal Social Services
Ruling Year: 1997 


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Mission Statement

Lung Cancer Alliance is dedicated to saving lives and advancing research by empowering those living with and at risk for lung cancer.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

Institutional funders should note that an organization’s inclusion on GuideStar.org does not satisfy IRS Rev. Proc. 2011-33 for identifying supporting organizations.

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Annual Revenue & Expenses

(GuideStar Exchange,
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September 2014)

Fiscal Year Starting: January 1, 2013
Fiscal Year Ending: December 31, 2013

Total Revenue $5,799,670
Total Expenses $4,139,109

Revenue & Expenses

(GuideStar Exchange,
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September 2014)

Fiscal Year Starting: January 1, 2013
Fiscal Year Ending: December 31, 2013

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar website is an ongoing process.

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Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership

(GuideStar Exchange,
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September 2014)

Ms. Laurie Fenton Ambrose

Profile:

Laurie Fenton Ambrose is the President and Chief Executive Officer of Lung Cancer Alliance (LCA) responsible for managing the overall mission and strategic direction of organization. Hired as LCA’s first President in 2004, Laurie has managed LCA’s relocation, restructuring and realignment from a west coast-based operation to its current headquarters in Washington, DC.  Today, LCA is nationally and internationally recognized as the premier non-profit dedicated solely to patient support and advocacy for those living with or at risk for lung cancer. Laurie is responsible for overseeing the creation and implementation of LCA’s patient empowerment programs, public health policy agenda and national grassroots and awareness initiatives. Laurie is also LCA’s primary liaison to community and government leaders, national media, collaborating agencies, health care professionals, and other strategic alliances.

Leadership Statement:

Lung Cancer Alliance is led by a respected leader with 20 years of public policy and strategic management experience providing fundamental organizational requirements for this emerging national advocacy enterprise.

Board Chair (GuideStar Exchange,
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September 2014)

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Board Co-Chair

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Board of Directors (GuideStar Exchange,
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September 2014)

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Board Leadership Practices (GuideStar Exchange,
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September 2014)
?

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Yes
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Yes
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Yes
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Yes
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Yes

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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People information was last updated by the nonprofit in September 2014

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Programs

Program: Community & Support Services Program (GuideStar Exchange,
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September 2014)

Budget:
--
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Adults

Program Description:

Providing help, information, and support to lung cancer patients, loved ones and healthcare professionals through free telephone and online support services, delivering customized information packets to improve outcomes.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: National Awareness Progam (GuideStar Exchange,
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September 2014)

Budget:
--
Category:
Diseases, Disorders & Medical Disciplines
Population Served:
Adults

Program Description:

Conducting national awareness campaigns - including Give A Scan, Team Lung Love and the National Shine A Light on Lung Cancer Vigil -  to educate the public about the facts, dispel myths, and share calls to action that will reduce the stigma of the disease.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

Program: Health Policy Program (GuideStar Exchange,
The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
September 2014)

Budget:
--
Category:
Civil Rights, Social Action & Advocacy
Population Served:
Adults

Program Description:

Advocating for multiple millions in public health dollars for lung cancer research through a nationwide grassroots network of volunteer advocates and targeted policy strategies.

Program Long-Term Success:

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:

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Impact Summary from the Nonprofit Additional Information
A Charting Impact Report consists of an organization’s responses to the five questions. Helping validate this self-reported data are three reviews. Once an organization has used the online interface to complete its report, its responses will produce a document with a unique URL that will be shared on this website, on your GuideStar profile, on the reports of charities participating in BBB Wise Giving Alliance evaluations, and – in the future – with other websites and information sources about nonprofits. We encourage organizations to use this URL to share their report on their own website and through their own media channels. Participants will receive guidance about promoting their Charting Impact Report, along with other benefits, once they publish their report.

Lung Cancer Alliance is dedicated to saving lives and advancing research by empowering those living with and at risk for lung cancer --the leading cause of cancer death in the US and worldwide. Since 1995, we have played a critical role in every major advance – changing how we talk about, detect and treat the disease – and turning patients into survivors.
For more in-depth information about this organization's impact, view their Charting Impact Report.

Expert Assessment

The Lung Cancer Alliance has been effective in increasing the flow of money towards lung cancer funding. It has also had a strong influence over Congressional decisions and policy changes. Read More »

Expert Reviews and Comments

2011 Philanthropedia Top Nonprofit

This organization is a 2011 Philanthropedia top nonprofit, recommended by experts as having high impact.

These expert reviews were generated through Philanthropedia's research methodology to identify high-impact nonprofits. Learn more

Evidence of Impact

The Lung Cancer Alliance has been effective in increasing the flow of money towards lung cancer funding. It has also had a strong influence over Congressional decisions and policy changes.

Help Funding of Lung Cancer
LCA is focused on lobbying in Washington DC to get more federal funding for lung cancer research. They generate good increased awareness around the under-funding for lung cancer research. Foundation Professional
Lung Cancer Alliance is a wonderful organization that focuses on correcting the injustice of the underfunding of Lung Cancer. Their presence in Washington, D.C. is enormously helpful. Nonprofit Senior Staff
Strong Impact on Policy
Lung Cancer Alliance is an effective organization in impacting policy to improve research and access to early detection and screening for lung cancer patients and those not yet diagnosed. They were active in pushing the NCI to undertake the NLCST which showed increased survival using spiral CT and to quickly move this option to the public as an accepted screening methodology. Nonprofit Senior Staff
The lung cancer alliance is strong on the policy side and is a significant voice for patients in DC. Nonprofit Senior Staff
They have a strong advocacy posture in the face of Congress. Nonprofit Senior Staff
Small but Effective Organization
This is a small organization, but it is well informed, collaborative, and engaged on all levels. Nonprofit Senior Staff

Organizational Strengths

According to experts, the organization's greatest strengths are its unique ability to affect policy and its dedicated leadership.

Strong Focus on Advocacy
Their connections and experience working within Congress are very good. They also have a very good patient support network. Foundation Professional
One of its greatest strengths is its broad and deep experience as an advocacy organization dealing with government bureaucracy. Its leadership and staff was able to push thru a $10M appropriation for the study of Lung Cancer. Nonprofit Senior Staff
Great Leadership
Laurie Fenton, the president, is one of the most wonderful and caring and persistent advocates for Lung Cancer. Also Sheila Ross, one of the founders, is part of this dynamic duo. Their leadership will have and does have an impact on convincing government officials to put as much money into Lung Cancer, the #1 cancer killer as breast and prostate. If this can be done, lung cancer's survival rate will be up in the 90s with these two other cancers. Their strength in pursuing this goal is helpful to the entire lung cancer community. Nonprofit Senior Staff
Its leadership is its greatest strengths. Nonprofit Senior Staff
They have a strong involvement on the legislative side, strong leadership, and solid operations. Nonprofit Senior Staff

Areas for Improvement

The major criticisms of the Lung Cancer Alliance are that the group should spend more time raising awareness on the issue and on new developments in lung cancer research and that it should be more collaborative with other groups.

More Collaborative Efforts
They have a tendency to isolate from the rest of the lung cancer community of foundations rather than trying to leverage the constituents of all of the foundations in order to have a greater impact on federal funding. Foundation Professional
More Staff
I believe if they could hire more staff they could grow nationally and have more impact across all 50 states. Nonprofit Senior Staff
More National Fundraising
The reach of the Lung Cancer Alliance could be greater in all areas - especially education and research - with additional funds. Nonprofit Senior Staff
They should become more involved and aware of new treatments, trials, and research opportunities to educate congress . They could also help with broader national fundraising campaigns. Nonprofit Senior Staff
Raise More Awareness
They could do more on the awareness side to help remove the stigma associated with this disease. Nonprofit Senior Staff
The major criticisms of the Lung Cancer Alliance are that the group should spend more time raising awareness on the issue and on new developments in lung cancer research and that it should be more collaborative with other groups. Nonprofit Senior Staff
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Third Party Ratings, Accreditations and Awards

Reviews

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