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FAMILY CAREGIVER ALLIANCE Organization Name provided in the GuideStar Exchange* as of 03/14/2013: FAMILY CAREGIVER ALLIANCE

Organization Name as listed in the IRS Business Master File as of 11/10/2014: FAMILY CAREGIVER ALLIANCE

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San Francisco, CA
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GuideStar Summary

&1002; GuideStar Exchange Committed to transparency ?
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&1002; Registered with IRS Legitimacy information is available
&1002; Evidence of Impact Expert Assessment and Reviews available
&1002; Financial Data Annual Revenue and Expense data reported
&1002; Forms 990 2013, 2012, and 2011 Forms 990 filed with the IRS
&1002; Mission Objectives Mission Statement is available
&1002; Impact Summary Impact Summary from the nonprofit is not available
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Basic Organization Information

FAMILY CAREGIVER ALLIANCE Organization Name provided in the GuideStar Exchange* as of 03/14/2013: FAMILY CAREGIVER ALLIANCE

Organization Name as listed in the IRS Business Master File as of 11/10/2014: FAMILY CAREGIVER ALLIANCE

* The GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more.
Physical Address: San Francisco, CA 94103 2022
EIN: 94-2687079
Web URL: www.caregiver.org 
Blog URL: blog.caregiver.org 
NTEE Category: P Human Services
P01 Alliance/Advocacy Organizations
E Health—General & Rehabilitative
E99 Health - General and Rehabilitative N.E.C.
F Mental Health, Crisis Intervention
F99 Other Mental Health, Crisis Intervention N.E.C.
Ruling Year: 1980 


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Mission Statement

Mission:  To improve the quality of life for caregivers and those they care for through information, services, and advocacy.  Values:  Respect - We believe caregivers, their families and to the extent possible, brain impaired adults, should be the decision makers in planning care. Options - We are committed to increasing the range of choices available to families to suit their particular situations. Quality - We are committed to quality and to providing the best of what's available, through timely, prompt service, well-trained staff and up-to-date information.  Innovation - We strive to find new and better approaches by creating partnerships between research and service.  Diversity - We are committed to serving the diverse and changing population of caregivers. Collaboration - We form partnerships with other organizations and agencies to further our mutual aims.  Efficiency - We seek to use our resources to the fullest, waste nothing and stand ready to account for what we do.

Legitimacy Information

This organization is registered with the IRS.

This organization is required to file an IRS Form 990 or 990-EZ.

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Annual Revenue & Expenses

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March 2013)

Fiscal Year Starting: July 1, 2010
Fiscal Year Ending: June 30, 2011

Total Revenue $2,277,779
Total Expenses $2,217,493

Revenue & Expenses

(GuideStar Exchange,
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March 2013)

Fiscal Year Starting: July 1, 2010
Fiscal Year Ending: June 30, 2011

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Balance Sheet (IRS Form 990)

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Forms 990 Received from the IRS Additional Information
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Forms 990 Provided by the Nonprofit

Financial Statements

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Annual Reports

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Leadership

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March 2013)

Kathleen A. Kelly

Board Chair (GuideStar Exchange,
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Board Co-Chair

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Board Orientation & Education ?
Why does this matter? Without clarity around their responsibilities and expectations, board members are not positioned to succeed. They may find themselves challenged to fulfill their governance responsibilities or frustrated by the expectations that the organization has set for them. BoardSource recommends that every new board member participate in a formal orientation process, and that all board members sign a pledge or agreement committing to their board service and to all of the responsibilities and expectations that come with service. Ideally, board members also should participate in a formal governance training program prior to serving on a board.

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Response Not Provided
CEO Oversight ?
Why does this matter? Oversight and management of the chief executive is one of the board’s most important legal responsibilities. The CEO or executive director is the board's single employee, and - just like any other employer/employee relationship - regular and written assessment is critical to ensuring that the chief executive and board are communicating openly about goals and performance. BoardSource recommends that boards conduct formal, written reviews of their chief executives on an annual basis, which should include an in-person discussion with the chief executive and distribution of the written evaluation to the full board.

Has the board conducted a formal, written assessment of the chief executive within the past year?
Response Not Provided
Ethics & Transparency ?
Why does this matter? A commitment to handling conflicts of interests is essential to creating an organizational culture of transparency. Boards should create and follow a policy for identifying and handling conflicts of interest, whether real or perceived. BoardSource recommends that organizations review the conflict-of-interest statement and require signed disclosures from all board members and senior staff on an annual basis.

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements within the past year?
Response Not Provided
Board Composition ?
Why does this matter? The best boards are composed of individuals who bring a variety of skills, perspectives, backgrounds, and resources to tackle the complex and strategic challenges confronting their organizations. BoardSource recommends that boards commit to diversity and inclusion by establishing written policies and practices, which include strategic and intentional recruitment of diverse board members, continual commitment to inclusivity, and equal access to board leadership opportunities.

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Response Not Provided
Board Performance ?
Why does this matter? Boards need to regularly assess their own performance. Doing so ensures that they are being intentional about how they govern their organization, which is a critical component of effective board leadership. BoardSource recommends that a board conduct a self-assessment of its performance a minimum of once every three years to ensure that it is staying on track with its roles and responsibilities.

Has the board conducted a formal, written self-assessment of its performance within the past three years?
Response Not Provided

Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

Highest Paid Employee data is not available for this organization.

People information was last updated by the nonprofit in March 2013

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Programs

Program: Bay Area Caregiver Resource Center (GuideStar Exchange,
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March 2013)

Budget:
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Program Description:

Bay Area Caregiver Resource Center: provides direct services to caregivers of the six Bay Area counties: San Francisco, San Mateo, Santa Clara, Alameda, Contra Costa and Marin. Through funds from the Department of Mental Health and National Family Caregiver Support Program, FCA can help caregivers with long-term planning, community resource referrals, support, legal consultations, short term counseling, respite care, educational classes, workshops and publications, as well as a caregiver retreat and a weekend camp for the care receiver. All services are free or on a sliding scale. Caregivers can call (800) 445-8106 or email info@caregiver.org for information or to speak with a family consultant.

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Program Success Examples:

Program: National Center on Caregiving (GuideStar Exchange,
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March 2013)

Budget:
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Program Description:

National Center on Caregiving: A program of Family Caregiver Alliance, the NCC is a central source of information and technical assistance on caregiving and long-term-care for policy makers, health and service providers, media, program developers, funders and families. NCC research and publications document emerging trends and caregiver needs and services throughout the country. The FCA Family Care Navigator, a first-of-its-kind, comprehensive, online guide to help families locate publicly-funded caregiver support programs in all 50 states is available at www.caregiver.org.

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Program Success Monitored by:

Program Success Examples:

Program: Link2Care (GuideStar Exchange,
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March 2013)

Budget:
--
Category:
Population Served:

Program Description:

Statewide Information and Support: FCA also developed and manages Link2Care, a password-protected online information and support program for California caregivers of an adult with dementia. Caregivers have access to the online discussion group and regularly updated website 24 hours a day 7 days a week.

Program Long-Term Success:

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Impact Summary from the Nonprofit

This organization has not provided an impact summary.

Expert Assessment

Family Caregiver Alliance has had a positive impact on the lives of family caregivers and has helped raise awareness of the issue of family caregiving. Read More »

Expert Reviews and Comments

2011 Philanthropedia Top Nonprofit

This organization is a 2011 Philanthropedia top nonprofit, recommended by experts as having high impact.

These expert reviews were generated through Philanthropedia's research methodology to identify high-impact nonprofits. Learn more

Evidence of Impact

Family Caregiver Alliance has had a positive impact on the lives of family caregivers and has helped raise awareness of the issue of family caregiving.

Strong Programs
Their impact is on national policy and programs. Nonprofit Senior Staff
This organization has produced over thirty years of leading edge consumer and professional education, academic research, policy, advocacy, and direct services and supports on behalf of family caregivers of the adult and aging population. They put the term family caregivers on the map. They have an incredibly strong finance base, leadership has been consistent, and programs such as the National Family Caregiver support program are a direct result of their leadership and modeling in the field through the CA Caregiver Resource Centers. Nonprofit Senior Staff
Raising Awareness
FCA has raised awareness about the concerns of family care giving at the local, state, and national levels. It has led the field in creating services, educating families, policymakers, professionals and others about the issue, articulating policy needs, and identifying the need for research, services, and public policy. Other
Great Resource for Other Programs
They are a wonderful resource in terms of national statistics on care giving and the impact of care giving on families. They also fund and recognize unique care giving support programs. Researcher and Faculty
Helpful to Family Caregivers
They have had a significant impact on addressing the needs of family caregivers and are one of the first in field to do so. They are data-driven and have a strong advocacy agenda. Foundation Professional
They are a key resource to use for finding stats on care giving, impact of care giving on quality of life, support for caregivers, including financial, emotional, respite, etc. They offer funding opportunities to support smaller agencies with care giving support programs. Researcher and Faculty
They have produced a lot of quality materials for caregivers and practitioners and have a lot of impact on policy. Foundation Professional
Understand Issues on the Ground
They are a very strong caregiver association. They have historical commitment to the issue. They understand the issues on the ground. Researcher and Faculty
Professional & Effective
My impression is that FCA is the most professional and effective of the national family caregiver organizations. Nonprofit Senior Staff
Set the Standard
They are a solid important organization that has set the standard. They are inclusive with a great web presence as well. Researcher and Faculty

Organizational Strengths

According to experts, Family Caregiver Alliance has provided high-quality research and advocacy programs. Its staff members have been commended for being knowledgeable and hard-working.

Skilled in Research and Advocacy
This organization has been around for 30 years and has had a great impact on national family care giving policy and programs. The agency has strong leadership, research and advocacy skills. Nonprofit Senior Staff
FCA has grown from a grass roots local program to a highly effective national leader. In doing so, it has nurtured and mentored new leadership—leaders in multiple fields and venues have “cut their teeth” at FCA. Their approaches to outreach and advocacy have served as a model for other non-profits for many years. They have for example set the bar in using Web technology. Other
Knowledgeable Staff
They have a top notch staff who is willing to make presentations at national and regional conferences. They are very well-informed about the care giving literature. Researcher and Faculty
They have a strong leadership and staff. Foundation Professional
Great Website
They have a great website and materials. Researcher and Faculty
Great Leadership and Staff
Strong Leader Researcher and Faculty

Areas for Improvement

Family Caregiver Alliance could increase its scope of effectiveness with more developed advocacy programs.

Stronger Focus on Advocacy
They could develop more grassroots base for policy advocacy, or they could open an office in DC to have more of a direct influence on national care giving policy. Nonprofit Senior Staff

From the Nonprofit

We are so honored to be included in the illustrious list of high-impact national organizations in aging, and we appreciate the recognition of FCA’s pioneering programs and services! Although we have grown in many ways, our history reflects our focus on supporting families on their caregiving journey.

In 1977, before “Alzheimer’s” was a household word and decades before the stresses of family caregiving were recognized in the media, a grassroots San Francisco organization called Family Survival Project saw the need for support services for families coping with the effects of traumatic brain injury, stroke, “senile dementia,” Parkinson’s disease and other chronic and debilitating ailments that affected adults.

These conditions robbed individuals of their independence, their incomes, and their productivity, and they robbed their families of companionship, freedom and financial security. The illnesses received little public recognition and were discussed in whispers among family members.

Much has changed in the 30+ years since then. Family Survival Project became Family Caregiver Alliance, the first community-based nonprofit organization to systematically address the needs of families providing long-term care at home. FCA was the model for a statewide system of Caregiver Resource Centers—the first in the country--and model for caregiver support programs nationally.

FCA initiated services, educational programs and publications based on expressed caregiver needs; all services are free or low-cost. As one of the earliest social service agencies to utilize the Internet, the website offers a wealth of caregiving advice and resources, fact sheets, research reports, policy updates, newsletters, discussion groups, and the Family Care Navigator.

In 2001, the National Center on Caregiving was established at Family Caregiver Alliance to advance the development of high-quality, cost-effective policies and programs for caregivers in every state in the country.

Read what the experts said about Family Caregiver Alliance HERE. To learn more about FCA, visit the website at www.caregiver.org.
— Submitted November 02, 2011 at 12:03 AM
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