Basic Organization Information
PARKINSONS ACTION NETWORK FOUNDATION
- Also Known As:
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PAN
- Physical Address:
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Washington, DC
20005
- EIN:
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94-3172675
- Web URL:
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www.parkinsonsaction.org
- NTEE Category:
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E Health—General & Rehabilitative
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E05 Research Institutes and/or Public Policy Analysis
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G Disease, Disorders, Medical Disciplines
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G99 Diseases, Disorders, Medical Disciplines N.E.C.
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H Medical Research
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H96 Neurology, Neuroscience
- Year Founded:
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1991
- Ruling Year:
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1993
- How This Organization Is Funded:
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Michael J Fox Foundation for Parkinson's Research - $250,000
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Parkinson Disease Foundation - $200,000
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Parkinson's Unity Walk - $175,000
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Mission Statement
<p align="left"><strong>PAN is the Unified Voice of the Parkinson’s Community</strong></p>
<p align="left">The Parkinson’s Action Network (PAN) is the unified education and advocacy voice of the Parkinson’s community – fighting to find a cure. Through education and interaction with the Parkinson’s community, scientists, policy and opinion leaders, as well as the public at large, PAN advocates for an increased and accelerated investment of public resources to find a cure for the more than 1 million Americans who have Parkinson’s disease.</p>
Impact Summary from the Nonprofit
<div>In 2009, PAN made important progress: </div>
<ul>
<li><strong><u>End Restrictions on Federal Funding for Human Embryonic Stem Cell Research:</u></strong> CEO Amy Comstock Rick met with President Obama’s transition team to ensure that they heard the voice of the Parkinson’s community, urging him to overturn the prior Administration’s funding restrictions on embryonic stem cell research. President Obama issued an Executive Order on March 9, 2009 that lifted the prior Administration’s restrictive policy on embryonic stem cell research, and is a major step forward for the Parkinson’s disease community and many other disease communities throughout the country.</li>
<li><strong><u>The National MS and Parkinson’s Disease Registries:</u></strong> Working closely with our champions in Congress, a bill was introduced that requires the Centers for Disease Control (CDC) to develop coordinated, separate national systems to collect and store existing Multiple Sclerosis and Parkinson’s disease data on incidence and prevalence. The information collected through the registries will provide a foundation for evaluating and understanding many factors of the disease. This legislation will give our community, for the first time, data on who has Parkinson’s and where they are located in this country.</li>
<li> <strong><u>Support Vietnam Veterans with Parkinson’s Disease:</u></strong> PAN worked with U.S. Military Veterans with Parkinson’s Disease to support veterans exposed to Agent Orange living with Parkinson’s disease. In October 2009, the Secretary of Veterans Affairs announced that Parkinson’s disease will receive a presumption of service connection for disabled Vietnam veterans living with Parkinson’s disease. Now, Vietnam veterans applying for disability benefits with Parkinson’s disease will not have to prove an association between their illness and military service.</li>
</ul>
Revenue and Expenses
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Balance Sheet
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Leadership
Ms. Amy Comstock Rick, J.D.
Term:
Since
Jan
2003
Profile:
Amy Comstock Rick is the chief executive officer of Parkinson's Action Network. Before joining PAN in 2003, she served as the sixth Director of the U.S. Office of Government Ethics, having accepted the nomination to the Senate-confirmed position in 1999. Prior to her appointment to the Office of Government Ethics, Mrs. Rick was Associate Counsel to the President in the White House Counsel's Office. Mrs. Rick began her federal service as an attorney at the U.S. Department of Education in 1988; she ended her tenure there in 1998 as Assistant General Counsel for Ethics. Mrs. Rick began her professional career at the law firm of Beveridge & Diamond. She received a Bachelor of Arts degree from Bard College and a Juris Doctor degree from the University of Michigan.
Highest Paid Employees & Their Compensation
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Program:
PAN Forum
- Budget:
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$356,386
- Category:
-
- Population Served:
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General Public/Unspecified
Program Description:
PAN hosts an annual Research & Public Policy Forum in Washington, D.C. PAN's Research & Public Policy Forum serves as a premier educational program for Parkinson's physicians, patients, researchers as well as leaders in the Parkinson's community. The primary goal of the Forum is to bring together these various stakeholders so that they can share information and learn about the latest developments in Parkinson's research. Through plenary sessions, workshops and networking opportunities, participants will learn about the latest research and discuss creative ideas for new research endeavors. Fundamental to the success of the Forum is the premise that visiting scientists and researchers can learn from each other and from Parkinson's patients and caregivers. Approximately 600 people are expected to participate in PAN's 2009 Forum (March 15-17, 2009) 300 will participate in person at the L'Enfant Plaza Hotel in Washington, DC and another 300 via webcast.
PAN also sponsors the Morris K. Udall Awards Dinner, named in honor of the late U.S. Representative Morris K. "Mo" Udall, who struggled with Parkinson's disease. The 16th Annual Morris K. Udall Awards Dinner will be held on October 20, 2009 at the Capital Hilton in Washington, DC. This annual event is PAN's only fundraiser and it raises significant unrestricted support dollars for PAN's work. NPR host Diane Rehm and her husband John Rehm will once again be the co-chairs of the 16th Annual Morris K. Udall Awards Dinner joined by Michael J. Fox as Honorary Dinner Chairman.
Program Long-Term Success:
In just the past year alone, the generous support of donors like you has helped PAN to make important strides toward our ultimate goal of finding better treatments and a cure for Parkinson?s disease. Your support helped us to:
Obtain a 25 percent increase over last year's funding for the Neurotoxin Exposure Treatment Research Parkinson's (NETRP) program at the Department of Defense a hugely successful and important Parkinson's disease specific research program. This was PAN's top priority this year and because of the e-mails, phone calls, and meetings that our advocates initiated throughout the year, the Parkinson's disease community successfully secured $25 million for the NETRP program for Fiscal Year (FY) 2009.
Secure an additional $150 million for the Food and Drug Administration (FDA). PAN strongly supports adequate federal funding for the FDA in order to hasten the discovery and review of much-needed new treatments and a cure for Parkinson's disease. This year, PAN was the first patient advocacy group to ask lawmakers for increased resources for FDA. Working in conjunction with other disease organizations, we achieved a $150 million increase for FDA in the Continuing Resolution.
Program Short-Term Success:
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Program Success Examples:
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