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PARKINSONS ACTION NETWORK FOUNDATION

AKA PAN

Washington, DC

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PARKINSONS ACTION NETWORK FOUNDATION

Also Known As:
PAN
Physical Address:
Washington, DC 20005 
EIN:
94-3172675
Web URL:
www.parkinsonsaction.org
Leadership:
Ms. Amy Comstock Rick, J.D.
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Legitimacy Information

  • This organization is registered with the IRS.
  • This organization is required to file an IRS Form 990 or 990-EZ.

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Forms 990 from IRS Additional Information IRS Form 990 is an annual document used by approximately one-third of all public charities to report information about their finances and operations to the federal government. GuideStar uses data from Form 990 to populate its database with financial information about nonprofit organizations. Posting Form 990 images on the GuideStar Web site is an ongoing process.

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Annual Revenue & Expenses Additional Information Financial information on GuideStar is either digitized from Form 990 images we receive from the IRS or submitted by the nonprofits themselves through the GuideStar Exchange (990 filers cannot override Form 990 financial data). If your organization does not file a Form 990, 990-EZ, or 990-PF and you would like to have your financial data displayed in this section, join the GuideStar Exchange today!

Fiscal Year Starting: Jan 1, 2008
Fiscal Year Ending: Dec 31, 2008
Revenue
Total Revenue $1,808,395
Expenses
Total Expenses $1,697,539

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Financial data from Forms 990 for Year 2011, 2010, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.



GuideStar Exchange Member

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Basic Organization Information

PARKINSONS ACTION NETWORK FOUNDATION

Also Known As:
PAN
Physical Address:
Washington, DC 20005 
EIN:
94-3172675
Web URL:
www.parkinsonsaction.org 
NTEE Category:
E Health—General & Rehabilitative 
E05 Research Institutes and/or Public Policy Analysis 
G Disease, Disorders, Medical Disciplines 
G99 Diseases, Disorders, Medical Disciplines N.E.C. 
H Medical Research 
H96 Neurology, Neuroscience 
Ruling Year:
1993 
How This Organization Is Funded:
Michael J Fox Foundation for Parkinson's Research - $250,000
Parkinson Disease Foundation - $200,000
Parkinson's Unity Walk - $175,000

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Mission Statement

PAN is the Unified Voice of the Parkinson’s Community The Parkinson’s Action Network (PAN) is the unified education and advocacy voice of the Parkinson’s community – fighting to find a cure. Through education and interaction with the Parkinson’s community, scientists, policy and opinion leaders, as well as the public at large, PAN advocates for an increased and accelerated investment of public resources to find a cure for the more than 1 million Americans who have Parkinson’s disease.

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.

Financial Data

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Revenue and Expenses

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Revenue and Expense data from Forms 990 for 2011, 2010, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart


Balance Sheet

Balance Sheet data from Forms 990 for Year 2011, 2010, 2009, 2008, 2007 are included in the GuideStar Premium Report. Upgrade Now Report Added To Cart

A multi-year analysis of key balance sheet, income statement, profitability and liquidity measures is available for this organization. Financial SCAN includes a detailed financial health analysis and peer comparison and benchmarking tool. Learn More

Financial SCAN

Financial SCAN

Key Financial SCAN Features

  • Financial Health Dashboard: Highlights key financial trends and ratios for a selected nonprofit organization over a period of up to five years.
  • Peer Comparison Dashboard: Compares the organization's financials with up to five peer nonprofits that you select.
  • Graphical Analysis: Provides multi-year graphs and an interpretive guide in a format ready to present to your clients.
  • Printable PDF Report: Provides a complete analysis of the organization for your records. The full report tells you what to look for and why it matters.
  • Advanced Search: Allows you to search by EIN (Employer Identification Number), organization name, city, state, revenue, expenses, and assets.


Forms 990 Provided by the Nonprofit

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Financial Statements

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Annual Reports

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Leadership (GuideStar ExchangeThe GuideStar Exchange allows nonprofits to regularly update key information directly to GuideStar. It provides richer and broader information about their programs, impact, finances, people and more. May, 2012)

Ms. Amy Comstock Rick, J.D.

Term:

Since Jan 2003

Profile:

Amy Comstock Rick is the chief executive officer of Parkinson's Action Network. Before joining PAN in 2003, she served as the sixth Director of the U.S. Office of Government Ethics, having accepted the nomination to the Senate-confirmed position in 1999. Prior to her appointment to the Office of Government Ethics, Mrs. Rick was Associate Counsel to the President in the White House Counsel's Office. Mrs. Rick began her federal service as an attorney at the U.S. Department of Education in 1988; she ended her tenure there in 1998 as Assistant General Counsel for Ethics. Mrs. Rick began her professional career at the law firm of Beveridge & Diamond. She received a Bachelor of Arts degree from Bard College and a Juris Doctor degree from the University of Michigan.



Officers for Fiscal Year (IRS Form 990)

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Highest Paid Employees & Their Compensation (IRS Form 990)

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Program: PAN Forum

Budget:
$356,386
Category:
Population Served:
General Public/Unspecified

Program Description:

PAN hosts an annual Research & Public Policy Forum in Washington, D.C. PAN's Research & Public Policy Forum serves as a premier educational program for Parkinson's physicians, patients, researchers as well as leaders in the Parkinson's community.  The primary goal of the Forum is to bring together these various stakeholders so that they can share information and learn about the latest developments in Parkinson's research. Through plenary sessions, workshops and networking opportunities, participants will learn about the latest research and discuss creative ideas for new research endeavors. Fundamental to the success of the Forum is the premise that visiting scientists and researchers can learn from each other and from Parkinson's patients and caregivers. Approximately 600 people are expected to participate in PAN's 2009 Forum (March 15-17, 2009) 300 will participate in person at the L'Enfant Plaza Hotel in Washington, DC and another 300 via webcast. PAN also sponsors the Morris K. Udall Awards Dinner, named in honor of the late U.S. Representative Morris K. "Mo" Udall, who struggled with Parkinson's disease. The 16th Annual Morris K. Udall Awards Dinner will be held on October 20, 2009 at the Capital Hilton in Washington, DC. This annual event is PAN's only fundraiser and it raises significant unrestricted support dollars for PAN's work. NPR host Diane Rehm and her husband John Rehm will once again be the co-chairs of the 16th Annual Morris K. Udall Awards Dinner joined by Michael J. Fox as Honorary Dinner Chairman.

Program Long-Term Success:

In just the past year alone, the generous support of donors like you has helped PAN to make important strides toward our ultimate goal of finding better treatments and a cure for Parkinson?s disease. Your support helped us to:  Obtain a 25 percent increase over last year's funding for the Neurotoxin Exposure Treatment Research Parkinson's (NETRP) program at the Department of Defense a hugely successful and important Parkinson's disease specific research program. This was PAN's top priority this year and because of the e-mails, phone calls, and meetings that our advocates initiated throughout the year, the Parkinson's disease community successfully secured $25 million for the NETRP program for Fiscal Year (FY) 2009.  Secure an additional $150 million for the Food and Drug Administration (FDA). PAN strongly supports adequate federal funding for the FDA in order to hasten the discovery and review of much-needed new treatments and a cure for Parkinson's disease. This year, PAN was the first patient advocacy group to ask lawmakers for increased resources for FDA. Working in conjunction with other disease organizations, we achieved a $150 million increase for FDA in the Continuing Resolution.

Program Short-Term Success:

Program Success Monitored by:

Program Success Examples:



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Impact Summary from the Nonprofit

In 2009, PAN made important progress:  CEO Amy Comstock Rick met with President Obama’s transition team to ensure that they heard the voice of the Parkinson’s community, urging him to overturn the prior Administration’s funding restrictions on embryonic stem cell research. President Obama issued an Executive Order on March 9, 2009 that lifted the prior Administration’s restrictive policy on embryonic stem cell research, and is a major step forward for the Parkinson’s disease community and many other disease communities throughout the country.  Working closely with our champions in Congress, a bill was introduced that requires the Centers for Disease Control (CDC) to develop coordinated, separate national systems to collect and store existing Multiple Sclerosis and Parkinson’s disease data on incidence and prevalence. The information collected through the registries will provide a foundation for evaluating and understanding many factors of the disease. This legislation will give our community, for the first time, data on who has Parkinson’s and where they are located in this country.   PAN worked with U.S. Military Veterans with Parkinson’s Disease to support veterans exposed to Agent Orange living with Parkinson’s disease. In October 2009, the Secretary of Veterans Affairs announced that Parkinson’s disease will receive a presumption of service connection for disabled Vietnam veterans living with Parkinson’s disease. Now, Vietnam veterans applying for disability benefits with Parkinson’s disease will not have to prove an association between their illness and military service.

Expert Reviews and Comments

These expert reviews were generated through Philanthropedia's research methodology to identify high-impact nonprofits. Learn more


Evidence of Impact

There are no summaries available for this organization.

The Parkinson's Action Network Foundation is excellent at promoting their mission and reaching out to the community most in need of the information and networking they provide. Foundation Professional

Organizational Strengths

There are no summaries available for this organization.

The Director of Development and Communications is the best I have witnessed in the field. Their website and events are well-coordinated and extremely successful. Foundation Professional

Areas for Improvement

There are no summaries available for this organization.

It would be great if more people knew about PAN. Foundation Professional

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