Disease, Disorders, Medical Disciplines

Parent To Parent of Vermont

  • Williston, VT
  • http://www.partoparvt.org

This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.


This organization's exempt status was automatically revoked by the IRS for failure to file a Form 990, 990-EZ, 990-N, or 990-PF for 3 consecutive years. Further investigation and due diligence are warranted.

Mission Statement

Parent to Parent of Vermont was founded as a statewide organization to help parents with children who have an illness or disability find the support they need from other parents, health care professionals, and the communities in which they live. For almost two decades, we have developed and expanded our programs, partnerships, and outreach to provide a variety of services to help parents of children with special needs ranging from Down Syndrome to cystic fibrosis to ADHD. In fact, of the thousands of families served, these children have one of over 350 different diagnoses, some more common and some extremely rare. Our staff support families, teach family-centered care, champion for system and policy change, coordinate early intervention services, mentor volunteer supporting parents, teach medical students and pediatric residents, plan conferences, publish guidance materials, and fundraise.

ruling year

1989

Principal Officer

Self-reported

Julie Arel

Keywords

Self-reported

children with disability, special needs, special health care need, CSHN, Vermont, VT, parent, peer support, disabled children, parent support, parent leadership, parents as teachers, family support, family centered care, family-centered, Parent to Parent, Parent to Parent of Vermont, one to one match, parent match, rare diagnosis, family faculty, advocacy

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EIN

03-0317213

Contact

Cause Area (NTEE Code)

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Alliance/Advocacy Organizations (P01)

Alliance/Advocacy Organizations (G01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Parent to Parent programs include Family Support, Family Infant & Toddler Program of Chittenden County, Family Faculty, and Family Voices of Vermont. Our staff implement programs, support families, teach family-centered care, champion for system and policy change, coordinate early intervention services, mentor supporting parents, train families as faculty, plan conferences, publish guidance materials, and fundraise. Family support is the foundation of Parent to Parent's mission and the primary reason family members call Parent to Parent. Family Support Coordinators respond to phone calls and share information and community resources, as well as match families with trained parent volunteers (Supporting Parents) to get the emotional support they need to break free of their isolation and receive valuable input to their questions and concerns. Our staff members are trained to respond to a variety of needs, depending on whether a parent is calling at the early stages of their child?s diagnosis, throughout the journey of adjustment to the dynamics a special need brings to the family, or during transitions, crisis situations and celebrations for the family. The Family, Infant and Toddler Program is a family-centered, coordinated system of early intervention services for families with children from birth to age 3 who have developmental delays or a health condition which may lead to a delay in development. Early intervention services are coordinated to occur in natural environments such as the home and early care and education programs where children without disabilities also participate. The intention is to integrate therapeutic interventions that are interesting and functional into the daily routines of the children and families in an as seamless-to-the-child-as-possible manner. Parent to Parent of Vermont has developed a national reputation for helping the medical community focus on an educational principle referred to as "family-centered care." The core values of family-centered care emphasize the partnership between families and professionals in caring for children with special needs through the intentional practice of open and honest communication, mutual respect, and thoughtful collaboration. Family-centered care is being taught through Parent to Parent's Family Faculty Programs in conjunction with the University of Vermont College of Medicine and Vermont Children's Hospital at FAHC. Families are the faculty, including parents, children, and siblings, teaching first and third year medical students, pediatric residents, and other allied health professionals. These learning experiences provide future and practicing professionals with opportunities to meet children and their family members outside a clinical setting to gain a new perspective on families' challenges, strengths, and beliefs. Family Voices, as a family support program of Parent to Parent of Vermont, advocates for system change and provides health care information to families. It is driven by a grassroots network of families and professionals, who are advocates for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs. Through public awareness efforts, including the Vermont Legislature, we promote the inclusion of all families as decision makers at all levels of health care, and support essential partnerships between families and professionals.

Category

Population(s) Served

Budget

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

PARENT TO PARENT OF VERMONT
Fiscal year: Jul 01-Jun 30
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Parent To Parent of Vermont

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2011, 2010 and 2009
  • Board Members
  • Access to the GuideStar Community
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

Principal Officer

Julie Arel

Governance

BOARD LEADERSHIP PRACTICES

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RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?