Education

Tick-Borne Disease Alliance

  • New York, NY
  • www.turnthecorner.org

This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

Mission Statement

Turn the Corner is dedicated to the support of research, education, awareness and innovative treatments for Lyme disease and other tick-borne diseases.

ruling year

2002

Principal Officer

Source: IRS Form 990

STACI GRODIN

Keywords

Self-reported

lyme disease, tick-borne disease

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EIN

03-0392311

 Number

2321945071

Also Known As

TTC

Contact

Cause Area (NTEE Code)

Education N.E.C. (B99)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Since the inception of the Foundation, we have made a variety of grants to several organizations, including the International Lyme and Associated Diseases Society (ILADS), the Lyme Disease Association (LDA) and Columbia University. We continue to closely monitor these programs and are happy to report that they continue to be successful in creating awareness and education to the general public as well as physicians worldwide. Recent developments in the programs we have funded include a study by prominent Lyme disease researcher, Alan MacDonald. Alan has been studying DNA recovered from Alzheimer?s disease tissue. His preliminary findings revealed that brain tissue from seven of ten unrelated individuals who had lived and died with Alzheimer?s disease shared spirochetal (i.e. Lyme bacteria) DNA sequences which appeared to have inserted themself (by transfection) into the brains of the individuals who subsequently died with Alzheimer?s disease. Alan received a standing ovation at the recent ILADS/LDA conference in Pennsylvania for these outstanding research findings. We plan on continuing to support Alan?s work in this area and are currently funding phase 2 of this research through St. Catherine of Siena Medical Center in Smithtown, Long Island. We are excited to expand our physicians' training program to include even more trainees in 2006. To date, dozens of doctors from all over the world have participated the past two years in this unique program. These doctors have already had the opportunity to study under top Lyme-literate doctors, including Dr. Ray Stricker, Dr. Joseph Burrascano, Jr., Dr. Charles Ray Jones and others. We look forward to being able to train more doctors and educate them about Lyme disease so they can in turn help treat Lyme and other tick-borne illnesses in their home communities. We have also granted funds to help major insurance carriers understand the needs of Lyme patients. The goal of this grant was to advance the understanding of the diagnosis and treatment of chronic Lyme disease for the medical staff of major medical insurance companies in Pennsylvania. currently underway all across the country. Additionally, VABC has been working on a new initiative aimed at helping patients and families handle and make informed choices about treatment for brain cancer. One of the most difficult aspects of being diagnosed with this disease is the scarcity of information available that explains the treatment options in an understandable way to non-physicians. As such, VABC is also currently putting together an information kit to be distributed to new patients upon diagnosis. Our hope is that this kit may provide some solace for both patients and family members during this most difficult time. We are pleased to announce that we will be funding Dr. Rosenfeld's program at the Brain Tumor Center at Columbia University with a two year grant of over $150,000 this year. As the Center's programs develop from this funding we will update you on their progress. Congratulations to Dr. Rosenfeld and his team! The information kit is still being developed and finalized by a team of social workers, medical professionals and hospital administrators. This kit will be first developed for hospitals in New York, but at a later date VABC envisions rolling out a similar kit for patients all across the country. The kit will include information about: current treatment options, social support services, alternative therapies, interesting articles and fun games for kids to play with that will teach them more about their diagnosis in a fun and innovative way, local places to eat, sleep and stay, and other pertinent information developed exclusively for brain tumor patients and their families. We hope to have this program up and running by the beginning of 2007. We will be collaborating with The Brain Tumor Center at Columbia University once again to bring this program to the public.

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Financials

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TICK-BORNE DISEASE ALLIANCE FKA TURN THE CORNER FOUNDATION
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Tick-Borne Disease Alliance

Leadership

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Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2015, 2014 and 2013
  • Access to the GuideStar Community
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Principal Officer

STACI GRODIN

Governance

BOARD LEADERSHIP PRACTICES

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BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


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CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


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BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?