Human Services

The Association For Community Living Inc.

  • Springfield, MA
  • www.TheAssociationInc.org

Mission Statement

The Association For Community Living’s mission is to create opportunities, build relationships and improve lives for children and adults with developmental disabilities and for others who will benefit from our services.

Main Programs

  1. Residential Supports Division
  2. Specialized Home Care Division
  3. Family Services Division
  4. Whole Children
  5. Milestones
  6. Community Resources for People with Autism
  7. Down Syndrome Resource Group of Western Mass.
  8. Ultimate Sports Program
  9. Valley Tees
Service Areas

Self-reported

Massachusetts

The Association serves children, teens, adults and their families living in 68 cities & towns throughout Western Massachusetts (Berkshire, Franklin, Hampden, Hampshire, & Worcester Counties). Services are provided in our regional offices: Hadley,MA (Inclusive Community Center - Whole Children, Milestones, Family Empowerment), Easthampton,MA (Community Resources for People with Autism), Greenfield,MA (Residential Supports (RS), Employment Supports), Pittsfield,MA (Specialized Home Care (SHC), Community Resources), and Springfield,MA (RS, SHC, Down Syndrome Resource Group, Intensive Residential Services, USP, & Admin.)

ruling year

1954

Principal Officer since 2008

Self-reported

Barbara T. Pilarcik

Keywords

Self-reported

Autism Spectrum Disorder,DownSyndrome,Mental Retardation,developmental,children,Aspergers,residential,employment,support,medical,foster care,Shared Living,Individuals,Families,Disabilities,BrainInjury

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EIN

04-2210685

 Number

4617105935

Physical Address

220 Brookdale Drive

Springfield, MA 01104 3210

Also Known As

The Association, ACL, TAFCL

Contact

Cause Area (NTEE Code)

Children's and Youth Services (P30)

Family Services (P40)

Alliance/Advocacy Organizations (O01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

The Association fulfills the needs of 722 families and over 872 children and adults with an autism spectrum disorder, Down syndrome, Fragile X syndrome, mental retardation, intellectual disability, cerebral palsy and other developmental disabilities with and without complex medical needs. Throughout their lifetime we provide them innovative and customized services, so they can live, learn, work, and enjoy healthy relationships in their community as valued members. Our goal is to provide services that promote dignified community living for these children and adults and support for their families. We serve people of all ages, talents, and interests. Some live with their families, some live in homes that we support, and some live on their own. Services are provided in 68 cities and towns in Western Massachusetts and northern Worcester County and 1 other state.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Residential Supports Division

This Division is made up of three programs:

RESIDENTIAL SUPPORTS
Residential Supports provides staff support and assistance with housing arrangements to individuals with developmental disabilities so that they can live with the rights and responsibilities afforded all citizens in the community of their choice. The variety of housing options and range of supports adjust to the age of the individual served – whether nineteen or ninety-nine – and the level of support needed – from a few hours a week to 24 hours a day. Please enjoy video at: https://www.youtube.com/watch?v=6Xlz0bbjBHg&list=UUdSkxrQXbT6-lN6uckpp3fg

INTENSIVE RESIDENTIAL SERVICES
Established in 1979, Intensive Residential Services was the first community-based program of its type in Massachusetts. Residences were created so that adults with complex needs can have a home in the community where around-the-clock staff can meet their medical needs, give them individual attention, and help them realize their full potential.

Our homes make it possible for adults with developmental and health-related issues to receive the services they need while living in a safe, dignified, family-like setting within the community. Our single intent is to create a home that enables each individual to live a meaningful and fulfilling life. We achieve this by empowering each person to be actively involved in their household and community. Please enjoy video at: https://www.youtube.com/watch?v=Iph0upmBZbU&list=UUdSkxrQXbT6-lN6uckpp3fg

EMPLOYMENT SUPPORTS
This program provides work-related and social skills training to individuals with developmental disabilities that results in meaningful paid work and volunteer placements. We help individuals develop their potential and become contributing members of their community.

Category

People/Families with of People with Developmental Disabilities

Population(s) Served

Mentally/Emotionally Disabled

Adults

Aging/Elderly/Senior Citizens

Budget

Program 2

Specialized Home Care Division

This Division is made up of three programs: Adult Family Care, Intensive Foster Care and Shared Living.

Through Specialized Home Care individuals with developmental disabilities benefit from strong, lasting, meaningful relationships with a family and strong involvement in the community. The people we are privileged to serve are of all ages and abilities.  Although they all have some degree of intellectual disability many have additional behavioral or learning impairments.  They may have severe medical involvements or physical disabilities, or they may function with little or no assistance. 

Our highly skilled staff have considerable expertise in addressing these issues and access to a pool of clinical and behavioral consultants.  And we select and train our in-home care providers very carefully. Pioneered by Specialized Home Care, shared living is a program that matches individuals with developmental disabilities with families in the community so that they can develop and grow in the privacy and dignity of a natural living situation and experience the normal activities of family life and community life.
Shared living enriches the lives of all who are involved.  The potential of individuals with developmental disabilities is maximized when they are able to live in private homes, where they develop lasting meaningful relationships and learn to be as independent and as integrated into the community as possible. Individuals and care providers make a good match. 
Please see video at: https://www.youtube.com/watch?v=in6hxYtkut8&list=UUdSkxrQXbT6-lN6uckpp3fg

The matching process is individual centered and if a caregiver with qualities compatible with the needs and personality of the individual is not available, a specific recruitment effort is made.  Care providers care for individuals with developmental disabilities either in their own homes or in the home of the individual.  Prior to beginning to provide services, they receive six weeks of training based upon national standards.  This training helps them to understand the importance of community integration, the history of developmental disabilities, working as a team, and their role in establishing a successful relationship. Individuals benefit from highly individualized, flexible assistance.  Expanded opportunities increase their self-confidence and independence.  And just as the individuals served learn, develop skills, and enjoy personal growth within lasting, meaningful relationships, so do their care providers.
Please see video at: https://www.youtube.com/watch?v=M_fpL0yrERI&list=UUdSkxrQXbT6-lN6uckpp3fg

Category

People/Families with of People with Developmental Disabilities

Population(s) Served

Mentally/Emotionally Disabled

Adults

Children and Youth (infants - 19 years.)

Budget

Program 3

Family Services Division

This Division is comprised of four programs:

1. COMMUNITY RESOURCES FOR PEOPLE WITH AUTISM
Community Resources was founded in 1989 by parents of children with autism. Community Resources for People with Autism provides support, information, and practical help for individuals with an Autism Spectrum Disorder and their families living in Western Massachusetts.

This program helps families, schools, professionals, agencies and communities understand autism, promotes the well-being of individuals with autism, and fosters their inclusion in the community.

2. DOWN SYNDROME RESOURCE GROUP OF WESTERN MASSACHUSETTS
The Down Syndrome Resource Group of Western Massachusetts was started in September 1999 by parents who had a common interest in sharing information and resources in caring for their children with Down syndrome. The group provides information about family support, resources, parent training, and social opportunities.

3. INCLUSIVE COMMUNITY CENTER
The Inclusive Community Center is home to Family Empowerment, Whole Children, and Milestones. Family Empowerment offers support, resources and information, while Whole Children and Milestones offer enrichment, recreation and social programs for kids and adults of all abilities.

Family Empowerment
This program provides Information, resources, referral. They also provide Activities, programs and social events for children, adults and families. Additionally, they provide Trainings and workshops on topics across the lifespan and support/informal networking.

Whole Children
Whole Children offers programs and classes for children from toddler through teens with a range of abilities. They offer classes, small group lessons, and team and outdoor sports. Our classes incorporate social skills training and practice.

Milestones
This program features a full roster of movement, recreation and enrichment programs for adults with disabilities. Weekly evening classes are offered and focus on recreation, social events, movement, performing arts, self-advocacy and more

4. ULTIMATE SPORTS PROGRAM
This program is a social inclusion through sports program. The goal of this program is to teach sports to kids with disabilities alongside their friends of all abilities.

Category

People/Families with of People with Developmental Disabilities

Population(s) Served

Mentally/Emotionally Disabled

Children and Youth (infants - 19 years.)

Adults

Budget

Program 4

Whole Children

Whole Children
A program of the Family Services Division of The Association For Community Living located within the Inclusive Community Center in Hadley, Massachsuetts. See the Family Services Division section for more information. Also visit http://www.theassociationinc.org/index.php?section=divisions-programs_family-services.

Category

People/Families with of People with Developmental Disabilities

Population(s) Served

Mentally/Emotionally Disabled

Children and Youth (infants - 19 years.)

Adults

Budget

Program 5

Milestones

Milestones
A program of the Family Services Division of The Association For Community Living located within the Inclusive Community Center in Hadley, Massachsuetts. See the Family Services Division section for more information. Also visit http://www.theassociationinc.org/index.php?section=divisions-programs_family-services.

Category

People/Families with of People with Developmental Disabilities

Population(s) Served

Mentally/Emotionally Disabled

Youth/Adolescents only (14 - 19 years)

Adults

Budget

Program 6

Community Resources for People with Autism

Community Resources for People with Autism
A program of the Family Services Division of The Association For Community Living located in Easthampton, Massachusetts. See the Family Services Division section for more information. Also visit http://www.theassociationinc.org/index.php?section=divisions-programs_family-services

Category

People/Families with of People with Developmental Disabilities

Population(s) Served

Mentally/Emotionally Disabled

Children and Youth (infants - 19 years.)

Adults

Budget

Program 7

Down Syndrome Resource Group of Western Mass.

Down Syndrome Resource Group of Western Mass.
A program of the Family Services Division of The Association For Community Living located in Springfield, Massachusetts. See the Family Services Division section for more information. Also visit http://www.theassociationinc.org/index.php?section=divisions-programs_family-services

Category

People/Families with of People with Developmental Disabilities

Population(s) Served

Mentally/Emotionally Disabled

Children and Youth (infants - 19 years.)

Adults

Budget

Program 8

Ultimate Sports Program

Ultimate Sports Program
A program of the Family Services Division of The Association For Community Living located in Springfield, Massachusetts. See the Family Services Division section for more information. Also visit http://www.theassociationinc.org/index.php?section=divisions-programs_family-services

Category

People/Families with of People with Developmental Disabilities

Population(s) Served

Mentally/Emotionally Disabled

Children and Youth (infants - 19 years.)

Young Adults (20-25 years) -- currently not in use

Budget

Program 9

Valley Tees

Valley Tees
A social enterprise business of The Association For Community Living located in Greenfield, Massachusetts, it offers job and skills training offering a sense of identity to the individuals who work there and to the community it serves. Since 1995, Valley Tees has been a strong local business in Greenfield, Massachusetts preparing promotional products for schools, businesses, and civic organizations from New England to Georgia. No distance is too far. For more information or to place an order, visit http://ValleyTees.org.

Category

Small & Minority Business Development Programs

Population(s) Served

Mentally/Emotionally Disabled

General Public/Unspecified

Adults

Budget

Service Areas

Self-reported

Massachusetts

The Association serves children, teens, adults and their families living in 68 cities & towns throughout Western Massachusetts (Berkshire, Franklin, Hampden, Hampshire, & Worcester Counties). Services are provided in our regional offices: Hadley,MA (Inclusive Community Center - Whole Children, Milestones, Family Empowerment), Easthampton,MA (Community Resources for People with Autism), Greenfield,MA (Residential Supports (RS), Employment Supports), Pittsfield,MA (Specialized Home Care (SHC), Community Resources), and Springfield,MA (RS, SHC, Down Syndrome Resource Group, Intensive Residential Services, USP, & Admin.)

Funding Needs

State funding provides TheAssociation with the resources to maintain stable and reliable services for theindividuals we serve over their lifetimes. However, state funding does not provide for new, innovative, flexible,or entrepreneurial programs. Nor does it provide sufficient resources for theincreasing needs for new families with children recently diagnosed with adevelopmental disability.  Youngerfamilies are looking for flexible, individualized services to better integratetheir family members with developmental disabilities into the community, thehome, and family life – whether it is providing them with social skills tonavigate the workplace or ways to advocate for their children with autism inthe school system.  With your financialsupport, we can develop and test new initiatives that directly meet families’greatest stated needs.  Please join us sothat together we can improve lives and together we can achieve the heart of ourmission each and every day.

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

THE ASSOCIATION FOR COMMUNITY LIVING INC
Fiscal year: Jul 01-Jun 30
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

The Association For Community Living Inc.

Leadership

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Principal Officer

Barbara T. Pilarcik

STATEMENT FROM THE Principal Officer

"A Message from the Executive Director and Board President
Merriam Webster dictionary defines transcendence as "exceeding usual limits: surpassing; extending or lying beyond the limits of ordinary experience." As we embark on the celebration of our 60th year, we would like to propose that the 60 years of The Association For Community Living are an Arc of Transcendence.
In 1952, five mothers had the idea that their children with developmental disabilities should remain at home and be part of their family and community. This idea was contrary to the societal norms of the time; Massachusetts contained large state institutions where adults and children spent their entire lives in terrible conditions.
But 60 years ago these founding mothers decided to move in the opposite direction. With courage and a willingness to go beyond their usual limits, they brought their children home and back into the community. Over time, they built a network of their families and friends who cared about their children, a network that expanded and arced 60 years into the future.

And so here we are in 2012, a year of historic milestones for The Association. This year we pushed beyond our ordinary experiences when we moved to new headquarters at 220 Brookdale Drive in Springfield, MA. Our dedicated staff exceeded the usual limits when they confronted another major weather event on October 30 and were able to lovingly care for those we serve despite no electricity for up to eight straight days and relocate others as far away as Berkshire County. We also opened a new home in Hadley, MA providing services to people with the most challenging medical conditions in the state. And there are many more accomplishments to read about in this report.
The milestones of 2012 would not be possible without the countless acts of courage, kindness, and love that are a part of the culture of this organization. We hope all of you are inspired by our accomplishments - from the big achievements to the small acts of love.  We look forward to The Association’s Arc of Transcendence continuing long into the future.
Barbara T. Pilarcik, R.N., Executive DirectorM. Dale Janes, President, Board of Directors"

Governance

BOARD CHAIR

Mr. James F. Foard, Jr.

Keady Foard Montemagni Wealth Management, UBS Financial Services, Inc.

Term: July 2013 - June 2015

BOARD LEADERSHIP PRACTICES

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RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?