Disease, Disorders, Medical Disciplines

National Brain Tumor Society, Inc.

  • Newton, MA
  • http://www.braintumor.org

Mission Statement

National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. Our goal is to make brain tumors a chronic, manageable disease by the year 2025.

We have a rigorous and thoughtful agenda, integrating research and public policy to bridge critical gaps. Starting with discovery science, to clinical trial design and the development of new therapies, there are many opportunities to make improvements and speed the momentum of new findings.

Main Programs

  1. Public Policy and Advocacy
  2. Research

service areas

National

Self-reported by organization

ruling year

1994

Chief Executive Officer

Mr. David Arons

Self-reported by organization

Keywords

"brain tumor", "brain cancer", "brain", "research"

Self-reported by organization

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EIN

04-3068130

Also Known As

NBTS

Contact

Cause Area (NTEE Code)

Brain Disorders (G48)

Cancer (G30)

Cancer Research (H30)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Impact statement

National Brain Tumor Society is the largest nonprofit organization dedicated to the brain tumor community in the United States. We are fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and those who will be diagnosed tomorrow. This means aggressively driving strategic research and advocating for public policies, which meet the critical needs of this community.

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Public Policy and Advocacy

National Brain Tumor Society works with volunteer advocates in the brain tumor community to fight for resources and policies that will result in better treatments and better quality of life for those affected by brain tumors. Through public policy, we are fighting to:

Strengthen research
Advance therapies
Improve health care

Category

None

Budget

Population Served

General Public/Unspecified

None

None

Program 2

Research

National Brain Tumor Society (NBTS) drives research along the entire continuum of the drug discovery and development pipeline, with a singular focus – to find a cure for brain tumors. To support this commitment:

We fund only the most imminently promising projects for brain tumors.
We seek researchers dedicated to the areas of greatest need.
We demand research approaches, which will deliver compelling results.
With these guiding principles, our funded programs achieve thoughtful and strategic investments across the entire research spectrum, from basic science to clinical trials. By collaborating with the world's most prestigious institutions and researchers, we drive research to therapy seeking those projects with the scientific potential to reach clinical trial, as well as advance research progress for all brain tumors. With targeted programs in systems biology, pediatric brain tumors, and other emerging research areas, we are leading a community devoted to providing access to better care and new treatments, as well as expediting the discovery of a cure.

Since our inception, we have awarded more than $26 million in research grants. Today, our grant structure represents a comprehensive and distinct model, which is effective for both academic and industry researchers.

Category

None

Budget

Population Served

None

None

None

service areas

National

Self-reported by organization

Blog

The organization's Blog

Social Media

@braintumors

@NBTStweets

@national-brain-tumor-society

@NBTSvideo

@nbts

Accreditations

Charity Navigator

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

NATIONAL BRAIN TUMOR SOCIETY INC
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

National Brain Tumor Society, Inc.

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2013
  • Board Chair
  • Access to the GuideStar Community
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Chief Executive Officer

Mr. David Arons

BIO

David Arons is the Chief Executive Officer of National Brain Tumor Society. He also serves as the National Brain Tumor Society's Chief Public Policy and Advocacy Officer. He previously served as the Director of Government Relations for the American Cancer Society in Minnesota and was the co-founder and Co-Director of the Center for Lobbying in the Public Interest. He is the author of several books, including Power in Policy: A Funder's Guide to Advocacy and Civic Participation, Strengthening Nonprofit Advocacy, and A Voice for Nonprofits. He serves on the National Cancer Institute's Council of Research Advocates and Clinical Trials Advisory Committee.

Governance

BOARD CHAIR

Michael Nathanson

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?