Civil Rights, Social Action, Advocacy

Greater Boston Chapter of the National Spinal Cord Injury Association (GBC-NSCIA)

  • Woburn, MA
  • www.sciboston.org

Mission Statement

The mission of the Greater Boston Chapter of the National Spinal Cord Injury Association is to RISE Above Paralysis: Reach individuals and families affected by spinal cord injury and disease Inspire the newly injured through role models and peer mentors Support individuals and families as they begin their post injury journeys Empower individuals with spinal cord injury/disease to reach their goals and dreams

Main Programs

  1. Peer Mentoring and Resources to support and enhance the lives of those affected by life altering spinal cord injuries with a focus on the underserved
Service Areas

Self-reported

Massachusetts

We primarily serve those in the greater Boston area. Furthermore, with an office at SRH, we can be asked to serve Spaulding Rehabilitation Hospital in-patients from areas around New England and other states.

ruling year

1957

Principal Officer since 2013

Self-reported

. Elizabeth Marshall Weaver

Keywords

Self-reported

Spinal Cord Injury, Greater Boston Chapter, Rise Above Paralysis, peer mentors, GBC

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Also Known As

Rise Above Paralysis Inc

EIN

04-3189607

 Number

0297611439

Contact

Cause Area (NTEE Code)

Disabled Persons' Rights (R23)

Services to Promote the Independence of Specific Populations (P80)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

In 2014, the GBC worked with over 500 people affected by a new or chronic spinal cord injury (SCI). We offer understanding, vital information, resources, advocacy and education for those facing this life altering injury. Our significant accomplishments were: Over 1,000 peer mentor connections with members of the spinal cord injury community. Over 500 hours by our volunteers Approximately 100 connections to serve the vulnerable SCI community in the Boston area. Underserved individuals with an SCI face multiple obstacles to a high quality of life, including lack of healthcare, domestic violence and homelessness. They are at risk of becoming lost in the system.The goals for 2015 are:Continue to advocate for and serve those in the greater Boston area SCI community. Become a widely known resource in the underserved/vulnerable SCI community. Secure grants and philanthropic funds to allow our programs, which are offered free of charge, to continue.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Peer Mentoring and Resources to support and enhance the lives of those affected by life altering spinal cord injuries with a focus on the underserved

Our focus is Peer Mentoring for all those affected by a spinal cord injury (SCI), including family members and loved ones. We offer positive role models who have understanding, empathy, and vital information. We also offer education about social and attitudinal adjustments, life skills, resources, and advocacy. * Early Intervention: GBC Early Intervention Peer staff meets one on one with the newly injured, their families and loved ones. This process begins while the patient is still in the rehabilitation hospital. At SRH, the GBC meets each week with SRH team leaders to discuss patient needs for peer support. We also connect the individual with a peer visitor, matched for similar injury level, age and/or ethnicity. The Peer Visitor volunteer meets with the individual while they are still inpatient. * Peer Visitation: GBC staff and volunteers stay connected with the newly injured and their families after discharge. Peer Visitors continue to work with the individual back in the community to help them adjust to a new way of life. This connection provides the most important link to living successfully with an SCI. * Outreach Advocate: The Outreach Advocate works with area healthcare facilities, community living centers, and other service providers to identify and work with at risk, vulnerable individuals in the SCI community. These individuals face multiple obstacles to a high quality of life, including lack of healthcare, domestic violence and homelessness. This position was developed to help prevent these people from falling through the cracks and becoming lost in the system. * Support Groups: Community support groups are held at: SRH - Boston each Thursday; SRH - Cape Cod each month; Berkshire Medical Center each month and SRH - Boston for family members every three months. * SCI Educational Series: The GBC is included in SRH's bi-weekly inpatient educational series for the newly injured. * Communications: We respond to phone and email inquiries within 24 hours and provide educational, research, social and recreational information on Facebook, through our website and in email newsletters.

Category

Human Services, General/Other

Population(s) Served

Other Named Groups

Poor/Economically Disadvantaged, Indigent, General

Budget

$100,000.00

Service Areas

Self-reported

Massachusetts

We primarily serve those in the greater Boston area. Furthermore, with an office at SRH, we can be asked to serve Spaulding Rehabilitation Hospital in-patients from areas around New England and other states.

Funding Needs

For over 22 years, the GBC has never charged for our services. We rely on grants, donors and sponsors to support our programs and operations. We are a small organization serving a community which is largely unknown to the general population. As a result, we rely on a limited number of sources for funding. Several of these sources are state-based and facing their own challenging times, resulting in a decrease in income for the GBC over the last few years. Thus, our most pressing need is sustainability of the program through fundraising efforts. This includes the Early Intervention Peer program component, which costs $ 40,000 per year; the Peer Mentor program component, which costs $27,000 per year; and administrative activities which costs $17,000 per year. Additionally, we would like to continue to respond to the unique needs of the Greater Boston area SCI community with innovative programming, such as the newly added Outreach Advocate position, which costs $9,000 per year. Lastly, we need to hire a part-time fundraising expert who can focus on sustainability and growth of the organization financially, estimated at $20,000 per year.

Accreditations

Affiliations + Memberships

Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA, American Red Cross, etc.) - Affiliate/chapter

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

GREATER BOSTON CHAPTER NATIONAL SPINAL CORD INJURY ASSOCIATION
Fiscal year: Jul 01-Jun 30

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Operations

The people, governance practices, and partners that make the organization tick.

Greater Boston Chapter of the National Spinal Cord Injury Association (GBC-NSCIA)

Leadership

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Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2015, 2015 and 2014
  • Board Chair and Board Members
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Principal Officer

. Elizabeth Marshall Weaver

Governance

BOARD CHAIR

. Laurence Brennan

Massachusetts General Hospital

Term: July 2011 - July 2014

BOARD LEADERSHIP PRACTICES

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RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?