Disease, Disorders, Medical Disciplines

Adult Congenital Heart Association Inc

  • Philadelphia, PA
  • www.achaheart.org

Mission Statement

The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families, and the medical community.

Main Programs

  1. Education and Outreach
  2. Advocacy
  3. Research

service areas

National

Self-reported by organization

ruling year

1999

chief executive for fy 2006

Amy Verstappen

Self-reported by organization

Keywords

Adult Congenital Heart Association, ACHA, adult congenital heart defect, adult congenital heart disease, heart disease, support, education, patients, patient advocacy, congenital heart defect, congenital heart disease, patient education, healthcare, cardiac, advocacy, heart

Self-reported by organization

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EIN

04-3447959

Physical Address

3300 Henry Ave, suite 112

Philadelphia, 19129

Also Known As

ACHA

Contact

Cause Area (NTEE Code)

Heart and Circulatory System (G43)

Birth Defects (G20)

Alliance/Advocacy Organizations (E01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Impact statement

Since 1998, the Adult Congenital Heart Association has been dedicated to improving the quality of life and extending the lives of adults living with congenital heart disease and is currently the leading organization dedicated solely to congenital heart disease. For the first time, thanks to medical advances and interventions, more than half of all individuals living with congenital heart disease are believed to be adults.

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Education and Outreach

Through the Heart to Heart Program, ACHA offers a variety of educational resources to ensure that the adult living with Congenital Heart Disease has the tools they need to protect and improve their lifelong health and well-being

Category

Diseases, Disorders & Medical Disciplines

Budget

$613,368.00

Population Served

Adults

Program 2

Advocacy

The Adult Congenital Heart Association advocates for improved data collection, research, secondary prevention and treatment options to improve and prolong the lives of those living with congenital heart disease.

Category

Diseases, Disorders & Medical Disciplines

Budget

$51,292.00

Population Served

Adults

Program 3

Research

ACHA’s Research Program aims to build partnerships with national CHD researchers to further expand our understanding of ACHD issues, conduct and promote research that engages patients and other stakeholders and develop strategies that unite patients with medical professionals to promote patient empowerment and lifelong cardiac health surveillance.

Category

Diseases, Disorders & Medical Disciplines

Budget

$175,123.00

Population Served

Adults

service areas

National

Self-reported by organization

Blog

The organization's Blog

Funding Needs

The simplest way to support the Adult Congenital Heart Association (ACHA) is by making a donation. Individual's contributions are what fuels ACHA programs year-round, and we greatly appreciate financial support in this way.The donations of not only individuals, but foundations and corporations allow ACHA to continue to provide outreach, education and support for those impacted by congenital heart defects. Contributions of cash, workplace giving, corporate matching gift, stock, airline mileage, or planned giving all go toward keeping ACHA working.

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

ADULT CONGENITAL HEART ASSOCIATION
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Adult Congenital Heart Association Inc

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2012
  • Board Chair, Board Co-Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
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CHIEF EXECUTIVE FOR FISCAL YEAR

Amy Verstappen

BIO

President/CEO, joined the ACHA board in 2000, and was ACHA's first Fundraising Chair. She became ACHA Board President in 2002, and stepped off the ACHA Board to become ACHA's first paid President and Executive Director in January 2006. Before her personal experiences as a complex congenital heart survivor led her to patient advocacy, Ms. Verstappen worked as an educator with children and adults in a variety of settings. Ms. Verstappen received a Bachelor of Science in Sociology-Anthropology from Swarthmore College in 1983 and a Masters in Education from Lesley College in 1989. She has co-authored a number of publications on adults with congenital heart disease and has served as an ACHD consultant in venues such as the American College of Cardiology (ACC), the National Heart, Lung, and Blood Institute (NHLBI), and the International Society of Adult Congenital Cardiac Disease (ISACCD).

Governance

BOARD CHAIR

Peggy Powers

Center for Adult Congenital Heart Disease at California Pacific

Term: Jan 2012 - Dec 2013

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


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BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?