Disease, Disorders, Medical Disciplines

Adult Congenital Heart Association Inc

  • Philadelphia, PA
  • www.achaheart.org

Mission Statement

The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families, and the medical community.

Main Programs

  1. Education and Outreach
  2. Advocacy
  3. Research
Service Areas

Self-reported

National

The Adult Congenital Heart Association (ACHA) is a national nonprofit that is headquartered in Philadelphia, Pennsylvania with a number of staff and volunteers located throughout the United States.

ruling year

1999

Principal Officer since 2014

Self-reported

Glenn R. Trinagli

Keywords

Self-reported

Adult Congenital Heart Association, ACHA, adult congenital heart defect, adult congenital heart disease, heart disease, support, education, patients, patient advocacy, congenital heart defect, congenital heart disease, patient education, healthcare, cardiac, advocacy, heart

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EIN

04-3447959

 Number

7858439086

Physical Address

3300 Henry Ave, suite 112

Philadelphia, 19129

Also Known As

ACHA

Contact

Cause Area (NTEE Code)

Heart and Circulatory System (G43)

Birth Defects (G20)

Alliance/Advocacy Organizations (E01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

Since 1998, the Adult Congenital Heart Association has been dedicated to improving the quality of life and extending the lives of adults living with congenital heart disease and is currently the leading organization dedicated solely to congenital heart disease. For the first time, thanks to medical advances and interventions, more than half of all individuals living with congenital heart disease are believed to be adults.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Education and Outreach

Through the Heart to Heart Program, ACHA offers a variety of educational resources to ensure that the adult living with Congenital Heart Disease has the tools they need to protect and improve their lifelong health and well-being

Category

Diseases, Disorders & Medical Disciplines

Population(s) Served

Adults

Budget

$613,368.00

Program 2

Advocacy

The Adult Congenital Heart Association advocates for improved data collection, research, secondary prevention and treatment options to improve and prolong the lives of those living with congenital heart disease.

Category

Diseases, Disorders & Medical Disciplines

Population(s) Served

Adults

Budget

$51,292.00

Program 3

Research

ACHA’s Research Program aims to build partnerships with national CHD researchers to further expand our understanding of ACHD issues, conduct and promote research that engages patients and other stakeholders and develop strategies that unite patients with medical professionals to promote patient empowerment and lifelong cardiac health surveillance.

Category

Diseases, Disorders & Medical Disciplines

Population(s) Served

Adults

Budget

$175,123.00

Service Areas

Self-reported

National

The Adult Congenital Heart Association (ACHA) is a national nonprofit that is headquartered in Philadelphia, Pennsylvania with a number of staff and volunteers located throughout the United States.

Funding Needs

The simplest way to support the Adult Congenital Heart Association (ACHA) is by making a donation. Individual's contributions are what fuels ACHA programs year-round, and we greatly appreciate financial support in this way.The donations of not only individuals, but foundations and corporations allow ACHA to continue to provide outreach, education and support for those impacted by congenital heart defects. Contributions of cash, workplace giving, corporate matching gift, stock, airline mileage, or planned giving all go toward keeping ACHA working.

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

ADULT CONGENITAL HEART ASSOCIATION
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Adult Congenital Heart Association Inc

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2012
  • Board Chair and Board Co-Chair
  • Access to the GuideStar Community
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Principal Officer

Glenn R. Trinagli

BIO

Glenn R. Tringali, National Executive Director, in partnership with the Board of Directors and Medical Advisory Board, is responsible for leading ACHA's mission to improve and extend the lives of the millions born with heart defects through education, advocacy, and the promotion of research. Glenn has more than three decades of nonprofit administrative experience with small, mid-sized and large national and international healthcare organizations. Prior to joining ACHA in 2104, Glenn previously served as Chief Executive Officer of the Cerebral Palsy International Research Foundation and the National Alliance for Autism Research and also held senior administrative and fund development positions with the Cancer Research Institute, Autism Speaks, Juvenile Diabetes Research Foundation, and March of Dimes.

Governance

BOARD CHAIR

Barry Meil

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?