Human Services

Arc of the US

  • Washington, DC
  • www.thearc.org

Mission Statement

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Main Programs

  1. General Programs
Service Areas

Self-reported

National

United States

ruling year

2007

Chief Executive Officer since 2008

Self-reported

Mr. Peter V. Berns

Keywords

Self-reported

developmental disabilities, intellectual disabilities, disability, mental retardation, autism, public policy

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EIN

13-5642032

 Number

6363022326

Also Known As

The Arc

Contact

Cause Area (NTEE Code)

Human Service Organizations (P20)

Research Institutes and/or Public Policy Analysis (W05)

Disabled Persons' Rights (R23)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

General Programs

Services to the Affiliates
The Arc of the United States
provided technical assistance, training, information and advice to board
members and staff of more than 770 state and local chapters of The Arc. Board and staff leaders of state and local
chapters are provided with information about public policy developments, Medicaid
program information, best practices in human delivery, nonprofit governance and
management and other information that enable them to build more effective,
sustainable nonprofits and better serve individuals with disabilities and their
families. Assistance is also provided to
leaders of the state chapters through frequent conference calls with national
staff allowing for peer learning and exchange of best practices. Technical assistance is also provided to
board members and staff of state and local chapters, and to individuals, via
email, telephone and on-site visits. A
number of training opportunities were provided, including a national conference,
summer leadership institute and winter government affairs training.
 
Direct Assistance and Services
 
The Arc provides direct assistance to individuals with disabilities, their families and members of the public.  Assistance is provided via telephone and email, as well as through a quarterly magazine, Insight, which is sent to approximately 120,000 people throughout the United States which contains information to help individuals with disabilities and their families achieve a better quality of life.  Thousands of written, phone and e-mail inquiries were received seeking information and resources on a variety of topics related to intellectual disabilities.  Information was needed by many families on: aging and disabilities, future planning, housing and residential facilities, rare disorders, education issues, fetal alcohol syndrome, and legal and criminal justice issues.  A website, www.thedesk.info, provides information about the Medicaid program for people with cognitive disabilities.
 
Public Health Education
 
The Arc educated and informed elected and
appointed government officials, the media, opinion leaders and the
general public about the status of people with disabilities and their
families.  The Annual Governmental Affairs Seminar educated
stakeholders on issues affecting people with disabilities and their
families, including Medicaid, health care, housing, labor issues,
social security and other issues of concern.  The Arc continued to
provide information and training to individuals, chapters of The Arc,
agencies and the general public regarding issues related to people with
intellectual disabilities in the criminal justice system as offenders,
victims and witnesses.

Category

Human Services

Population(s) Served

Disabled, General or Disability Unspecified

Budget

$2,734,506.00

Charting Impact

Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

  1. What is the organization aiming to accomplish?
    MISSION The Arc's mission is to promote and protect the human rights of people with intellectual and developmental disabilities and to actively support their full inclusion and participation in the community throughout their lifetimes. THE PEOPLE WE SERVEThe Arc is ""for people with intellectual and developmental disabilities"" and is the only national organization that serves people with Intellectual Disability, Down syndrome, Autism Spectrum Disorder, Fetal Alcohol Syndrome and many, many other diagnoses, throughout their lifetimes in communities across the United States. The Arc also serves and support the entire family, including parents, siblings, grandparents and other family members, as well as supporting professionals in the field. There are more than 7 million people with I/DD in the U.S. LONG TERM GOALS The Arc's goals over the ten year period, 2010 - 2019, are to assure that: 1. Infants, children and youth with intellectual and developmental disabilities (I/DD) have access to the supports and services they need to live in their family homes, to succeed in school and to partake in all of the experiences of childhood. 2. Adults with I/DD have the opportunity to lead lives of their own choosing, free from poverty, to be employed, to reside in the community, and to live independently with ready access to whatever services and supports they need. 3. People with I/DD have the opportunity to participate in civic activities, volunteerism and community service, religion, arts, culture and recreation alongside their peers without disabilities. 4. Individual members of the public value, respect and accept people with I/DD as equal members of society. 5. Quality health education, health promotion and health care are widely available and accessible, enabling individuals to avoid known environmental causes of I/DD and to prevent secondary health problems for people with I/DD.
  2. What are the organization's key strategies for making this happen?
    The Arc's 700+ chapters serve more than 1 million people with intellectual and developmental disabilities (I/DD) and their families. The following are The Arc's strategies for getting there: Goal 1 - Strategies for Infants, Children and Youth with I/DD. * Increase the availability of early intervention services in naturally occurring environments. * Increase the full inclusion of students with I/DD in schools. * Promote best practices in school-to-community transition. * Eliminate the use of seclusion and non-emergency restraint in schools. * Increase student involvement in developing their own Individualized Education Program(IEP). * Increase access to advocates to support people with I/DD, including parent advocates and youth self-advocates. Goal 2 - Strategies for Adults with I/DD. * Increase opportunities for integrated employment at fair wages, and self-employment. * Build the capacity of businesses to employee people with I/DD.. * Identify and promote best practices in services and supports for people with I/DD relating to housing, employment and community participation. * Increase the availability of affordable, accessible rental housing and home-ownership, as well as supported and independent living* Increase access to personal supports. * Replace state institutions with community based services and supports. * Support self-determination and self-advocacy. * Rebalance the Medicaid program so that home and community based services and family support are readily available. * Improve basic income support systems to reduce the incidence of poverty. Goal 3 - Strategies to Promote Civic Participation for People with I/DD. * Build the capacity of civic, religious, and other organizations to include people with I/DD in their programs and activities.* Increase voting and participation in the political process. * Increase the availability of family support and respite services. Goal 4 - Strategies to Promote Acceptance and Respect for People with I/DD. * Publicize incidents of bigotry, discrimination, and victimization of people with IDD. * Engage in testing to identify discriminatory practices in housing and employment * Increased public awareness of people with I/DD, their needs issues and concerns, and showcase their positive role and contributions.* Monitor the media and promote more accurate, respectful and positive coverage.* Educate of legal and law enforcement officials, teachers, clergy, and others to well serve people with I/DD. * Educate people with I/DD and their families about how to protect their civil rights. Goal 5 - Strategies for Health Promotion for People with I/DD* Educate the public to avoid environmental agents known to cause I/DD. * Increase access to medical, dental, and mental health care, including making health insurance universally available. * Build the capacity of health care professionals to serve people with I/DD.
  3. What are the organization's capabilities for doing this?
    The 700+ chapters of The Arc provide the means to achieve our mission of service for people with intellectual and developmental disabilities (I/DD) and their families. Local chapters are on the front lines providing individual advocacy, programs, services and supports. Their work touches on all aspects of community life, including education, employment, health care, housing, recreation and more. The Arc serves more than 1 million people with I/DD and their families at more than 2,300 locations, while also advocating on behalf of the entire universe of more than 7 million people with I/DD in the U.S. Promoting Best Practices The Arc is the nation's largest provider of services and supports for people with I/DD, including advocacy services. Each chapter is a separate 501(c)(3) tax-exempt nonprofit. The national office advances their work by promoting best practices in programs, services and supports for people with I/DD, as well as in nonprofit governance and management. Support is provided online through websites, blogs and social media, as well as through conferences, meetings, conventions, webinars and one-to-one technical assistance. Federal Public Policy AdvocacyThe Arc's federal public policy advocacy protects and promotes the rights of people with I/DD and provides the resources they need to fully participate in community life. The Arc has a detailed Public Policy Agenda to guide our work on federal policy issues. In addition to influencing policy developments within the executive and legislative branches of government, The Arc participates in court cases when needed as a ""friend of the court."" State Public Policy Advocacy State and local chapters of The Arc engage in both individual advocacy and public policy advocacy at the state and local level. The national office supports their work by building a knowledgebase and sharing information among and between chapters, coordinating national strategies for state policy reforms, informing chapter leaders about the latest policy developments, and training chapter volunteers and staff leaders. Research and InnovationThe Arc also works to translate theory and knowledge into practice through cooperative working relationships with individual researchers and research institutions, including the university centers on disability. The Arc marshalls data, information and research from available sources, and supports or sponsors additional research where needed to fill gaps or further inform strategy and action. Communications and Public Education The Arc educates the public about the needs, issues and concerns of people with I/DD and their families. We provide timely, credible and accessible information to opinion leaders, decisionmakers and members of the public through websites, social networking sites, radio, television, print and other media, as well as through the communications channels of our extensive network of state and local chapters.
  4. How will they know if they are making progress?
    The Goals and Strategies, listed above, are excerpted from the Strategic Framework for the Future of The Arc, 2010 - 2019. The full plan may be found on The Arc's website, www.thearc.org. Based on this long-term plan, The Arc prioritizes among the multiple goals and strategies and develops two-year operational plans to guide the work of the national organization. State and local chapters are free to develop their own priorities, drawing on the nationally established goals and strategies, as well as to develop additional goals and strategies that are consistent with the unique needs within their own local communities. Near-term objectives and indicators vary depending on the particular goal and strategy, as well as the methods and tactics employed in pursuit of the particular strategy. Overall Impact is gauged by measureable changes in the residential status, employment and other life circumstances of people with intellectual and developmental disabilities, as well as by monitoring the level and adequacy of funding for the programs, supports and services that assist them in being included in society. Data sources include independent research by academics and other third parties, surveys and information collected from chapters of The Arc, individuals with I/DD and their family member, public opinion surveying and other market research. As described in response to question 3, identifying and promoting the replication of best practices in services and supports for people with I/DD by chapters of The Arc is a method used to pursue numerous of the goals and strategies. Typically, this method involves ""near term objectives"" and ""indicators"" such as: * Identifying evidence-based, best practices in a specific area of program service delivery; * Supporting demonstration or pilot programs engaged in promising practices; * Establishing learning communities for practitioners interested in the specific program area; * Attaining meaningful program evaluation and outcome data regarding the pilot projects; * Disseminating knowledge attained about what works; * Replication of programs, services and supports that have been demonstrated to work at additional sites.Federal and state public policy advocacy are additional methods used to pursue many of the goals and strategies. With advocacy ""near term objectives"" and ""indicators"" include: * Obtaining congressional staff interest in addressing the particular issue; * Obtaining congressional member commitment to introduce legislation; * Introduction of the legislation; * Sign-on of additional sponsors for legislation; * Successful hearing presentation regarding proposed legislation; * Favorable consideration of legislation in committee of legislative body; * Favorable consideration of legislation by full legislative body;* Signature by Executive;* Successful implementation.
  5. What have and haven't they accomplished so far?
    The following are selected accomplishments in 2011 & 2012. Full copies of the Strategic Framework for the Future of The Arc progress reports are available on The Arc's website, www.thearc.org.
    Goal 1: Accomplishments for Infants, Children and Youth with I/DD.
    -Successfully advocated for Medicaid, Supplemental Security Income and Social Security disability programs to be
    held harmless in the federal budget.
    -Funded 55 pilot sites focusing on transition to post-secondary education and employment, and maximizing
    self-determination in transition planning.
    -Autism NOW National Autism Resource and Information Center launched new interactive website features. Overall,
    the program reached more than 2.8 million people.
    Goal 2: Accomplishments for Adults with I/DD.
    -Advocated to preserve the Work Incentives Planning Assistance and Protection and Advocacy for Beneficiaries of
    Social Security programs.
    -eXplore eRecycling Project provided grants to ten sites to identify and pilot employment opportunities for people with
    I/DD in e-recycling.
    -Convened ad hoc work group on increasing employment of people with I/DD in federal government.
    -Successfully advocated for extension of the Work Opportunity Tax Credit.
    -Began development of new Justice and Disability Project.
    -Successfully advocated for reforms to the Section 8 Housing Choice Voucher program.
    -Established new National Council of Self-Advocates.
    -With the University of Minnesota, launched new interactive website for self-advocates. www.selfadvocacyonline.org.
    Goal 3: Accomplishment Promoting Civic Participation by People with I/ DD
    -Advocated for the U.N. Convention on the Rights of Persons with Disabilities.
    -We've Got the Power – developed and implemented non-partisan election year activities
    -Published comparison of the 2012 Democratic and Republican party platforms on disability issues.
    -Co-sponsored National Forum on Disability Issues for 2012 Presidential candidates.
    Goal 4: Accomplishments Promoting Acceptance and Respect for People with I/DD
    -Issued 30 press releases on issues and concerns of people with I/DD.
    -Launched The Arc Audi Racing Program, with events featuring self-advocate participating on pit crew of professional
    race team.
    -White House Community Leaders Briefing - organized briefing
    for 150 chapter leaders, including visit by President Barack Obama.
    -Launched new Autism NOW YouTube series and Autism Awareness Month kit.
    -Launched new blog, www.wearethearc.org, featuring state and
    local chapters of The Arc.
    -Launched The Arc & Sprout Disability Film Festival - 15 national
    film festival events held in 2012.
    Goal 5: Accomplishments Promoting Health for People with I/DD.
    -Launched HealthMeet, new project which will pilot health screening, health education and health professional
    education at multiple sites throughout the U.S.
Service Areas

Self-reported

National

United States

Social Media

Blog

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

THE ARC OF THE UNITED STATES
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Arc of the US

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2014 and 2013
  • Board Chair and Board Members
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Chief Executive Officer

Mr. Peter V. Berns

BIO

Peter V. Berns is a nationally recognized nonprofit sector leader and public interest lawyer. He is the Chief Executive Officer of The Arc, the world's largest community-based organization of and for people with intellectual and developmental disabilities.

Berns has been at the helm of The Arc since July, 2008. Under his leadership, the organization has charted an ambitious course of progress, innovation and change with the development of a Strategic Framework for the Future of The Arc.

As the leading provider of vital services and support for families and individuals, The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. The Arc works daily on behalf of the more than 140,000 members and in concert with a nationwide network of approximately 700 state and local chapters across the nation.

Before joining The Arc, Berns was the Executive Director of the Maryland Association of Nonprofit Organizations, a post he held for 16 years. In that capacity, he built the Association from a start-up to a position of prominence in the nonprofit community, nationally, with nearly 2,000 members of all sizes, all sectors and from all regions of the state. In addition, he served as Chief Executive Officer of the Standards for Excellence Institute since its inception in 2004.

Berns came to The Arc with a track record of success in the areas of nonprofit management, governmental relations and advocacy. As a public policy advocate, he was critical to reforming state and federal Medicaid regulations improving life for persons with disabilities and their families. He was named to the Nonprofit Times Power and Influence Top 50 list in 2000, 2002, 2003, 2004 and 2005.

His previously held positions include Deputy Chief of Consumer Protection in the Maryland Attorney General's Office as well as Assistant Attorney General and, earlier in his career, Staff Attorney/Fellow at the Institute for Public Representation at the Georgetown University Law Center.

In May 2011, President Barack Obama appointed Berns to the President's Committee for People with Intellectual Disabilities, which will provide advice and assistance to President Obama and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual and developmental disabilities and their families.

Berns received his JD, cum laude, from Harvard Law School and he has an LLM in advocacy from Georgetown University Law Center. He received his BA in psychology, magna cum laude, from the University of Pennsylvania.

He and his wife, Melissa Zieve, reside in Baltimore, MD with their four children.

Governance

BOARD CHAIR

Ronald Brown

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization

Yes

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

No

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?


ORGANIZATIONAL DEMOGRAPHICS

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

Gender
This organization reports that it does not collect this information for Volunteers.
Race & Ethnicity
This organization reports that it does not collect this information for Volunteers.
Sexual Orientation

This organization reports that it does not collect this information for Volunteers.

Disability

This organization reports that it does not collect this information for Volunteers.

Diversity Strategies
Yes
We track retention of staff, board, and volunteers across demographic categories
No
We track income levels of staff, senior staff, and board across demographic categories
Yes
We track the age of staff, senior staff, and board
No
We track the diversity of vendors (e.g., consultants, professional service firms)
Yes
We have a diversity committee in place
Yes
We have a diversity manager in place
Yes
We have a diversity plan
No
We use other methods to support diversity