Disease, Disorders, Medical Disciplines

Crohn's & Colitis Foundation of America, Inc.

  • New York, NY
  • http://www.ccfa.org

Mission Statement

To find a cure for Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases.

Main Programs

  1. Research Programs
  2. Take Steps
  3. Team Challenge
  4. Patient and Professional Education Services
Service Areas

Self-reported

National

The Crohn's & Colitis Foundation of America has more than 40 staffed and volunteer chapters and affiliates across the United States. Each has its own volunteer board and Chapter Medical Advisory Committee. Our chapters (some of which have paid staff, while others are run entirely by volunteers) bring CCFA's work and mission to local communities.

ruling year

1966

President / CEO

Self-reported

Mr. Michael Osso

Keywords

Self-reported

united states

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Also Known As

CCFA

EIN

13-6193105

Physical Address

733 Third Ave Suite 510

New York, NY 10017

Contact

Cause Area (NTEE Code)

Specifically Named Diseases (G80)

Digestive Diseases, Disorders (G70)

Other Medical Research N.E.C. (H99)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

Inflammatory bowel diseases (IBD), which include Crohn's disease and ulcerative colitis, affect as many as 1.6 million Americans, most of whom are diagnosed before age 35. As many as 70,000 new cases of IBD are diagnosed in the United States each year. These chronic, life-long conditions can be treated but not cured. IBD can significantly affect a patient's quality of life and may have a high financial burden.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Research Programs

The Crohn's & Colitis Foundation of America is a leading supporter and founder of medical research in Crohn's disease and ulcerative colitis—collectively known as inflammatory bowel diseases (IBD). We invest our dollars wisely, funding the best IBD research anywhere in the world and implementing a peer-review process that insures that only the most promising and relevant grant applications are funded. With more than 1000 grants awarded CCFA has played a role in every major scientific breakthrough in IBD, from generating data that led to new therapies to the discovery of the first gene for Crohn's disease. CCFA supports both Basic and Clinical research. Basic research studies the complex interactions between genes, bacteria, and the immune response in IBD. Clinical research focuses on translating the findings of basic research into new treatments for people with Crohn’s disease and ulcerative colitis. While the methods and immediate outcomes are different, both basic and clinical research are contributing to our greater understanding of the causes, symptoms, and ultimate cures for Crohn’s disease and ulcerative colitis.

Category

Population(s) Served

General Public/Unspecified

None

Budget

Program 2

Take Steps

Take Steps walks offer a wonderful day for family, friends and the community to celebrate all of the efforts that have been put forth in raising funds towards our mission. Our walk events are filled with live music, food, kids’ entertainment, educational materials, and, of course, wonderful exposure for our corporate partners. Take Steps for Crohn’s & colitis is a family friendly community walk dedicated to raising awareness and mission-critical funds for cures for digestive diseases. In the past five years alone, we succeeded in bringing together over 240,000 people and raised nearly $60 million to help further CCFA's mission. 82 cents of every dollar raised goes towards breakthrough research, public and professional education, and patient support services in communities across the nation.

Category

Population(s) Served

General Public/Unspecified

None

Budget

Program 3

Team Challenge

Team Challenge is an endurance training and fundraising program unlike any other. Team Challenge is one of the premier endurance training programs in the country. As a Team, participants will challenge themselves, change lives and fundraise for cures for Crohn's disease and ulcerative colitis - two painful, debilitating, and seldom-discussed digestive diseases that affect 1 in 200 Americans, including 80,000 children nationwide. Participants can either run, walk a half marathon, train for a triathlon, or ride in a great cycling event at one of our amazing destination races. In exchange for fundraising, Team Challenge participants receive a custom training plan and professional coaching throughout the season. Additionally, the training program includes clinics and helpful tips on topics like nutrition, hydration, and injury prevention. Participants also receive an expenses-paid weekend at a great destination race including race registration fees, lodging, pasta party and post race celebration.

Category

Population(s) Served

General Public/Unspecified

None

Budget

Program 4

Patient and Professional Education Services

As part of our mission to educate and inform the public about inflammatory bowel disease (IBD), the Crohn's & Colitis Foundation publishes free educational brochures and fact sheets that provide current information and treatment options about this condition for patients. CCFA also provides a list consisting of leading Crohn’s and ulcerative colitis doctors, researchers, nurses and other healthcare professionals.

Category

Population(s) Served

General Public/Unspecified

None

Budget

Service Areas

Self-reported

National

The Crohn's & Colitis Foundation of America has more than 40 staffed and volunteer chapters and affiliates across the United States. Each has its own volunteer board and Chapter Medical Advisory Committee. Our chapters (some of which have paid staff, while others are run entirely by volunteers) bring CCFA's work and mission to local communities.

Social Media

Funding Needs

The Crohn's & Colitis Foundation requires funding to grown and maintain its mission-critical programs: research, education, and support.  A donation to the Crohn's & Colitis Foundation ensures that our work on behalf of the 1.7 million American's living with these devastating diseases continued unabated.

Accreditations

Better Business Bureau Wise Giving Alliance

Charity Navigator

Affiliations + Memberships

Better Business Bureau

Combined Federal Campaign

Community Health Charities

United Way Member Agency

External Reviews

Source: greatnonprofits.org

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

Crohn's & Colitis Foundation of America Inc
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Crohn's & Colitis Foundation of America, Inc.

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2014 and 2014
  • Board Chair and Board Members
  • Access to the GuideStar Community
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President / CEO

Mr. Michael Osso

BIO

Michael Osso has spent his entire professional career in the non-profit sector. His background in staff and volunteer development; fundraising and marketing; strategy development and implementation; financial management and operations; and community-outreach and board development has benefited a variety of nonprofits over the last 25 years. Michael initially served as CCFA's Chief Business Development Officer from 2013-2015, where he was instrumental in expanding its revenue portfolio and was an integral member of the senior leadership team. Prior to joining CCFA, Michael spent seven years at The Leukemia & Lymphoma Society – first as the Executive Director of its New York City Chapter and then as SVP of Revenue at the national office. His responsibilities included oversight of LLS's national fundraising campaigns including Team In Training and Light The Night Walk, as well as its major and planned giving efforts.

Governance

BOARD CHAIR

Vance Gibbs Esq.

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization

Yes

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?