Disease, Disorders, Medical Disciplines

Crohn's & Colitis Foundation of America, Inc.

  • New York, NY
  • http://www.ccfa.org

Mission Statement

Crohn's disease and ulcerative colitis are collectively known as inflammatory bowel disease (IBD) because they cause severe inflammation of the intestinal tract, and have common symptoms. The cause remains unknown, and there is no medical cure. The Crohn's & Colitis Foundation of America was founded in 1967. Its mission is to find a cure for Crohn's diseasse and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases.

Main Programs

  1. Research, Education, and Support Services

service areas

National

Self-reported by organization

ruling year

1966

chief executive for fy 2006

Mr. Richard J. Geswell

Self-reported by organization

Keywords

united states

Self-reported by organization

Sign in or create an account to view Form(s) 990 for 2013, 2012 and 2011.
Register now

EIN

13-6193105

Also Known As

CCFA

Contact

Cause Area (NTEE Code)

Specifically Named Diseases (G80)

Digestive Diseases, Disorders (G70)

Other Medical Research N.E.C. (H99)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Impact statement

There are over 1.4 million Americans who suffer from Crohn's disease or ulcerative colitis, including 150,000 children under the age of 18.  This number is growing everyday.

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Research, Education, and Support Services

The Foundation focuses on three mission-critical programs: research, education and support services. Our research program has provided more than $125 million for IDB research, with over $10 million in 2006. We receive more than 220 IBD research grant applications a year, and fund more than 160 projects. Educational workshops and symposia within CCFA?s patient and professional services?together with our scientific journal, Inflammatory Bowel Diseases, enables medical professionals to keep pace with the rapidly growing field of IBD research. Our recently established Information Resource Center provides information, guidance and support by Masters-level health professionals five days a week. Additionally, we offers more than 300 support groups across the United States, advocate to increase federal research funding and promote postive quality of life legislation for IBD patients, and run Camp Oasis, a multi-day summer camp program for young people with Crohn?s disease and ulcerative colitis.

Category

Diseases, Disorders & Medical Disciplines

Budget

$34,910,592.00

Population Served

General Public/Unspecified

service areas

National

Self-reported by organization

Funding Needs

The Crohn's & Colitis Foundation requires funding to grown and maintain its mission-critical programs: research, education, and support.  A donation to the Crohn's & Colitis Foundation ensures that our work on behalf of the 1.4 million American's living with these devastating diseases continued unabated.

External Reviews

The review section is powered by Great Nonprofits
Source: greatnonprofits.org

Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

Crohn's & Colitis Foundation of America Inc
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2013, 2012 and 2011
  • Board Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
Get all this now for free
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

Operations

The people, governance practices, and partners that make the organization tick.

Crohn's & Colitis Foundation of America, Inc.

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2013, 2012 and 2011
  • Board Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

CHIEF EXECUTIVE FOR FISCAL YEAR

Mr. Richard J. Geswell

BIO

Richard "Rick" Geswell has had a distinguished career in nonprofit health agency management. Over the past 30 years, Rick has worked in all areas of resource development and field operations. Rick's experience incorporates leadership positions in the American Heart Association, March of Dimes Birth Defects Foundation and The Leukemia & Lymphoma Society. Rick's background covers all aspects of development: major gifts, special events, direct response, planned giving, e-giving and corporate development. In addition to his impressive fund raising track record, he has served as a chapter director, regional director, Regional VP and National VP for Field Operations. Most recently Rick has served for seven years as the Executive VP, Revenue and Marketing for The Leukemia & Lymphoma Society where he more than doubled revenue during his tenure from $109 million to $225 million. Rick is dedicated to the principle of strategic planning and has both participated and lead the strategic planning and business planning process. In his words "Planning is key to an organizations readiness to move into the future. It's critical that the organization wide enterprise have a focused discipline driven by a vision that establishes priorities and brings the organization into alignment." Mission driven, Rick has integrated mission into all aspects of his work. The success in major gifts at The Leukemia & Lymphoma Society is directly attributable to the cooperative model of research, patient services and fund raising developed under Rick's leadership.

Governance

BOARD CHAIR

Gary Sinderbrand

Wells Fargo

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?