Health—General & Rehabilitative

Esophageal Cancer Education Foundation Inc

  • Manalapan, NJ
  • www.fightec.org

Mission Statement

The Esophageal Cancer Education Foundation (ECEF) is a 501(c) 3 non-profit organization founded in 2003 by Bart Frazzitta, an esophageal cancer survivor, and his wife Ginny. ECEF has 3 main Missions: 1. To raise awareness and educate the public and medical community about this disease. 2. To walk the journey with patients who have this disease. 3. To support research projects in search of an early warning test for this disease and a cure of this disease.

Main Programs

  1. Support Group Meetings

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Service Areas

Self-reported

International

Our support group services and post surgical services can be used by patients and caregivers in all areas of the United States and abroad.

ruling year

2004

Principal Officer since 2003

Self-reported

Mr. Bart Frazzitta

Co Principal Officer

Self-reported

Virginia Frazzitta

Keywords

Self-reported

esophageal cancer, esophagus, esophagectomy

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Also Known As

ECEF

EIN

20-0138827

 Number

1409942838

Physical Address

11 Crane Court

Manalapan, 07726

Contact

Cause Area (NTEE Code)

Health Support Services (E60)

Health Support Services (E60)

Health Support Services (E60)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

Esophageal Cancer is the 7th largest cancer in the world and one of the fastest growing in the United States. In the U.S., they expect approximately 17,000 new cases of esophageal cancer in the current year and 15,000 deaths caused by esophageal cancer over the same period.  The estimated average 5 year survival rate for esophageal cancer patients is 10-15% .The reason for this poor survival rate is that people don't know that heartburn and acid reflux can cause esophageal cancer.  Most people, who have acid reflux or indigestion, typically just take over-the-counter antacid medications to “solve" the problem and they don't know that these symptoms can lead to esophageal cancer.  What they should do is see a gastroenterologist for an endoscopy.  Often times, by the time they realize they have esophageal cancer; it is in the late stages of development, which generates the poor statistical survival rates indicated above.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Support Group Meetings

Monthly conference call support groups are held to allow patients who have been through the esophageal cancer surgery to talk with other patients from other parts of the country that are experiencing post surgical issues.

Category

Health Care

Population(s) Served

Male Aging/Elderly/Senior Citizens

Budget

Charting Impact

Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

  1. What is the organization aiming to accomplish?
    To give 150,000 to the research projects we are supporting in 2015
    To keep administrative expenses to less then 10% of donations in 2015
    To have our awareness video seen by over 2000 people in 2015
    To be available for esophageal cancer patients quality of life questions 24/7
  2. What are the organization's key strategies for making this happen?
    We want to increase our activity on our web site so we have begun a blog and we intend to post articles on average 2 times a month. We plan to visit or speak to Senior adult communities as esophageal cancer is most active on male adults over 45 years of age. We plan to work with various organizations to reach surgeons who perform esophagectomy surgeries to let them know of the services we can provide to their patients at no cost to the patient or them
  3. What are the organization's capabilities for doing this?
    This doesn't require a staff to be effective with what we plan to achieve in 2015. Our volunteer executive committee can handle what we hope to achieve in 2015
  4. How will they know if they are making progress?
    We use Salesforce for non profits so we have all of the reports we can ever need through this system. We can get reports that will tell us how much each month we are receiving in donations. We will be able to see what parts of the US these donations are coming from.
  5. What have and haven't they accomplished so far?
    We will prepare quarterly progress reports for our Board of directors and we can make those reports available in Guide Star
Service Areas

Self-reported

International

Our support group services and post surgical services can be used by patients and caregivers in all areas of the United States and abroad.

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

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Operations

The people, governance practices, and partners that make the organization tick.

Esophageal Cancer Education Foundation Inc

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2015, 2014 and 2013
  • Board Chair and Board Members
  • Access to the GuideStar Community
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Principal Officer

Mr. Bart Frazzitta

Co Principal Officer

Virginia Frazzitta

STATEMENT FROM THE Principal Officer

"In pursuit of ECEF’s first mission, “ Bart Frazzitta, President of ECEF and himself a survivor of esophageal cancer, through his affiliation with  major cancer centers in NY and NJ, has appeared on various news broadcasts with various members of ECEF’s Medical Advisory Committee.  We have appeared on CBS, ABC, and NBC. Bart Frazzitta along with Dr. Bains co-authored a book called 100 Q&A About Esophageal Cancer.  Lastly, through ECEF’s recently redesigned website,  ECEF periodically posts to our website (www.fightec.org http://www.fightec.org/(http://www.fightec.org/) )  interesting articles published around the world that focus on esophageal cancer. These articles are also automatically published to ECEF’s various Social network sites in an effort to inform as many people as possible about this disease and hopefully save people’s lives.

 

In pursuit of ECEF’s second Mission, “To walk the journey with patients who have this disease,” Bart, over the last 9 years, has spoken to over 800 patients who have been diagnosed with this disease. Although most of these patients have been at Memorial Sloan-Kettering Cancer Center (where he was treated) Bart has now been invited to replicate the program at Mount Sinai, Hackensack, Beth Israel, Roosevelt, and St. Lukes Medical Centers. Additionally, We  have developed a Support Group Program where patients and caregivers can participate in conference call support groups. Currently we have approximately 25 patients and caregivers from across the country who participate in these monthly conference call support group meetings In pursuit of ECEF’s third Mission, “To support research projects in search of an early warning test for this disease.” ECEF continues to stage fundraising events and support others (who want to stage their own fundraising events) in an effort to raise funds to support research projects.  ECEF’s Board recently approved a $100,000 grant to support a research project that will lead to an early detection of this disease through a blood test."

Governance

BOARD CHAIR

Bart Frazzitta

Retired

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?