Disease, Disorders, Medical Disciplines

PKU and Allied Disorders of Wisconsin Inc

  • Menasha, WI
  • www.padow.org

This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.


This organization's exempt status was automatically revoked by the IRS for failure to file a Form 990, 990-EZ, 990-N, or 990-PF for 3 consecutive years. Further investigation and due diligence are warranted.

Mission Statement

To bring together Wisconsin and other individuals, metabolic support groups, and professionals directly involved with issues related to inborn errors of metabolism requiring low protein diets, including Phenylketonuria ("PKU"), Maple Syrup Urine Disease ("MSUD"), urea cycle disorders, Homocystinuria and other related disorders to improve identification, treatment and management of these disorders through: 1) Advocacy; 2) Eduaction; 3) Support; 4) Promotion and support of research; and 5) Services complimenting and assisting existing support groups and organizations.

ruling year

2006

Principal Officer

Self-reported

Stephanie Stremer

Also Known As

PADOW

EIN

20-3333556

Contact

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (G01)

Birth Defects (G20)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

Programs + Results

How does this organization make a difference?

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

PKU and Allied Disorders of WI hosts a winter conference each year, followed by a walk for PKU support and research in the spring/summer of each year. PADOW brings cooking classes to it's membership and is running an outreach program to support families affected by metabolic disorders through telephone, email and one on one contact. PADOW offeres a yearly scholarship, and helps to support WI's metabolic clinics.

Category

Population(s) Served

Budget

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

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Operations

The people, governance practices, and partners that make the organization tick.

PKU and Allied Disorders of Wisconsin Inc

Leadership

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Principal Officer

Stephanie Stremer

Governance

BOARD LEADERSHIP PRACTICES

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RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?