Disease, Disorders, Medical Disciplines

GIRL POWER 2 CURE INC

  • Amelia Island, FL
  • www.girlpower2cure.org

Mission Statement

Girl Power 2 Cure, Inc. is a 501c3 nonprofit organization dedicated to raising awareness and funds for treatments and a cure for Rett Syndrome, a devastating neurological disorder that almost exclusively affects girls.

We are committed to making Rett Syndrome(http://girlpower2cure.org/who-we-are/rett-syndrome.aspx) the first reversible neurological disorder by harnessing the spirit of girls to support fellow girls who are suffering. We support girls in the planning and implementation of events that raise awareness and funds for Rett Syndrome research(http://girlpower2cure.org/what-we-do/research.aspx) , as well as support Rett families with resources, fundraising help and awareness tools.

Our inspiration is our flower:  always in bloom with hope and positive energy, ready to grow anywhere there is someone ready to join in our mission.

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EMAIL US at volunteer@girlpower2cure.org to get involved!

service areas

International

Self-reported by organization

ruling year

2007

chief executive for fy 2006

Ingrid Harding

Self-reported by organization

Keywords

rett syndrome

Self-reported by organization

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EIN

20-8011668

Contact

Cause Area (NTEE Code)

Brain Disorders (G48)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Impact statement

We believe Rett Syndrome can be the first reversible neurological disorder.
We believe that girls are powerful and positive community leaders and mentors.
We believe in empowering Rett Syndrome families by supporting and encouraging their creative fundraising and awareness initiatives.
We believe amidst the mass confusion going on within their central nervous systems, Rett Girls are smart, strong and waiting bravely for us to unlock the door to their recovery.
We believe that finding a successful treatment for Rett Syndrome will pave the way to treatments of other neurological disorders such as: Autism, Alzheimer's, bipolar disorder and more.

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Not available

Category

Budget

Population Served

Charting Impact

Five powerful questions that require reflection about what really matters - results.

Self-reported by organization

  1. What is the organization aiming to accomplish?
    Our long-term goal is to fund a cure for Rett Syndrome and be sure to find and correctly diagnose and treat all girls who are suffering.
  2. What are the organization's key strategies for making this happen?
    We aim to engage a generation of youth volunteers to help their fellow girlfriends through our programs and opportunities.
  3. What are the organization's capabilities for doing this?
    Through our ever-growing network of Rett Syndrome families and their supporting communities we will reach far and wide to fulfill our mission.
  4. How will they know if they are making progress?
    Rett Syndrome research is moving forward quickly and is poised to be the first curable childhood neurological disorder. In 2007, symptoms were reversed in the lab.
  5. What have and haven't they accomplished so far?
    To date we have supported hundreds of Rett families, engaged thousands of volunteers and funded over half a million dollars in research.

service areas

International

Self-reported by organization

Blog

The organization's Blog

Social Media

@girlpower2cure

@girlpower2cure

@girlpower2cure

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Financials

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GIRL POWER 2 CURE
Fiscal year: Jan 01-Dec 31

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Operations

The people, governance practices, and partners that make the organization tick.

GIRL POWER 2 CURE INC

Leadership

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  • Address, phone, website and contact information
  • Forms 990 for 2013, 2012 and 2011
  • Board Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
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CHIEF EXECUTIVE FOR FISCAL YEAR

Ingrid Harding

Governance

BOARD CHAIR

Roger Brooks

BOARD LEADERSHIP PRACTICES

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BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


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CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


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ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


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BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?