Disease, Disorders, Medical Disciplines

The Oklahoma Chapter of the Myasthenia Gravis Foundation of America, Inc.

  • Tulsa, OK
  • http://www.myasthenia.org/LivingwithMG/MGFAChapters/Oklahoma.aspx

Mission Statement

The mission of the Oklahoma Chapter of the Myasthenia Gravis Foundation Inc. is to provide education and patient services to improve the lives of all people affected by MG and to promote awareness of the disease myasthenia gravis.

Main Programs

  1. 1)Patient Services, 2)Professional and Health Care, 3)Public Education
Service Areas

Self-reported

Oklahoma

State of Oklahoma

ruling year

1955

Principal Officer since 1999

Self-reported

Mrs. Peggy Foust

Vice-President since 1996

Self-reported

Margret Feller

Keywords

Self-reported

myasthenia gravis, mg, neuromuscular diseases

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EIN

22-2849548

 Number

6444750463

Physical Address

4606 E 67th St S Suite 100

Tulsa, OK 74136 4950

Contact

Cause Area (NTEE Code)

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Alliance/Advocacy Organizations (E01)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

The Oklahoma Chapter does indeed have impact. Many times when a person is diagnoised with the disease they have never heard of MG, much less know anyone who has it. We are here to let them know that they are not alone, to meet others with their disease, to learn from health care professional how to live, cope and function with MG.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

1)Patient Services, 2)Professional and Health Care, 3)Public Education

1) Patient Services: Quarterly newsletter publication, 8 scheduled support group meetings throughout the state, 6 scheduled 2nd Wednesday "Brown Bag" lunch support group meetings; RX assistance; # served 2,460

2) Professional and Health Care: statewide mailing of M.G. disease Handbook to Neurologists and Medical libraries. # served 450

3) Public Education: 000 M.G. flyers enclosed in local banks customer statements.The Oklahoma Chapter of the Myasthenia Gravis Foundation Inc. provides free literature to all patients, family members, health care professionals, to schools, libraries and to the public at large. The Chapter sends out lengthly newsletters quarterly.We offer Patient Support Group meetings in Tulsa and Oklahoma City, informal physician referral service and provide emergency indigent patient prescription assistance for MG medication as long as funds are available.

Category

Diseases, Disorders & Medical Disciplines

Population(s) Served

General Public/Unspecified

Budget

$33,484.00

Charting Impact

Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

  1. What is the organization aiming to accomplish?
    To reach out to those that are not yet diagnoised, to those that are diagnoised with myasthenia gravis, but not aware of our support system and to share information and literature with the health care professionals that treat those that have the disease myasthenia gravis.
  2. What are the organization's key strategies for making this happen?
    Not available.
  3. What are the organization's capabilities for doing this?
    Not available.
  4. How will they know if they are making progress?
    Not available.
  5. What have and haven't they accomplished so far?
    Not available.
Service Areas

Self-reported

Oklahoma

State of Oklahoma

Funding Needs

1) Operating funds needed. 2) Donations for newsletter mailing expenses needed. 3) Donation of money &/or ink refills for printers. 4) In-kind donation of printing requested

photos



External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

M. G. F. A. Oklahoma Chapter
Fiscal year: Jan 01-Dec 31

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Operations

The people, governance practices, and partners that make the organization tick.

The Oklahoma Chapter of the Myasthenia Gravis Foundation of America, Inc.

Leadership

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  • Address, phone, website and contact information
  • Forms 990 for 2012, 2012 and 2012
  • Board Chair and Board Members
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Principal Officer

Mrs. Peggy Foust

Vice-President

Margret Feller

BIO

Peggy Foust, Executive Director is the daughter-in-law of a myasthenic. When MG first struck her family member, there was no state MG support group to help, no local organization where the family could turn to for MG information. It is important to her to be able to lend a helping hand to the newly diagnoised, provide information to those that find themselves facing a disease that they probably never heard of and feeling terribly scared about. She has been involved with the Oklahoma Chapter of the Myasthenia Gravis Foundation Inc. since its beginning in 1981. First as a volunteer, then board member. She has been ED since 1999.

Governance

BOARD CHAIR

none none

none

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?