Medical Research

Christopher Reeve Foundation A New Jersey Nonprofit Corporation dba Christopher and Dana Foundation

  • Short Hills, NJ
  • http://www.ChristopherReeve.org

Mission Statement

The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research(http://www.christopherreeve.org.org/research) , and improving the quality of life(http://www.christopherreeve.org.org/qol) for individuals living with paralysis through grants, information and advocacy.

Main Programs

  1. Program 1
  2. Christopher & Dana Reeve Paralysis Resource Center (PRC)
  3. The Reeve Foundation Neurorecovery Network
  4. Reeve Foundation's North American Clinical Trials Network (NACTN)
  5. International Research Consortium on Spinal Cord Injury

service areas

International

Self-reported by organization

ruling year

1989

chief executive

Mr. Peter T Wilderotter

Self-reported by organization

Keywords

paralysis, spinal cord injury, repair, regeneration, research, neuroscience, quality of life, christopher reeve

Self-reported by organization

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EIN

22-2939536

Also Known As

Reeve Foundation

Contact

Cause Area (NTEE Code)

Nerve, Muscle, Bone Research (H50)

Fund Raising and/or Fund Distribution (H12)

Alliance/Advocacy Organizations (E01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Impact statement

The Christopher & Dana Reeve Foundation Paralysis Resource Center(http://www.paralysis.org) promotes the health and well-being of individuals living with a spinal cord injury, mobility impairment, and paralysis by providing comprehensive information, resources and referral services.

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Reeve Foundation Programs/Services: Research Programs The Christopher and Dana Reeve Foundation is recognized as the premier spinal cord injury research organization throughout the world. Our research strategies cover an entire spectrum beginning with recruiting new investigators to the field of SCI research, providing seed money to basic researchers that eventually develop breakthroughs supported by the National Institutes of Health and other funding sources, to efforts in taking bench research into the clinic for application to patients around the globe. Our Individual Research Grants Program, our largest, most comprehensive research initiative, focuses on the underlying biological mechanisms of spinal cord injury and repair. This program allows investigators to take smart risks with bold ideas, and turn them into catalytic breakthroughs. The mission of the Foundation's International Research Consortium on Spinal Cord Injury is to promote repair and functional recovery in the chronically injured spinal cord through collaborative research focused on optimizing the intrinsic capacity of the adult nervous system to repair and remodel itself, and elicit robust regeneration after injury. The goal of the Reeve Foundation's North American Clinical Trials Network (NACTN) is to bring promising and evidence-based therapies for SCI from the laboratory to the patient population in a way that will provide effectiveness while ensuring safety to patients undergoing treatment. The Reeve Foundation has brought together eight leading clinical research centers and a bio-statistical center to create the Clinical Trials Network. Together with a similar European clinical network, NACTN is building the foundation for a global cross-collaboration that will help speed therapeutic development and deliver useful therapies to people who need them. The Foundation's NeuroRecovery Network (NRN) was launched to provide support for the development of specialized centers that provide standardized care based on current scientific and clinical evidence for people with spinal cord injury and other selected neurological disorders. Initially, the NRN will focus on Body Weight Support Treadmill Therapy. Quality of Life Programs The Foundation funds a variety of national, regional and local initiatives that benefit both children and adults living with paralysis, especially those with spinal cord injuries. These grants are designed to substantially improve opportunities, access and day-to-day quality of life for individuals living with disabilities, primarily paralysis, and their families. Christopher & Dana Reeve Paralysis Resource Center (PRC) In May 2002, the PRC opened its doors to promote the health and well being of people living with paralysis and their families by providing comprehensive information resources and referral services. The PRC houses a national clearinghouse library of paralysis-related publications, maintains a constantly evolving self-help Web site, and publishes an extensive print manual, The Paralysis Resource Guide. Advocacy The Christopher and Dana Reeve Foundation also works vigorously work to increase federal dollars towards paralysis research. The Action Network is the Foundation's online advocacy forum that encourages individuals and supporters to become informed activists. Through the efforts of the Reeve Foundation coupled with the growing membership of the Action Network, our voices will continue to be heard to promote increased federal dollars for research and increasing the rights of people living with disabilities.

Category

Budget

Population Served

Program 2

Christopher & Dana Reeve Paralysis Resource Center (PRC)

The Paralysis Resource Center (PRC) offer resources on spinal cord injury, paralysis and mobility related disabilities. The PRC is a program of the Christopher & Dana Reeve Foundation formed through a cooperative agreement with the Centers for Disease Control and Prevention (grant/cooperative agreement number 1U59DD000338) and assisted by a 40 member Paralysis Task Force whose mission is to provide a comprehensive, national source of information for people living with paralysis and their caregivers to promote health, foster involvement in the community and improve quality of life.

Category

People/Families with of People with Disabilities

Budget

Population Served

Physically Disabled nec

Disabled, General or Disability Unspecified

Military/Veterans

Program 3

The Reeve Foundation Neurorecovery Network

The Reeve Foundation NRN is a perfect example of basic science being translated to the clinic and changing lives. Funded by the Foundation through a cooperative agreement with the Centers for Disease Control and Prevention, it is a network of cutting-edge rehabilitation centers whose staffs have been trained in intensive activity-based treatments. In additional to financial support, the Foundation provides administrative and managerial support to the NRN.

Category

People/Families with of People with Disabilities

Budget

Population Served

Physically Disabled nec

Disabled, General or Disability Unspecified

None

Program 4

Reeve Foundation's North American Clinical Trials Network (NACTN)

The mission of the North American Clinical Trials Network for the Treatment of Spinal Cord Injury is to bring promising therapies out of the laboratory and into clinical trials, in a manner that provides incontrovertible evidence of effectiveness and safety. The North American group is collaborating with a similar network in Europe, and one just now forming in Canada, to define the natural history of spinal cord injury and develop measures for assessing treatment success. It is hoped that these collaborations will provide the foundation for a global network that will speed therapeutic development and ensure that powerful new therapies will be made available to those in need.

Category

People/Families with of People with Disabilities

Budget

Population Served

Physically Disabled nec

Disabled, General or Disability Unspecified

None

Program 5

International Research Consortium on Spinal Cord Injury

Over the years, Consortium members have made some of the key discoveries that have led directly to potential spinal repair treatments. Four such interventions for recovery of function after spinal cord injury are currently in trials or near to trials. Discoveries by Consortium laboratories have been the foundation of each of these advances.

Category

People/Families with of People with Disabilities

Budget

Population Served

Physically Disabled nec

Disabled, General or Disability Unspecified

None

service areas

International

Self-reported by organization

Blog

The organization's Blog

Social Media

@ReeveFoundation

@ReeveFoundation

@107119454075600109662

@christopher-and-dana-reeve-foundation

@ReeveFoundation

@ReeveFoundation

@ReeveFoundation

@ReeveFoundation

Videos

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

CHRISTOPHER REEVE FOUNDATION
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Christopher Reeve Foundation A New Jersey Nonprofit Corporation dba Christopher and Dana Foundation

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2012
  • Board Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
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CHIEF EXECUTIVE FOR FISCAL YEAR

Mr. Peter T Wilderotter

BIO

I have worked in the Independent (non-profit) Sector for my entire career. We provide that valuable intersection in areas where the market isn't ready or isn't interested in the problem or solution and the government isn't capable. When we click, a synergy is created that is unstoppable.

What inspires our board and staff is following through on and achieving in our lifetimes what Christopher & Dana so generously and courageously started. This is a civil rights movement and although the baton was passed to us in the most unfair and sad way, we will hold it brightly and with our founders' optimism until we reach the finish line.

STATEMENT FROM THE CEO

"What inspires our board and staff is following through on and achieving in our lifetimes what they so generously and courageously started. This is a civil rights movement and although the baton was passed to us in the most unfair and sad way, we will hold it brightly and with our founders' optimism until we reach the finish line."

Governance

BOARD CHAIR

John M Hughes

TopCoder, Inc

BOARD LEADERSHIP PRACTICES

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BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


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CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


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ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


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BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?