Disease, Disorders, Medical Disciplines

Northeastern Pennsylvania Transplant Support Group

  • East Stroudsburg, PA
  • http://www.nepatsg.org. - www.epahcc.org / www.nepatsg.org/hepatitis

This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.


This organization's exempt status was automatically revoked by the IRS for failure to file a Form 990, 990-EZ, 990-N, or 990-PF for 3 consecutive years. Further investigation and due diligence are warranted.

Mission Statement

Founder Howard Kindred Sr. who had a liver transplant( Infected with hepatitis C virus (HCV) (due to blood transfusion in 1971) in 1995, formed this organization to help guide transplant candidates through the process. Before this organization was formed there was no help for people like us in a 100-mile radius in PA. We have developed the following programs for donor families: a) gift of life donor medal. b) Donor family quilt.For candidates and recipients: a) Hot line contact for new transplant candidates and recipients. b) Conduct meetings devoted to support and latest news for candidates and recipients. c) Transplant express where we transport members to their hospital for appointments. d) Establish hospital support program. e) Our quarterly newsletter (Organ Times) Resource hot line for help with transplant related matters.

Education support: a) Educate the public through our speakers bureau. b) Talk to school students c) Coordinate with our organ procurement organization and schools. d) Work with community organizations and lend advice on related matters. e) Increase communication through our newsletters and develop donor awareness.

We also have a Hepatitis Division started in 1998 in which many of the programs above is included for patients with hepatitis C.

      In 2003 we added a third division called Eastern Pennsylvania Hepatitis C Coalition (EPAHCC) which serves the United States through our web site and direct mail of our HCV home test kits for Hepatitis C Virus (HCV). 

   Through our three web sites we can now serve all residents of the United States and Internationaly of english speaking areas.  For help with organ transplantation process and Heapatitis C Virus testing, therapy and disease questions.

   On April 2, 2008 our founder Howard Kindred Sr. received a second Liver transplant at University of Pittsburgh Medical Center (UPMC).

Main Programs

  1. Program 1
  2. Toll Free Phone Hot Line / Hepatitis c Community Outrearch Prgms,

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Service Areas

Self-reported

International

United States and all other countries.

ruling year

1999

Principal Officer since 2011

Self-reported

Mr. Howard Kindred Sr.

Co Principal Officer since 2011

Self-reported

Dr. Daniel Duprey MD.

Keywords

Self-reported

Hepatitis C, Liver, Organ, Organ Transplants, Hepatitis C, HCV and HBV.

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Also Known As

Nepatsg Inc./ Nepatsg / Hepatis Div. Epahcc Div.

EIN

23-2950024

 Number

4462972960

Physical Address

8585M Marshalls Creek Rd.

Marshalls Creek, PA 18335

Contact

Cause Area (NTEE Code)

Digestive Diseases, Disorders (G70)

Specific Organ Research (H40)

Diseases of Specific Organs (G40)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

As Mr. Kindred States his heroes are the donor families that honor their loved ones wishes to be an organ donor and the donor themselves.  For without them all transplant candidates would not be alive to see the sun rise.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

NEPATSG has had many news articles published in the Pocono Record and is the only organ transplant organization in the 13 counties of Northeast PA. For transplant candidates, recipients and their families. In Monroe county we have a yearly resolution from the commissioners' office for both divisions a) Hepatitis C Awareness Week b) Transplant Candidate, Recipient and Donor Family Week. Through our network we freely counsel transplant candidates,recipients and their families of our transplant division and do the same for patients of our hepatitis division. Besides holding monthly informational meetings, our speakers bureau from both divisions educate high school, college students and community civic organizations throughout the area. Educating the public about the misconceptions of organ donation and hepatitis C virus.

Category

Population(s) Served

Budget

Program 2

Toll Free Phone Hot Line / Hepatitis c Community Outrearch Prgms,

Where people can call and ask questions on the following subjects:

Community Outrearch Prgms. Where we pay doctors Honorariums to educate HCV support groups on various subjects throughout the state.
HCV Home Test Kit Campaign. The public in the high risk category can request a test kit free of charge and test themselves in the privacy of their homes confidentialy.  We do ask for a $10.00 contribution for each test kit mailed.  We have a certified hepatitis C corrdinator to answer questions. Also a post transplant volunteer to answer organ transplant questions.  We also sponsor  support group meetings for organ transplant community and the HCV community.

Category

Diseases, Disorders & Medical Disciplines

Population(s) Served

Poor/Economically Disadvantaged, Indigent, General

General Public/Unspecified

Substance Abusers (Drug/Alcohol Abusers)

Budget

$53,000.00

Service Areas

Self-reported

International

United States and all other countries.

Funding Needs

We have our annual organ & tissue donor awareness walk, which helps us mantain our operating budjet.  Grant writing helps with our educational programs.

External Reviews

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Financials

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Operations

The people, governance practices, and partners that make the organization tick.

Northeastern Pennsylvania Transplant Support Group

Leadership

NEED MORE INFO ON THIS NONPROFIT?

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  • Address, phone, website and contact information
  • Forms 990 for 2009, 2008 and 2008
  • Board Chair, Board Co-Chair and Board Members
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Principal Officer

Mr. Howard Kindred Sr.

Co Principal Officer

Dr. Daniel Duprey MD.

BIO

Our founder Howard Kindred Sr. has received many awards from the Gift of Life Donor Program OPO (organ procurement organization), the Monroe County Commissioners' Office and the PA. Dept of Health.  For his efforts to increase awareness of the benefits of organ and tissue donation, transplantation and hepatitis C awareness through the Northeastern Pennsylvania Transplant Support Group Inc.
He is also a member of Pocono Medical Center's Organ Donor Council, and has received various awards from community civic organizations.

He has also founded the Eastern Pennsylvania Hepatitis C Coalition (EPAHCC) and the NEPATSG / Hepatitis Division.

In 2008 he received his second liver transplant due to Hepatic Artrey Thombosiss (HAT).

STATEMENT FROM THE Principal Officer

"Our organization is headquartered in the basement of our founder's home, saving funds not being spent on rent, making every pennie received work very hard for educational programs for people in need of information about organ transplantation and hepatitis infection and therapy."

Governance

BOARD CHAIR

Howard Raymond Kindred Sr.

No Affiliation

Term: Aug 2011 - May 2015

BOARD LEADERSHIP PRACTICES

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BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


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CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


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BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?