Disease, Disorders, Medical Disciplines

Cure Starts Now Inc

  • Cincinnati, OH
  • www.thecurestartsnow.org

Mission Statement

Our mission is to educate and aid families battling cancer with patient centered programs focusing on facilitating continued interaction between school and patients through Monkey In My Chair program. As well as fund cures for pediatric brain cancer.

Main Programs

  1. Pediatric Cancer Research Funding
  2. Monkey In My Chair Program
  3. DIPG Symposium & Collaborative
Service Areas

Self-reported

International

Serves children battling cancer worldwide.

ruling year

2007

Principal Officer since 2007

Self-reported

Ms Brooke Desserich

Keywords

Self-reported

pediatric cancer research monkey in my chair

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Also Known As

Monkey in My Chair

EIN

26-0269131

 Number

4541920302

Physical Address

10280 Chester Rd

Cincinnati, 45215

Contact

Cause Area (NTEE Code)

Cancer (G30)

Fund Raising and/or Fund Distribution (E12)

Children's and Youth Services (P30)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

It started with just one child. It started with just one heart. Today, The Cure Starts Now Foundation is one of the only cancer foundations dedicated to a “homerun” cure for all cancers, starting first with one of the most deadly and difficult cancers: pediatric brain cancer. 

The Cure Starts Now represents a revolutionary new strategy in cancer research; one that fights cancer not according to numbers but instead based on knowledge and research. And isn’t that the way we’ll ultimately win the battle? The Cure Starts Now has helped fund over $2,800,000 in research, awareness and programs. With its focus on a “homerun cure” for all cancers.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Pediatric Cancer Research Funding

The Cure Starts Now Cancer Research Foundation
(501c3 Federal Non-Profit) is one of the only cancer foundations dedicated to a
“homerun” cure for all cancers, starting first with one of the most deadly and
difficult cancers: pediatric brain cancer.Many experts believe that the lessons we learn from fighting pediatric
cancer may in fact provide us the critical first step in winning the battle
against all forms of cancer, both pediatric and adult.
The Cure Starts Now represents a revolutionary new
strategy in cancer research; one that fights cancer not according to numbers
but instead based on knowledge and research.And isn’t that the way we’ll ultimately win the battle?
The Cure Starts Now’s mission is one that knows no
boundaries and stops at no borders.It
is an international effort of families, friends, businesses and even strangers,
united in the desire to cure cancer, one child at a time.And it all started with one child, but today
the inspiration is carried with us all.

  

In our search for the cure, we are not alone.Joined by institutions, foundations and
individuals, The Cure Starts Now has been involved with the funding of over
$1,000,000 in pediatric cancer research since its creation occurring at over 17
of the best hospitals and institutions worldwide.From state-of-the-art mouse modeling to
unprecedented registry cooperation and drug screening, some of the very best in
cancer research is possible because of your support.

Category

Diseases, Disorders & Medical Disciplines

Population(s) Served

Children and Youth (infants - 19 years.)

Budget

Program 2

Monkey In My Chair Program

Primary aged children diagnosed with cancer are often
removed from school for extended amounts of time to tend to medical needs.The majority of these children return to
school, but often find difficulty with maintaining a relationship with
classmates.Teachers often are
ill-trained for these situations and struggle to help both the patient and the
classmates with the overwhelming questions and feelings associated with the
cancer diagnosis and absence from the classroom.Monkey in My Chair program eases the divide
created by removing cancer patients from the classroom during treatment and
provides teachers valuable resources to manage a classroom devastated by a
cancer diagnosis.
Monkey in My Chair provides a monkey pack to any child
diagnosed with cancer.The large monkey
serves as a physical reminder to the classroom that their classmate is still a
part of the classroom community.Materials
are provided to the teacher to help train them on managing the questions and
feelings.Patients are provided with a
smaller monkey to remind them that a “buddy” is holding their place in the
classroom.Online interaction tools such
as “Monkey Mail” and online educational games, keep lines of communication open
between classmates and patients.In this
online community, suggested activities for both patients and classrooms offer
ways to keep the relationship strong through the absences while still providing
educational content.The program
provides a supportive atmosphere for both parties through a difficult and
emotional time while making re-entry into the classroom effortless for the
patient.

Category

Health Care

Population(s) Served

Children and Youth (infants - 19 years.)

Budget

Program 3

DIPG Symposium & Collaborative

2012 The Cure Starts Now became a founding member of
the Diffuse Intrinsic Pontine Glioma Collaborative.  Initially a product of the DIPG Symposium of
2011 held in Cincinnati, today the DIPG Collaborative involves the combined
efforts of 12

foundations, all unified in the pursuit of the cure to DIPG.Common to our own origins, this cancer not
only plagues our children, but has also been identified as one of the main
battles in our fight for a “homerun” cure for all cancers, principally because
of its natural resiliency to most treatment methods thereby forcing us to do more.

Category

Diseases, Disorders & Medical Disciplines

Population(s) Served

Children and Youth (infants - 19 years.)

Budget

Charting Impact

Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

  1. What is the organization aiming to accomplish?
    Educate, Aid and Fund Cures for Pediatric Brain Cancer.The Cure Starts Now represents a revolutionary new strategy in cancer research; one that fights cancer not according to numbers but instead based on knowledge and research. The Cure Starts Now’s mission is one that knows no boundaries and stops at no borders. It is an international effort of families, friends, businesses and even strangers, united in the desire to cure cancer, one child at a time. And it all started with one child, but today the inspiration is carried with us all.
  2. What are the organization's key strategies for making this happen?
    We seek to educate through awareness campaigns and our bi-annual DIPG Symposium. The Cure Starts Now aids families battling cancer with our Monkey in My Chair program as well as our assistance funds. Lastly, each year, thanks to our extensive network of chapters and families, we are able to use money raised to fund research selected through an extensive grant process with our highly specialized Medical Advisory Council.
  3. What are the organization's capabilities for doing this?
    Through our extensive network of chapters and families, we are able to use money raised to fund research selected through an extensive grant process with our highly specialized Medical Advisory Council. We are also able to provide unlimited quantities of Monkey in My Chair kits to hospitals and families nationwide. With our bi-annual DIPG Symposium, we work with researchers and institutions to ensure that research data is being shared and efforts are made to collaborate on research.
  4. How will they know if they are making progress?
    For our Monkey in My Chair program our success indicators are a growth not only in the number of hospitals the program is activ ein, but also the number of kits shipped and registered. Each year this number increases. For research, our success indicators are the amount of money that is spent on research each year.
  5. What have and haven't they accomplished so far?
    Since the inception of the charity we have raised over $2.6 million in research funded and held two successful DIPG Symposiums.
Service Areas

Self-reported

International

Serves children battling cancer worldwide.

Social Media

Funding Needs

Every time you support The Cure Starts Now you help fund the most innovative research, but also help fund programs like Monkey in My Chair that keeps children connected to their classrooms while they are away receiving treatment.

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

THE CURE STARTS NOW
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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  • Board Chair and Board Members
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Operations

The people, governance practices, and partners that make the organization tick.

Cure Starts Now Inc

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2014 and 2013
  • Board Chair and Board Members
  • Access to the GuideStar Community
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Principal Officer

Ms Brooke Desserich

STATEMENT FROM THE Principal Officer

"Curing cancer, one child at a time. It’s how The Cure Starts Now was founded five years ago and remains our foremost goal still today. In many ways, our efforts are unlike the mission of any other charity: to cure cancer by focusing on those cancers that experts believe will offer us clues to a universal cure for cancer rather than simply fighting cancer by the numbers.
Still, in the beginning, “the cure starts now” wasn’t just a name, it was a promise. Written as a pledge in a journal entry to our daughters, it underscored the need to revolutionize the way we fight cancer while offering hope to those cancers too often lacking fundamental research. Today, The Cure Starts Now is one of the fastest growing pediatric cancer charities in the world, with 26 chapters, all committed to a cure for cancer through science and translational research.
In our search for the cure, we are not alone. Joined by institutions, foundations and individuals, The Cure Starts Now has been involved with the funding of over $1,000,000 in pediatric cancer research since its creation occurring at over 17 of the best hospitals and institutions worldwide. From state-of-the-art mouse modeling to unprecedented registry cooperation and drug screening, some of the very best in cancer research is possible because of your support.
Today, more than ever, I can say that the promise we made to both our daughters, Elena and Gracie, is becoming more of a reality each and every day. And it is because of your support that one day we will find that cure for all.
Brooke A. Desserich
Co-Founder & Executive Director"

Governance

BOARD CHAIR

Mr. Keith Desserich

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization

Yes

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?


ORGANIZATIONAL DEMOGRAPHICS

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

Gender
This organization reports that it does not collect this information for Volunteers.
Race & Ethnicity
This organization reports that it does not collect this information.
Sexual Orientation

This organization reports that it does not collect this information.

Disability

This organization reports that it does not collect this information.

Diversity Strategies
No
We track retention of staff, board, and volunteers across demographic categories
No
We track income levels of staff, senior staff, and board across demographic categories
No
We track the age of staff, senior staff, and board
No
We track the diversity of vendors (e.g., consultants, professional service firms)
No
We have a diversity committee in place
No
We have a diversity manager in place
No
We have a diversity plan
No
We use other methods to support diversity