Arts, Culture, and Humanities

Muscular Dystrophy Family Foundation, Inc.

  • Carmel, IN
  • www.mdff.org

Mission Statement

The Muscular Dystrophy Family Foundation, Inc. exists to provide resources, services, home medical equipment, adaptive devices and clinic services to enable individuals affected with a neuromuscular disease and their family members to live independent and productive lives. MDFF conducts no research and holds no telethon to raise funds nor does it benefit from those who do.

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ruling year

1960

Principal Officer

Self-reported

Ms. Judith Duncan

Keywords

Self-reported

Wheelchairs, muscular dystrophy, neuromuscular diseases, Duchennes, clinic, advocacy, ramps, financial assistance

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EIN

35-1040153

 Number

3687455016

Also Known As

MDFF

Contact

Cause Area (NTEE Code)

Humanities Organizations (A70)

Minority Rights (R22)

Specialized Education Institutions/Schools for Visually or Hearing Impaired, Learning Disabled (B28)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

Programs + Results

How does this organization make a difference?

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

MDFF offers the following services: Assistance with diagnosis, prognosis, therapy services, adaptive equipment and advocacy. Provides services through a children's clinic and an adult clinic. Enable individuals to have a better understanding of the different stages of the disease. Provide and locate financial assistance as needed. Conduct educational and informational programs. Provide and distribute materials on the resources of the agency and other service providers. Speakers bureau,school and work advocacy and grief counseling.

Category

Population(s) Served

Budget

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Financials

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Operations

The people, governance practices, and partners that make the organization tick.

Muscular Dystrophy Family Foundation, Inc.

Leadership

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Free: Gain immediate access to the following:
  • Address, website and contact information
  • Forms 990 for 2015, 2014 and 2013
  • Board Members
  • Access to the GuideStar Community
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Principal Officer

Ms. Judith Duncan

BIO

Under the direction of Ms. Duncan the Muscular Dystrophy Family Foundation, (MDFF) has grown from a single state provider to a national provider presently serving clients on a national basis. Duncan, a native of Indiana, has served in the non-profit field for over 20 years in Florida and Indiana. She is a strong advocate for the disabled and believes there should be No Boundaries for anyone with a disability. She is a certified Bereavement Counselor, graduate of Indiana Wesleyan University and has been published in EP magazine

Governance

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?