Disease, Disorders, Medical Disciplines

Amyotrophic Lateral Sclerosis Association

  • Indianapolis, IN
  • www.alsaindiana.org

Mission Statement

To lead the fight to cure and treat ALS through global, cutting-edge
research, and to empower people with Lou Gehrig’s disease and their
families to live fuller lives by providing them with compassionate care
and support.

Service Areas

Self-reported

Indiana

Serving ALS patients and families throughout the State of Indiana

ruling year

1990

Principal Officer since 2008

Self-reported

Ms. Jennifer Lewellen

Keywords

Self-reported

ALS, amyotrophic, Lou Gehrig's disease, ALSA, The ALS Association, ALS Association of Indiana

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Also Known As

ALSA

EIN

35-2029321

 Number

4643595685

Physical Address

6525 E. 82nd St., Ste. 115

Indianapolis, IN 46250

Contact

Cause Area (NTEE Code)

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Nerve, Muscle and Bone Diseases (G50)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

In the quest to create a world without ALS, our vision is to care
for and support all people living with Lou Gehrig’s disease as we leave
no stone unturned in our relentless search for a cure.

We will achieve our vision by upholding our commitment to be the:

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

ALS's operating programs focus on educating people with ALS (PALS) and their families about living with ALS. This is done through: a comprehensive network of support groups; providing financial support for respite care services, workshops including our Annual Caregivers Conference, Ask the Doctor and a 3-part series for Newly Diagnosed Patients and seminars for respite care providers; The ALS Informer, our quarterly newsmagazine, provides practical information for PALS, their families and caregivers; and our support groups offer PALS and their families an opportunity to talk with and share information with other people in similar situations. Additionally, our medical social worker links people with critically needed community services and helps them through the health care insurance system. For those in need, the Equipment Loan Closet provides needed durable medical equipment to PALS free of charge.

Category

Population(s) Served

Budget

Service Areas

Self-reported

Indiana

Serving ALS patients and families throughout the State of Indiana

Funding Needs

The ALS Association of Indiana is completely donor and grant funded. We need financial assistance with operations, awareness initiatives, patient services programming, funding our multidisciplinary clinic, new laptops, a server and staffing.

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC
Fiscal year: Feb 01-Jan 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Amyotrophic Lateral Sclerosis Association

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2015, 2014 and 2013
  • Board Chair and Board Members
  • Access to the GuideStar Community
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Principal Officer

Ms. Jennifer Lewellen

STATEMENT FROM THE Principal Officer

"Jennifer Lewellen officially became the Executive Director of the ALS Association of Indiana in February of 2008. Prior to joining the organization, she was on the Board of Directors for nearly 5 years, captained two walk teams and volunteered for the Central Indiana walks. Jennifer?s expertise is in developing relationships and partnerships, growing programs and organizations, building awareness, and fundraising. Some of Ms. Lewellen's past roles include Independent Consultant, Director of Career Services for a large proprietary college, Director of a state-wide workforce development initiative, and Vice President of an entrepreneurial computer solutions company."

Governance

BOARD CHAIR

Ms Elizabeth Stahl

EJ Stahl

Term: Oct 2009 - Nov 2011

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?