Medical Research

NEPHCURE KIDNEY INTERNATIONAL

  • King of Prussia, PA
  • www.nephcure.org

Mission Statement

NephCure Kidney International is the only nonprofit organization committed exclusively to support research seeking the cause of the potentially debilitating kidney diseases, Nephrotic Syndrome and Focal Segmental Glomerulosclerosis (FSGS), improve treatment and find a cure. NephCure is consists of patients and their families and friends, as well as researchers, physicians and other healthcare professionals joining forces to create awareness and generate funding for research.

Main Programs

  1. Research
Service Areas

Self-reported

International

NephCure Kidney International funds and supports research throughout the world to find the cause and cure for primary Nephrotic Syndrome and FSGS.

ruling year

2001

CEO since 2014

Self-reported

Mr. Mark Stone

Keywords

Self-reported

kidney disease, FSGS, Nephrotic Syndrome, MCD, glomerular

Sign in or create an account to view Form(s) 990 for 2014, 2013 and 2013.
Register now

EIN

38-3569922

 Number

8177401116

Physical Address

150 S. Warner Rd Suite 402

King of Prussia, PA 19406 2803

Contact

Cause Area (NTEE Code)

Kidney (H44)

Biological, Life Science Research includes Marine Biology, Physiology, Biochemistry, Genetics, Biotechnology, etc.) (U50)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

We aim to help science unlock the biological mechanisms that cause these serious conditions and ultimately find a way to cure and prevent them. Until that day, we will:

Provide information, education, support and advocacy for patients and their families
Raise public awareness of Nephrotic Syndrome and FSGS
Work to attract researchers to this field
Conduct public and private fundraising that will produce substantial research grants
Work with the National Institutes of Health and other agencies to increase funding for research

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Research

NKI has launched a clinical trial network to accelerate promising trials of FSGS treatments.

Category

Health Care

Population(s) Served

General Public/Unspecified

Adults

Budget

Charting Impact

Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

  1. What is the organization aiming to accomplish?
    NKI aims to accelerate research into the treatment and cure for FSGS and Nephrotic Syndrome.
  2. What are the organization's key strategies for making this happen?
    We have launched the NephCure Accelerating Cures Institute (NACI) to make clinical trials and research more readily available for patients and pharmaceutical companies.
  3. What are the organization's capabilities for doing this?
    With the launch of NACI, we have a best-in-class clinical trial network that will fast-track new treatments for FSGS and Nephrotic Syndrome.
  4. How will they know if they are making progress?
    Progress indicators include FDA approved treatments and better standards of care.
  5. What have and haven't they accomplished so far?
    We have contracted with 6 sites so far and are looking for 30 more in the next 12-18 months. We have been instrumental in the first successful trial for FSGS.
Service Areas

Self-reported

International

NephCure Kidney International funds and supports research throughout the world to find the cause and cure for primary Nephrotic Syndrome and FSGS.

Social Media

Funding Needs

As a research accelerating organization, NephCure is currently funding a clinical trial network (the NephCure Accelerating Cures Institute) to bring treatments and a cure to patients faster. Our funding needs are centered around keeping these trial sites operating at maximum efficiency. Our second priority is to support and educate patients and their families. We are holding multiple Regional Symposium with the best and brightest scientists in the country. These can be costly, but they offer such a benefit to our patient community.

External Reviews

Source: greatnonprofits.org

The review section is powered by Great Nonprofits

Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

NEPHCURE KIDNEY INTERNATIONAL
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

Sign in or create an account to view this information

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2013
  • Board Chair and Board Members
  • Access to the GuideStar Community
Get all this now for free
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

Operations

The people, governance practices, and partners that make the organization tick.

NEPHCURE KIDNEY INTERNATIONAL

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2013
  • Board Chair and Board Members
  • Access to the GuideStar Community
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

CEO

Mr. Mark Stone

Governance

BOARD CHAIR

Irving Smokler PhD

No affiliation

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?