Disease, Disorders, Medical Disciplines

Be The Match Foundation

  • Minneapolis, MN
  • www.bethematch.org

Mission Statement

Be The Match Foundation supports the life-saving mission of Be The Match/National Marrow Donor Program, ensuring that patients diagnosed with blood cancers such as leukemia and other diseases get the marrow or cord blood transplant they need for a second chance at life. A transplant offers hope for a cure. We connect patients with their genetically matched donors and provide comprehensive support throughout the transplant journey, from diagnosis through recovery, and we conduct medical research to improved outcomes and quality of life for transplant patients. Out patients and donors are primarily in the United States, but many donors and patients served by our mission are based internationally; at locations throughout the globe.

Main Programs

  1. Be The Match Registry
  2. Patient Assistance Program
  3. Center for International Blood and Marrow Transplant Research (CIBMTR)

service areas

International

Self-reported by organization

ruling year

1992

chief executive for fy 2016

Joy King

Self-reported by organization

Keywords

Be the Match, bone marrow, transplantation, transplant research, blood cancers, leukemia, patient support, medical education,cellular therpies,

Self-reported by organization

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EIN

41-1704734

Contact

Cause Area (NTEE Code)

Cancer (G30)

Fund Raising and/or Fund Distribution (H12)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Impact statement

For patients with blood cancers like leukemia and lymphoma, and other life-threatening diseases, a cure exists. But 70% of patients do not have a matching marrow donor in their family and depend on the selfless generosity of genetically matched strangers who donate their cells. Be The Match connects patients with their donors and facilitates the transplant process. Thanks to you—our community of marrow donors, volunteers, health care professionals, researchers and financial supporters—more patients every year are finding a match and receiving the life-saving transplant they need. Thanks to your support, we continue to: Facilitate more transplants every yearGrow and manage the world's largest and most diverse donor registrySupport patients and their families before, during and after transplantConduct research and education to expand treatment and improve outcomesEngage the public in our life-saving mission In 2013, Be The Match: Facilitated 6,300 transplants. In Kansas and Missouri, we served more than 170 patients.Added 539,000 potential marrow donors to Be The Match Registry. 237,000 (44%) were racially and ethnically diverse, increasing the likelihood that every patient will find a match. In Kansas and Missouri, nearly 114,000 residents have joined our cause by becoming marrow volunteers.Provided $3.2 million to 1,807 patients to help them cope with out-of-pocket expenses. In Kansas and Missouri, 61 patients received nearly $102,000 in financial assistance.Responded to more than 15,000 requests for one-to-one counseling, financial guidance and support, and educational resources. Our goal is to lower access barriers faced by patients so more lives can be saved: Increase the number of patients who are able to find a matching donor by adding racially and ethnically diverse marrow volunteers to Be The Match Registry.Increase the number of financially vulnerable patients who receive assistance for their uninsured expenses.

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Be The Match Registry

Be The Match Registry® is dedicated to creating an opportunity for all patients to receive the marrow or umbilical cord blood transplant they need, when they need it. It is the largest and most diverse donor registry in the world. Our partnerships with international and cooperative registries provide doctors with access to nearly 24.5 million potential donors and more than 622,000 cord blood units worldwide.

WE STRIVE TO:
• Increase diversity
• Attract committed donors
• Fundraise to support the mission
• Add more umbilical cord blood units
• Partner with clinicians to provide optimal care

Category

Diseases, Disorders & Medical Disciplines

Budget

Population Served

General Public/Unspecified

General Public/Unspecified

Program 2

Patient Assistance Program

Not everyone can afford the life-saving treatment they need. Costs such as the search for a marrow donor, complex matching, travel and lodging when the transplant center is far from home, prescription co-pays and many other transplant-related costs may not be covered by insurance. Be The Match is dedicated to making transplant possible for all patients – but we can’t do it alone. We rely on generous contributions to help patients receive the transplant they need.

Category

Diseases, Disorders & Medical Disciplines

Budget

Population Served

General Public/Unspecified

General Public/Unspecified

Program 3

Center for International Blood and Marrow Transplant Research (CIBMTR)

Without research focused exclusively on transplant science, medical breakthroughs would not be possible and patients would not receive a second chance at life. Progress has been made, but more research is needed to advance the field of blood and marrow transplantation. We conduct research through our research program, CIBMTR® (Center for International Blood and Marrow Transplant Research®), in collaboration with the Medical College of Wisconsin. What makes our research program unique?

• We focus exclusively on blood and marrow transplant research
• Our research supports patients at every step in their transplant journey, including matching and recovery
• We operate the Stem Cell Therapeutic Outcomes Database: a program authorized by Congress to collect the detailed results of every allogeneic transplant performed in the U.S.
• Our extensive network of research partners includes more than 500 hospitals and research centers worldwide

Category

Medical Research

Budget

Population Served

General Public/Unspecified

Charting Impact

Five powerful questions that require reflection about what really matters - results.

Self-reported by organization

  1. What is the organization aiming to accomplish?
    Doctors and researchers continue to discover that marrow transplant is a viable treatment option for more diseases and more patients. And Be The Match is leading the way to make sure every patient has a clear path to this potential cure.

    With your help, we will continue to:
    *Grow and diversify the registry
    *Advance transplant research
    *Improve access to treatment

    We are also increasing our network's capacity to help more patients. We are working with the best medical and scientific institutions in the world to speed search and selection of the best cell source for every patient. We are working to support hospital administrators as they expand their transplant programs and reaching out to medical students to consider transplantation as a career.

    Your continued support of our mission is vital. Patients and their families are counting on us.
  2. What are the organization's key strategies for making this happen?
    Not available.
  3. What are the organization's capabilities for doing this?
    Not available.
  4. How will they know if they are making progress?
    Not available.
  5. What have and haven't they accomplished so far?
    Not available.

service areas

International

Self-reported by organization

Blog

The organization's Blog

Social Media

@BeTheMatch

@bethematch

@BeTheMatch

@BeTheMatch

Funding Needs

Sponsor potential marrow donorsPhysicians are 10 times more likely to select younger donors (18-25) to give patients the best chance for a cure. $100 covers genetic testing and adds a young adult to Be The Match Registry.Sponsor a patient family (treatment lasts 3-6 months):$5,000 - Temporary lodging near the hospital$1,000 - Monthly co-pays for prescriptions$500 - Food for caregivers who eat at the hospital$250 - Transportation to ongoing appointmentsFund life-saving research

photos


External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

BE THE MATCH FOUNDATION
Fiscal year: Oct 01-Sep 30
Yes, financials were audited by an independent accountant.

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  • Board Chair and Board Members
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Operations

The people, governance practices, and partners that make the organization tick.

Be The Match Foundation

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2013
  • Board Chair and Board Members
  • Access to the GuideStar Knowledge Base Search
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

CHIEF EXECUTIVE FOR FISCAL YEAR

Joy King

BIO

Joy King joined Be The Match in 2016 and serves as Senior Vice President of Philanthropy and Executive Director for Be The Match Foundation.

She is responsible for leading the Foundation staff and its Board of Directors to significantly grow revenue to advance the life-saving mission of Be The Match. Revenue raised by the Foundation is used to expand access to cellular therapy, provide support for patients and their families experiencing transplant, and fund life-saving research.

With more than 15 years of experience in development leadership roles, King was most recently the Senior Vice President of Operations, for the Midwest division of the American Cancer Society overseeing 250 staff members with an annual fundraising goal of $32 million.

In this role, she led operations for the division including community engagement, distinguished partners and health systems. King was also recently recognized by Minneapolis-St. Paul Business Journal as a 2015 Women in Business honoree.

Her career began with American Cancer Society as Field Representative for Relay for Life in Texas. She was quickly promoted to Regional Executive Director in Texas and then Regional Vice President for Nebraska, transforming the staff into a high performing successful team. In 2013, she took on the role of Vice President of Community Engagement for the Midwest division.

King holds a Bachelor of Science degree from Tarleton State University.


STATEMENT FROM THE CEO

"Every three minutes someone is diagnosed with a blood cancer like leukemia, lymphoma,or other life-threatening disease. And 70 percent of patients do not have a matched marrow donor in their family. They depend on us to find a life-saving match. Thanks to our growing community of financial supporters, marrow donors, volunteers, health care professionals and researchers—more patients are receiving the life-saving marrow or cord blood transplant they need.

Charitable support from individuals, companies, foundations and organizations makes it possible for us to continue to:
• Grow the world's largest and most diverse registry of potential donors
• Support patients and their families before, during and after transplant
• Conduct research and education to expand treatment and improve outcomes
• Engage the public in our life-saving mission"

Governance

BOARD CHAIR

Jiro Okochi

Chief Executive Officer and Co-Founder, Reval

Term: Mar 2011 - Sept 2017

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization

No

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?