Disease, Disorders, Medical Disciplines

National Vulvodynia Association

  • Silver Spring, MD
  • http://www.nva.org

Mission Statement

The NVA strives to improve the lives of women suffering from chronic vulvar pain through education, support, advocacy and research.

Main Programs

  1. Patient Education and Support
Service Areas

Self-reported

International

ruling year

1994

Principal Officer since 2011

Self-reported

Christin Veasley

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EIN

52-1882026

 Number

1349665901

Also Known As

NVA

Contact

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (G01)

Specifically Named Diseases (G80)

Specifically Named Diseases Research (H80)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

Today, the
NVA remains the only non-profit organization worldwide that directly funds
critical  vulvodynia research, advocates
for increased federal funding of vulvodynia research and awareness programs,
supports the establishment of vulvar pain clinics, develops educational
programs for patients and medical professionals, provides supportive services
to affected women and works to increase public awareness of vulvodynia.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Patient Education and Support

1. Patient Education and Support - NVA distributes a printed newsletter, online newsletter and self-help guide. The organization also coordinates an international support network and provides health care provider referrals to women in need.
2. Health Care Provider Education - The NVA disseminates both a printed and electronic newsletter to members of the medical communitiy, maintains an online CME/CE accredited course on vulvoydnia, organizes symposia on the condition and exhibits at national health care conferences.
3. Research Funding and Career Development - NVA advocates for increased federal funding of vulvodynia research, funds pilot medical research studies, and makes an annual career development award to clinicians who want to pursue clinical or research interest in vulvoydnia.
4. Public Awareness - The NVA works with the National Institutes of Health to promote public awareness of vulvodynia, as well as interested media professionals.

Category

Population(s) Served

Adults

Children and Youth (infants - 19 years.)

Budget

Service Areas

Self-reported

International

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

NATIONAL VULVODYNIA ASSOCIATION
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

National Vulvodynia Association

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2014, 2012 and 2012
  • Board Chair and Board Members
  • Access to the GuideStar Community
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Principal Officer

Christin Veasley

BIO

After surviving a nearly fatal car accident in her teens, ensuing
chronic pain led Christin into the study of medical sciences. She received a
Bachelor of Science from the University of Wisconsin in 1997, and worked in the
Department of Neurology at the Johns Hopkins University School of Medicine
investigating the neurophysiological mechanisms of pelvic pain and inflammation
before coming to the NVA. In her current position, Ms. Veasley develops
educational programs for the patient and medical-scientific communities,
attends and speaks at national healthcare conferences, works with media
professionals to raise awareness of the disorder, meets with industry
representatives to facilitate research and development of novel treatments for
vulvodynia and works with members of Congress and federal funding agencies such as the National Institutes of
Health to encourage increased federal funding of research on vulvodynia and
coexisting pain disorders. Although twenty-one years after her accident
Christin continues to live with chronic back and head pain,
she feels blessed to have found a resolution for her vulvodynia. To facilitate awareness and understanding, she
speaks openly about how these pain disorders have impacted her life and feels
privileged to serve, and provide a voice for, this longtime neglected
population of women with vulvodynia.

Governance

BOARD CHAIR

Phyllis Mate

Community Volunteer

BOARD LEADERSHIP PRACTICES

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RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?