Alzheimers Disease and Related Disorders Association
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Know to 10 Signs: Early Detection Matters
The warning signs of Alzheimer’s disease are often dismissed as side effects of normal aging. This workshop will provide a greater understanding of the different between age-related memory loss and dementia and what to do if they have signs of Alzheimer’s disease; encouraging early detection, early diagnosis and early intervention.
The Basics - Memory Loss, Dementia, and Alzheimer's Disease
This program provides information on detection, causes and risk factors, stages of the disease, treatment, and much more.
Where we work
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Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Today, 1 in 3 seniors dies from Alzheimer's disease or a related dementia and Alzheimer's is the sixth leading cause of death - the only one in the top 10 causes without a way to treat, slow the progression or cure. An estimated 5.3 million Americans of all ages have Alzheimer's disease in 2015, and as many as 16 million will have the disease by 2050. There are currently 160,000 North Carolinians living with this disease. It is projected that North Carolina will have 210,000 residents with Alzheimer's disease by 2025. The possibilities of earlier diagnosis and the development of better treatments may significantly change the experience of Alzheimer's for millions of people. In the meantime, the cost of care will rise dramatically. These factors will mean unprecedented challenges, but also will provide opportunities to the Association over the coming years. The vision of the Alzheimer's Association is a World without Alzheimer's disease. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. The Alzheimer's Association, Western Carolina Chapter follows a current 5-year vision developed by the national Alzheimer's Association and Association chapters around the country. Our strategic plans are made up of five pillar focuses, with diversity and inclusion woven throughout. The priority activities are: • Enhancing Care & Support • Advancing Research • Increasing Concern and Awareness • Advancing Public Policy • Growing Revenue Support of the Mission Efforts to address local community needs that are focused and in support of, not separate from or outside of, the overall mission of the Alzheimer's Association.
What are the organization's key strategies for making this happen?
There is a three pronged approach of research, care & support and brain health awareness. This approach is handled through the five pillar focuses. • Enhancing Care and Support - Developing more Early-Stage support groups, support groups, our 24/7 Helpline, educational programs, and two conferences planned for the next fiscal year. • Increasing Concern and Awareness- continue to recruit and engage advocates through a variety of methods and encourage advocacy for legislation to provide access to healthcare and support for those with Alzheimer's and their caregivers.• Provide Programs & Services for: Individuals with Alzheimer's disease - Early stage support groups; Family Caregivers – Support groups, 24/7 Helpline, educational programs. • Growing Revenue Support of the Mission – We budget conservatively for revenue growth and focus on strengthening existing relationships to increase revenue. We continue to look at ways to diversify revenue streams through Chapter-driven charitable giving activities and satisfy donor expectations and needs. Our largest fundraising efforts are: Walk to End Alzheimer's®, third-party fundraisers, corporate initiatives and Reason to Hope events. • Advancing Public Policy – We continue to recruit and engage advocates through a variety of methods and encourage advocacy for legislation to provide access to healthcare and support for those with Alzheimer's and their caregivers. • Increase Concern & Awareness – We aim to increase concern about the disease and awareness of it by garnering media impressions through earned and paid media efforts. Social media and other news media are also an important part of our strategy. • Advancing research – We work to increase research funding by the Association and engage more people in Alzheimer's science priorities through research forums and TrialMatch® registrations.
What are the organization's capabilities for doing this?
The Alzheimer's Association is the global leader in Alzheimer's advocacy, research and support. We have committed to do more to enhance and strengthen this leadership position, as well as expand the depth, breadth and pace of the Alzheimer's movement. Since 1985, the Alzheimer's Association – Western Carolina Chapter has provided reliable information and care consultation; created supportive services for families; increased funding for dementia research; and influenced public policy changes. The Alzheimer's Association – Western Carolina Chapter operates as a local, independent, tax-exempt, non-profit organization. The Chapter serves 49 counties in North Carolina with offices in Charlotte, Greensboro, Asheville, and Hickory, serving more residents affected by Alzheimer's disease, including the 160,000 people with the disease. By 2025 we estimate there will be 210,000 people in North Carolina with Alzheimer's disease. The Alzheimer's report ALZHEIMERS DISEASE AND RELATED DISORDERS ASSOCIATION http://www.alz.org/northcarolina/in_my_community_about.asp| Last Updated on 3.24.2015 Alzheimer's Association, Western Carolina Chapter works on a local level to enhance care and support for all those affected by Alzheimer's and related dementias. • Our chapter has 4 offices throughout the western part of the state with 15 employees. • We have more than 500 volunteers. • We have highly trained social work staff and volunteers manning our Helpline 24 hours a day, 365 days a year. Helpline is often the introduction for someone facing the disease to the Alzheimer's Association. • We strive to grow contributed revenue through the development of an Association-wide philanthropic culture (including boards, staff and volunteers at national and local levels) that fully embraces, prioritizes and invests in partnerships, fundraising and revenue growth. • Strong network of support groups. • Strong fundraising team and events. • Full-time staff who work to grow connections in the community
What have they accomplished so far and what's next?
While we have made significant strides in all areas throughout the last three years, there is still much to do, so many goals remain in place for the next strategic plan. Areas requiring the most attention going forward include: physician outreach, advocacy, and reaching diverse audiences in everything we do. Accomplishments: • We hosted 15 Walk to End Alzheimer's events throughout our region, with more than 7,400 participants. • Offered 195 educational programs throughout Western North Carolina, along with 160 police officers being trained through the Approaching Alzheimer's: First Responder Training Program. • 94 Support Groups are spread throughout the Western Carolina Chapter and more facilitators are in training. • Over 5,000 people attended our programs or conferences last year. • About 500 volunteers provided about 5250 hours of work in FY14. • We fielded 3,348 calls through our Helpline in FY14. • Since FY13, engaged 5% more people through TrialMatch®, a clinical trial matching service for individuals with Alzheimer's, caregivers, healthy volunteers and physicians. • Strong major fundraising events are held each year including Walk to End Alzheimer's®, Blondes versus Brunettes and Reason to Hope.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Alzheimers Disease and Related Disorders Association
Board of directorsas of 04/29/2019
Maggie Norris
Community One
Stuart Goldstein
Cadwalader, Wickersaam & Taft
Nancy Lauffer
FLS Energy
Brian McDonnell
Park Sterling Bank
Chris Clouden
7th Street Public Market
Frank Marshall
FLS Energy
Greg Mercer
Red Moon Marketing
Eleanor Raispis
Wells Fargo
William Scurry
Allen Tate Companies
Fran Braun Wolberg
Forsyth County Community Block Grant Advisory Council
Deb Burcombe
Wake Forest School of Medicine - Aging and Alzheimer's Disease Center, Sticht Center on Aging
Meredith McKee
Womble, Carlyle, Sandridge & Rice, LLP
Peter Laine
Retired - CUTCO Corporation
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes