Health—General & Rehabilitative

Craniosynostosis & Parents Support

  • Massapequa, NY
  • http://www.CAPPSkids.org

This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

Mission Statement

Craniosynostosis and Positional Plagiocephaly Support, Inc. is an international nonprofit organization established in 1999 and headquartered in Massapequa, NY. We are dedicated to helping families find support and information to help deal with craniosynostosis and positional plagiocephaly. Our goals include raising awareness with the general public, doctors, health care organizations, parent's and loved ones. Offering support and information to families facing a diagnosis of these conditions so that they can prepare themselves and be an informed advocate for their child.  Most importantly so that no family feels alone during this uncertain time.

Service Areas

Self-reported

International

United States and International Support

ruling year

2000

Principal Officer since 2009

Self-reported

Mrs. Amy Galm

Keywords

Self-reported

Children, health, surgery, birth defect, awareness, care package, inform, doctors, general public

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EIN

57-1091027

 Number

2313750704

Contact

Cause Area (NTEE Code)

Fund Raising and/or Fund Distribution (E12)

Research Institutes and/or Public Policy Analysis (B05)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

Programs + Results

How does this organization make a difference?

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Craniosynostosis and Positional Plagiocephaly Support's programs include, preparing care packages for families to have during their hospital stay, these packages include many items that the parent and child need during their hospital recovery. We have a sponsor a family program where one member is matched up with a new member or a member preparing for surgery and they are there to help the new member with any questions they have or any one on one support they need. We have our awareness project to pass out information materials on craniosynostosis and positional plagiocephaly to child issue conferences, baby fairs and health care organizations to get craniosynostosis and positional plagiocephaly diagnosed earlier then it is being diagnosed now.

Category

Population(s) Served

Budget

Service Areas

Self-reported

International

United States and International Support

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

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Operations

The people, governance practices, and partners that make the organization tick.

Craniosynostosis & Parents Support

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2010 and 2009
  • Board Chair and Board Members
  • Access to the GuideStar Community
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

Principal Officer

Mrs. Amy Galm

BIO

Amy Galm, current President of Craniosynostosis and Positional Plagiocephaly Support. Ms.Galm joined CAPPS after her son Maxwell was late diagnosed and had surgery for this condition. She enjoyed the comfort of the support given her and joined the cause as a volunteer, often advocating for these conditions. in 1999, she was asked by the CAPPS founder to take over as President and she happily obliged.  Ms. Galm has a strong background in sales and customer service as well as active listening and problem solving.  Her plan is to grow CAPPS into a world-wide Organization that can support smaller organizations and families world-wide.

Governance

BOARD CHAIR

Amy Galm

no affiliation

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?