Health—General & Rehabilitative

ANGELMAN SYNDROME FOUNDATION INC

  • Aurora, IL
  • www.angelman.org

Mission Statement

Our mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy,  and support for individuals with Angelman Syndrome, their families, and other concerned parties.

Main Programs

  1. Research
  2. Family Support
  3. Fundraising and Management

service areas

National

Self-reported by organization

ruling year

2001

chief executive for fy 2004

Eileen Braun

Self-reported by organization

Keywords

Education, research, information exchange, support.

Self-reported by organization

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EIN

59-3092842

Also Known As

ASF

Contact

Cause Area (NTEE Code)

Health (General and Financing) (E80)

Birth Defects (G20)

Single Organization Support (H11)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

Research

Not available

Category

Medical Research

Budget

$882,628.00

Population Served

Program 2

Family Support

Not available

Category

Diseases, Disorders & Medical Disciplines

Budget

$289,546.00

Population Served

Program 3

Fundraising and Management

Not available

Category

Diseases, Disorders & Medical Disciplines

Budget

$1,656,661.00

Population Served

service areas

National

Self-reported by organization

Funding Needs

Research Family Support Wagstaff Fellowship

External Reviews

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Source: greatnonprofits.org

Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

ANGELMAN SYNDROME FOUNDATION, INC.
Fiscal year: Oct 01-Sep 30

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Operations

The people, governance practices, and partners that make the organization tick.

ANGELMAN SYNDROME FOUNDATION INC

Leadership

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  • Address, phone, website and contact information
  • Forms 990 for 2014, 2013 and 2012
  • Board Chair and Board Members
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CHIEF EXECUTIVE FOR FISCAL YEAR

Eileen Braun

STATEMENT FROM THE CEO

"The Angelman Syndrome Foundation takes pride in its long-standing committment to providing direct support to families of indivdiuals with Angelman syndrome (AS), as well as to being the largest non-governmental funder of Angelman-specific research. Our dedication and committment to individuals with AS and their families through direct support, educational offerings and AS-specific research is unparalleled. It is a privilege to serve and support this wonderful, ever-growing community."

Governance

BOARD CHAIR

Timothy McCarty

No Affiliation

Term: July 2009 - July 2013

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?