Health—General & Rehabilitative

Parkinsons Action Network Foundation

  • Washington, DC
  • http://www.parkinsonsaction.org

Mission Statement

PAN is the Unified Voice of the Parkinson’s Community

The Parkinson’s Action Network (PAN) is the unified education and advocacy voice of the Parkinson’s community – fighting to find a cure. Through education and interaction with the Parkinson’s community, scientists, policy and opinion leaders, as well as the public at large, PAN advocates for an increased and accelerated investment of public resources to find a cure for the more than 1 million Americans who have Parkinson’s disease.

Main Programs

  1. PAN Forum

service areas

National

Self-reported by organization

Areas Served Narrative

Parkinson’s disease community throughout the USA

Self-reported by organization

ruling year

1993

Principal Officer since 2003

Ms. Amy Comstock Rick J.D.

Self-reported by organization

Keywords

Parkinson's disease, advocacy, research, public policy

Self-reported by organization

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EIN

94-3172675

 Number

2735879284

Physical Address

1025 Vermont Ave., NW Suite 1120

Washington, DC 20005

Also Known As

PAN

Contact

Cause Area (NTEE Code)

Research Institutes and/or Public Policy Analysis (E05)

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Neurology, Neuroscience (H96)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Impact statement

In 2009, PAN made important progress:

 CEO Amy Comstock Rick met with President Obama’s transition team to ensure that they heard the voice of the Parkinson’s community, urging him to overturn the prior Administration’s funding restrictions on embryonic stem cell research. President Obama issued an Executive Order on March 9, 2009 that lifted the prior Administration’s restrictive policy on embryonic stem cell research, and is a major step forward for the Parkinson’s disease community and many other disease communities throughout the country.

 Working closely with our champions in Congress, a bill was introduced that requires the Centers for Disease Control (CDC) to develop coordinated, separate national systems to collect and store existing Multiple Sclerosis and Parkinson’s disease data on incidence and prevalence. The information collected through the registries will provide a foundation for evaluating and understanding many factors of the disease. This legislation will give our community, for the first time, data on who has Parkinson’s and where they are located in this country.

  PAN worked with U.S. Military Veterans with Parkinson’s Disease to support veterans exposed to Agent Orange living with Parkinson’s disease. In October 2009, the Secretary of Veterans Affairs announced that Parkinson’s disease will receive a presumption of service connection for disabled Vietnam veterans living with Parkinson’s disease. Now, Vietnam veterans applying for disability benefits with Parkinson’s disease will not have to prove an association between their illness and military service.

Programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

Self-reported by organization

Program 1

PAN Forum

PAN hosts an annual Research & Public Policy Forum in Washington, D.C. PAN's Research & Public Policy Forum serves as a premier educational program for Parkinson's physicians, patients, researchers as well as leaders in the Parkinson's community.  The primary goal of the Forum is to bring together these various stakeholders so that they can share information and learn about the latest developments in Parkinson's research. Through plenary sessions, workshops and networking opportunities, participants will learn about the latest research and discuss creative ideas for new research endeavors. Fundamental to the success of the Forum is the premise that visiting scientists and researchers can learn from each other and from Parkinson's patients and caregivers. Approximately 600 people are expected to participate in PAN's 2009 Forum (March 15-17, 2009) 300 will participate in person at the L'Enfant Plaza Hotel in Washington, DC and another 300 via webcast.
PAN also sponsors the Morris K. Udall Awards Dinner, named in honor of the late U.S. Representative Morris K. "Mo" Udall, who struggled with Parkinson's disease. The 16th Annual Morris K. Udall Awards Dinner will be held on October 20, 2009 at the Capital Hilton in Washington, DC. This annual event is PAN's only fundraiser and it raises significant unrestricted support dollars for PAN's work. NPR host Diane Rehm and her husband John Rehm will once again be the co-chairs of the 16th Annual Morris K. Udall Awards Dinner joined by Michael J. Fox as Honorary Dinner Chairman.

Category

Budget

$356,386.00

Population Served

General Public/Unspecified

service areas

National

Self-reported by organization

Areas Served Narrative

Parkinson’s disease community throughout the USA

Self-reported by organization

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

PARKINSON'S ACTION NETWORK
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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  • Board Chair, Board Co-Chair and Board Members
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Operations

The people, governance practices, and partners that make the organization tick.

Parkinsons Action Network Foundation

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2015, 2014 and 2013
  • Board Chair, Board Co-Chair and Board Members
  • Access to the GuideStar Community
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Principal Officer

Ms. Amy Comstock Rick J.D.

BIO

Amy Comstock Rick is the chief executive officer of Parkinson's Action Network. Before joining PAN in 2003, she served as the sixth Director of the U.S. Office of Government Ethics, having accepted the nomination to the Senate-confirmed position in 1999. Prior to her appointment to the Office of Government Ethics, Mrs. Rick was Associate Counsel to the President in the White House Counsel's Office. Mrs. Rick began her federal service as an attorney at the U.S. Department of Education in 1988; she ended her tenure there in 1998 as Assistant General Counsel for Ethics. Mrs. Rick began her professional career at the law firm of Beveridge & Diamond. She received a Bachelor of Arts degree from Bard College and a Juris Doctor degree from the University of Michigan.

Governance

BOARD CHAIR

Ronald H. Gallowich

Initiate Systems

Term: Oct 2009 - Oct 2011

BOARD LEADERSHIP PRACTICES

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BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?