Sources Cited 

• Aldridge, Robert S., chairman, Tom & Marye Kate Aldridge Charitable and Educational Trust, Oklahoma City, Oklahoma. E-mail to Suzanne E. Coffman, January 8, 2001.
  
  
• Baker, Robbie, director of development, American College of Rheumatology Research and Education Foundation, Atlanta, Georgia. E-mail to Suzanne E. Coffman, January 11, 2001.
  
  
• Barber, Elizabeth, executive director, American Lung Association of Mississippi, Ridgeland, Mississippi. E-mail to Suzanne E. Coffman, January 8, 2001.
  
  
• Benetech Initiative. "Project Summaries."
  
  
• Burns, Janet, vice president, development and community relations, Clovernook Center for the Blind, Cincinnati, Ohio. E-mail to Suzanne E. Coffman, January 10, 2001.
  
  
• Cech, Thomas R., Ph.D., president, Howard Hughes Medical Institute, Chevy Chase, Maryland. E-mail to Suzanne E. Coffman, January 8, 2001.
  
  
• Chun, Danny, director, media relations, Alzheimer's Association, Chicago, Illinois. E-mail to Suzanne E. Coffman, January 17, 2001.
  
  
• Colonius, Cyril C., executive director, Community AIDS Resource and Education Services of Southwest Michigan (CARES), Kalamazoo, Michigan. E-mail to Suzanne E. Coffman, January 16, 2001.
  
  
• Conrad, Dr. William C., president, GANSU, INC., Warner Robins, Georgia. E-mail to Suzanne E. Coffman, January 12, 2001.
  
  
• Cookman, Darrell, communications coordinator, Cornelia de Lange Syndrome Foundation, Avon, Connecticut. E-mail to Suzanne E. Coffman, January 23, 2001.
  
  
• Dessner, Gerald H., president, the William B. Dessner Memorial Fund, Inc., New York, New York. E-mail to Suzanne E. Coffman, January 7, 2001.
  
  
• Fitzek, Brian, associate director of communications, American Lung Association of Maryland, Timonium, Maryland. E-mail to Suzanne E. Coffman, January 9, 2001.
  
  
• Fruchterman, Jim, president, Benetech, Moffett Field, California. E-mail to Suzanne E. Coffman, January 6, 2001.
  
  
• Fulton, Shari, national vice president and director of medical education, P.R.Y.S. Foundation, Inc., Folsom, California. E-mail to Suzanne E. Coffman, January 9, 2001.
  
  
• Gacki, Sharon, executive director, Amyotrophic Lateral Sclerosis Association, Saint Louis, Missouri. E-mail to Suzanne E. Coffman, January 11, 2001.
  
  
• Gorden, Audry, president, The Progeria Research Foundation, Inc., Peabody, Massachusetts. E-mail to Suzanne E. Coffman, January 12, 2001.
  
  
• Guidone, Heather C., director of operations, Endometriosis Research Center, Delray Beach, Florida. E-mail to Suzanne E. Coffman, January 6, 2001.
  
  
• Hamilton, Mary, development assistant, DebRA of America, New York, New York. E-mail to Suzanne E. Coffman, January 11, 2001.
  
  
• Harris, Trudy, director, research and public relations, the Lynne Cohen Foundation for Ovarian Cancer Research, Santa Monica, California. E-mail to Suzanne E. Coffman, January 6, 2001.
  
  
• Havlicek, Michael, president, ALS Association, Calabasas Hills, California. E-mail to Suzanne E. Coffman, January 22, 2001.
  
  
• Heyison, Marc, president/co-founder, Men Against Breast Cancer, Rockville, Maryland. E-mail to Suzanne E. Coffman, January 10, 2001.
  
  
• Hodgson, Dave, vice president, Illinois Chapter—Huntington's Disease Society of America, Chicago, Illinois. E-mail to Suzanne E. Coffman, ca. January 8, 2001.
  
  
• Hodin, Ali, director of programs; Mary Clare Lynch, director of administration; Bonnie Osinski, director of development; and Mary P. Walker, associate director of development, The Glaucoma Foundation, New York, New York. E-mail to Suzanne E. Coffman, January 18, 2001.
  
  
• Kansky, Gail, president, National CFIDS Foundation, Inc., Needham, Massachusetts. E-mail to Suzanne E. Coffman, January 5, 2001.
  
  
• Katzke, Mary, director, Affinity Films "Between Us Project," Anchorage, Alaska. E-mail to Suzanne E. Coffman, January 6, 2001.
  
  
• Keener, Amy, community relations coordinator, the Leukemia & Lymphoma Society, Dallas, Texas. E-mail to Suzanne E. Coffman, January 10, 2001.
  
  
• Koopman, Jan, project manager, HIV/AIDS Services, Inc. (HAS), Grand Rapids, Michigan. Fax to Suzanne E. Coffman, January 8, 2001.
  
  
• Knowles, Kathi, executive director, Health Information Network, Seattle, Washington. E-mail to Suzanne E. Coffman, January 17, 2001.
  
  
• Ladd, Virginia T., president and executive director, American Autoimmune Related Diseases Association, East Detroit, Michigan. E-mail to Suzanne E. Coffman, January 11, 2001.
  
  
• Landversicht, Susan, director of development, National Reye's Syndrome Foundation, Bryan, Ohio. E-mail to Suzanne E. Coffman, January 12, 2001.
  
  
• Martin, Chuck, executive director, Kenny Rogers Children's Center, Sikeston, Missouri. E-mail to Suzanne E. Coffman, January 11, 2001.
  
  
• Massey, Jane, chief operating officer, March of Dimes, White Plains, New York. Telephone interview with Suzanne E. Coffman, January 17, 2001.
  
  
• McAuliffe, Alicia, president, Circle of Life Camp, Loudonville, New York. E-mail to Suzanne E. Coffman, January 8, 2001.
  
  
• McSpadden, Kaye, director of public and scientific affairs, Lowe Syndrome Association, West Lafayette, Indiana. E-mail to Suzanne E. Coffman, January 14, 2001.
  
  
• Messer, Sherrie, executive director, Southern Oregon Lions Sight & Hearing Center, Medford, Oregon. E-mail to Suzanne E. Coffman, January 8, 2001.
  
  
• Moore, Rebecca, executive director, ALS Association Evergreen Chapter, Bellevue, Washington. E-mail to Suzanne E. Coffman, January 16, 2001.
  
  
• Morton, Peter, vice president, Morton Cure Paralysis Fund, Minneapolis, Minnesota. E-mail to Suzanne E. Coffman, January 10, 2001.
  
  
• Murphy, Paul, president, International Society for Mannosidosis & Related Diseases, Inc., Baltimore, Maryland. E-mail to Suzanne E. Coffman, January 20, 2001.
  
  
• Naucke, Debbie, executive director, Delta Gamma Center for Children with Visual Impairments, Saint Louis, Missouri. E-mail to Suzanne E. Coffman, January 15, 2001.
  
  
• O'Leary, Delores M., director, Sarcoid Networking Association, Sumner, Washington. E-mail to Suzanne E. Coffman, January 9, 2001.
  
  
• Powell, Dr. Marie E. Powell, president, Green Hill, Inc., West Orange, New Jersey. E-mail to Suzanne E. Coffman, January 8, 2001.
  
  
• Remley, Karen, M.D., M.B.A., F.A.A.P., chief medical officer, Operation Smile, Norfolk, Virginia. E-mail to Suzanne E. Coffman, January 11, 2001.
  
  
• Ryan, Nancy, deputy director, Pierce County AIDS Foundation, Tacoma, Washington. E-mail to Suzanne E. Coffman, January 11, 2001.
  
  
• Schaefer, Craig, executive director, Cancer Care Services, Fort Worth, Texas. E-mail to Suzanne E. Coffman, January 24, 2001.
  
  
• Schlam, Ellie, public relations director, National Kidney Foundation, New York, New York. E-mail to Suzanne E. Coffman, January 11, 2001.
  
  
• Sheeran, John, chief executive officer, Tuesday's Child, Culver City, California. E-mail to Suzanne E. Coffman, January 8, 2001.
  
  
• Slaman-Forsythe, Mary, founder and president, Twin to Twin Transfunsion Syndrome Foundation, Bay Village, Ohio. E-mail to Suzanne E. Coffman, January 7, 2001.
  
  
• Spillane, Mary, director of communications and public education, Interplast, Mountain View, California. E-mail to Suzanne E. Coffman, January 12, 2001.
  
  
• Stanton, Bradley N., P.D.G., chairman, Gift of Life International, Inc., Glen Mills, Pennsylvania. E-mail to Suzanne E. Coffman, January 7, 2001.
  
  
• Stoxen, Craig C., executive director, South Carolina Autism Society, West Columbia, South Carolina. E-mail to Suzanne E. Coffman, January 8, 2001.
  
  
• Strawderman, J. A., Ph.D., director, Otter Creek Research, Inc., Springport, Michigan. E-mail to Suzanne E. Coffman, January 9, 2001.
  
  
• Switzer, Dave, marketing and public relations director, PKD Foundation, Kansas City, Missouri. E-mail to Suzanne E. Coffman, January 11, 2001.
  
  
• Tarver, Dr. Donald G., administrator, Pacific West Cancer Fund, Seattle, Washington. E-mail to GuideStar, January 9, 2001.
  
  
• Thuma, Phil, M.D., executive director, Macha Malaria Research Institute, Dillsburg, Pennsylvania. E-mail to Suzanne E. Coffman, January 8, 2001.
  
  
• Tyson, Mercer Tyson, director of development, AIDS Community Residence Association (ACRA), Durham, North Carolina. E-mail to Suzanne E. Coffman, January 7, 2001.
  
  
• Venable, Sean Casey, chair and chief operating officer, P.L. Active, Inc./Non-profit AIDS Services, Washington, D.C. E-mail to Suzanne E. Coffman, January 6, 2001.
  
  
• Weckesser, Sandra W., vice president for institutional advancement, Fox Chase Cancer Center, Philadelphia, Pennsylvania. E-mail to Suzanne E. Coffman, January 19, 2001.
  
  
• Wegner, Pamela, program director, community relations, The Serra Project, Los Angeles, California. E-mail to Suzanne E. Coffman, January 19, 2001.
  
  
• Weyl, Janie, president, Breast Cancer Alliance, Greenwich, Connecticut. E-mail to Suzanne E. Coffman, January 15, 2001.
  
  
• White, Lois V., executive director, Acoustic Neuroma Association, Cumming, Georgia. E-mail to Suzanne E. Coffman, January 10, 2001.
  
  
• Wootton, Jackie, M.Ed., president and executive director, Alternative Medicine Foundation, Bethesda, Maryland. E-mail to Suzanne E. Coffman, January 12, 2001.