Amyotrophic Lateral Sclerosis Association

We are working to find new treatments and a cure for ALS. Through our patient programs, we try to help patients live fuller lives and remain independent for as long as possible. Our public policy initiatives are focused on appropriating dollars for research and also passing laws which will assist patients and caregivers.

Our chapter works throughout the year to raise funds to support these initiatives. We hold walks, rides, marathons and other fundraising events and programs to support the mission related objectives. We just passed a new 3 year strategic plan at our national level and will also prepare a strategic plan for our local chapter that roll up into the national one.

We fund the best and most promising research at different levels- basic science, translational and finally clincial trials. Our patient programs are all designed to meet the needs of patients and caregivers and particularly meeting unmet need in our community. We work to raise the level of awareness of ALS in our community through our marketing and communications efforts.

We are making progress in research- we have several drugs that are in phase 3 clinical trials. We are helping patients and caregivers via our programs and hope to add a respite program during the coming year. We are just beginning our legislative outreach and should know more about accomplishments within a few months.