Amyotrophic Lateral Sclerosis Association

aka The ALS Association Massachusetts Chapter   |   Norwood, MA   |  www.als-ma.org

Mission

The ALS Association Massachusetts Chapter was founded on January 27, 1990.  It's mission is to lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

Ruling year info

1990

Executive Director

Mr. John E. Hedstrom

Main address

685 Canton Street, Suite 103 First Floor

Norwood, MA 02062 USA

Show more contact info

EIN

04-3085718

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Nerve, Muscle and Bone Diseases (G50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2018.
Register now

Programs and results

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Login and update

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

The Mel Kornbliet Memorial Equipment Loan Closet

Durable medical equipment and delivery is provided at no cost to patients. Equipment includes such items as wheelchairs (manual and electric), commodes, hoyer lifts and walkers. If you would like to donate equipment or volunteer for this program, please let us know.

Population(s) Served

Consultations may be done via the telephone, in our Resource Center in Dedham, or in your home. Professionals will educate patients and family members about disease management, will link families to appropriate resources, will help them negotiate the complex system of health, social, legal and financial services, and help them evaluate their needs and options.

Population(s) Served

Support groups for patients and caregivers are excellent forums for sharing information and receiving emotional support. They include speakers who focus on all aspects of the disease. 

They are not “group therapy” sessions. There is no psychological jargon or probing into one’s personal life. Two qualified professionals, including social workers, nurses and psychologists, lead each group.

Population(s) Served

The Chapter provides materials to patients, caregivers and professionals on a loan-out basis. Books, videos and articles cover such topics as symptom management, legal and financial issues, diet and nutrition, insurance coverage and psychological issues.

Population(s) Served

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We are working to find new treatments and a cure for ALS. Through our patient programs, we try to help patients live fuller lives and remain independent for as long as possible. Our public policy initiatives are focused on appropriating dollars for research and also passing laws which will assist patients and caregivers.

Our chapter works throughout the year to raise funds to support these initiatives. We hold walks, rides, marathons and other fundraising events and programs to support the mission related objectives. We just passed a new 3 year strategic plan at our national level and will also prepare a strategic plan for our local chapter that roll up into the national one.

We fund the best and most promising research at different levels- basic science, translational and finally clincial trials. Our patient programs are all designed to meet the needs of patients and caregivers and particularly meeting unmet need in our community. We work to raise the level of awareness of ALS in our community through our marketing and communications efforts.

We are making progress in research- we have several drugs that are in phase 3 clinical trials. We are helping patients and caregivers via our programs and hope to add a respite program during the coming year. We are just beginning our legislative outreach and should know more about accomplishments within a few months.

Financials

Amyotrophic Lateral Sclerosis Association
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Amyotrophic Lateral Sclerosis Association

Board of directors
as of 3/13/2020
SOURCE: Self-reported by organization
Board chair

Ms. Kris Moussette

Hinckley Allen

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No