Amyotrophic Lateral Sclerosis Association
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
The Mel Kornbliet Memorial Equipment Loan Closet
Durable medical equipment and delivery is provided at no cost to patients. Equipment includes such items as wheelchairs (manual and electric), commodes, hoyer lifts and walkers. If you would like to donate equipment or volunteer for this program, please let us know.
Case Management Consultations
Consultations may be done via the telephone, in our Resource Center in Dedham, or in your home. Professionals will educate patients and family members about disease management, will link families to appropriate resources, will help them negotiate the complex system of health, social, legal and financial services, and help them evaluate their needs and options.
Support Group Program
Support groups for patients and caregivers are excellent forums for sharing information and receiving emotional support. They include speakers who focus on all aspects of the disease.
They are not “group therapy” sessions. There is no psychological jargon or probing into one’s personal life. Two qualified professionals, including social workers, nurses and psychologists, lead each group.
The Peter and Terry Wise Resource Center
The Chapter provides materials to patients, caregivers and professionals on a loan-out basis. Books, videos and articles cover such topics as symptom management, legal and financial issues, diet and nutrition, insurance coverage and psychological issues.
Where we work
External reviews

Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
We are working to find new treatments and a cure for ALS. Through our patient programs, we try to help patients live fuller lives and remain independent for as long as possible. Our public policy initiatives are focused on appropriating dollars for research and also passing laws which will assist patients and caregivers.
What are the organization's key strategies for making this happen?
Our chapter works throughout the year to raise funds to support these initiatives. We hold walks, rides, marathons and other fundraising events and programs to support the mission related objectives. We just passed a new 3 year strategic plan at our national level and will also prepare a strategic plan for our local chapter that roll up into the national one.
What are the organization's capabilities for doing this?
We fund the best and most promising research at different levels- basic science, translational and finally clincial trials. Our patient programs are all designed to meet the needs of patients and caregivers and particularly meeting unmet need in our community. We work to raise the level of awareness of ALS in our community through our marketing and communications efforts.
What have they accomplished so far and what's next?
We are making progress in research- we have several drugs that are in phase 3 clinical trials. We are helping patients and caregivers via our programs and hope to add a respite program during the coming year. We are just beginning our legislative outreach and should know more about accomplishments within a few months.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Amyotrophic Lateral Sclerosis Association
Board of directorsas of 3/13/2020
Ms. Kris Moussette
Hinckley Allen
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No